‘Through my eyes’: health‐promoting factors described by photographs taken by children with experience of cancer treatment

Einberg, Eva-Lena; Nygren, Jens M.; Svedberg, Petra; Enskär, Karin

doi:10.1111/cch.12285

Cited by 15 publications

(16 citation statements)

References 45 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Maintaining belief is an aspect that concerns meaningful relationships, such as encouraging friendships with peers, during treatment periods. This type of support can be achieved by collaborating with the child’s preschool/school and using modern technology to maintain contact with peers (Einberg, Nygren, Svedberg, & Enskär, 2016). af Sandeberg, Johansson, Björk, and Wettergren (2008) have shown the social benefits of school attendance or contact with school for older children with cancer.…”

Section: Discussionmentioning

confidence: 99%

Experiences of Young Children With Cancer and Their Parents With Nurses’ Caring Practices During the Cancer Trajectory

Enskär

Darcy

Björk

et al. 2019

J Pediatr Oncol Nurs

View full text Add to dashboard Cite

Children with cancer require repeated hospitalizations and the family’s everyday life and routines undergo change. Concrete descriptions of how nurses act when caring for children with cancer throughout the various phases of care and treatment are sparsely highlighted in the literature. The aim of this study was to describe young children with cancer and their parents’ experiences of nurses’ caring practices over a 3-year period, from diagnosis to follow-up. This study is based on semistructured interviews with 25 children newly diagnosed with cancer, aged 1 to 6 years, and their parents, connected to a pediatric oncology unit in Sweden. Child and parent data were analyzed with a deductive content analysis using Swanson’s theory of caring. The result shows that nurse care practices directed toward young children with cancer and their parents are to some extent similar across a 3-year period from diagnosis to follow-up but also differ in some ways. Nurses’ caring practices aim to support children and parents in the transition to a “new normal.” Child- and family-friendly care processes include the following: creating hope and a trustful relationship, asking rather than assuming, providing knowledge and information, performing tasks skillfully, displaying an interest in the child’s and parents’ life outside the hospital, and helping the family to trust in the future and other health care providers. Based on these results, we recommend the development of a standardized and structured nursing care plan or clinical guideline with detailed information on how to carry out clinical nurse care practices in the different phases.

show abstract

Section: Discussionmentioning

confidence: 99%

Experiences of Young Children With Cancer and Their Parents With Nurses’ Caring Practices During the Cancer Trajectory

Enskär

Darcy

Björk

et al. 2019

J Pediatr Oncol Nurs

View full text Add to dashboard Cite

show abstract

“…Children with cancer suffer from psychosocial aspects of the disease and on‐treatment (Enskär & von Essen ), and they express a wish for recreational activities on the ward, such as relaxation and amusement opportunities, which they believe will improve their health (Einberg et al., ). Our findings show that childhood activities and icons are popular on the paediatric ward and they can be viewed as providing children with favourable opportunities to bear, cope with and escape from the distress of treatment.…”

Section: Discussionmentioning

confidence: 99%

“…In some studies, this is explained by parental protection, which causes children to withdraw from social interaction (Balen, ; Durhan, ). Parents are significant others (Einberg, Nygren, Svedberg, & Enskär, ) and they are some of the few social relations children have during treatment. However, this interactionist perspective might overlook matters that can be directly associated with on‐treatment, such as the dynamics between the contexts of on‐treatment and children's agency.…”

Section: Discussionmentioning

confidence: 99%

Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term

2016

View full text Add to dashboard Cite

This anthropological study explores children's non-social reactions during the active treatment period, the on-treatment, in a paediatric oncology ward in a Danish university hospital. It is argued that, although some children's non-social reactions is a tactical disengagement to manage the on-treatment situation, such non-social tactics might ultimately prove an undesirable strategy with negative long-term social consequences for social survivorship. Data were generated over 7 months of ethnographic fieldwork between May 2011 and January 2013, using qualitative methods such as participant observation and open-ended interviewing. Fifty children of both sexes between 4 and 15 years, their families and hospital staff participated in the study. These data formed the basis for the study. The findings show that children's response to care challenges, including exhaustion from care management, exposure from being in a public space, and the open-ended duration of treatment, configure in tactic forms that we term social disengagement. It is suggested that such tactical social disengagement might expand into long-term social patterns, and, as such, change from an alleviating tactic to a socially isolating and damaging tactic for survivors of cancer in childhood.

show abstract

“…Research with children from a participatory perspective has been advocated and used when children are participants in the projects (Davis et al, 2018;Einberg, Nygren, Svedberg, & Enskär, 2016;Gibbs et al, 2018;Larsson, Staland-Nyman, Svedberg, Nygren, & Carlsson, 2018). This means that the participants play an active role throughout the project.…”

Section: Methodsmentioning

confidence: 99%

“…The photographs taken by the children were used as a starting point for the focus-group discussions regarding safety (Einberg et al, 2016).…”

Section: It Is Unsafe To Engage In Activities That Can Hurt Youmentioning

confidence: 99%

Safe environments—Through the eyes of 9‐year‐old schoolchildren from a socially vulnerable area in Sweden

Enskär

Isma

Rämgård

2020

Child

View full text Add to dashboard Cite

Background: Children are more vulnerable than adults to environmental risks. Also, children have little control over their environment. Unlike adults, they may be both unaware of risks and unable to make choices to protect their health. Children living in especially vulnerable areas might be even more at risk due to socioeconomic factors, immigration and high crime rates. Therefore, the aim of this study was to describe the perceptions that schoolchildren from a socially vulnerable area have of safe environments. Methods: Fifty-two 9-year-old schoolchildren from a socially vulnerable area participated in this study. The data collection consisted of an environmental walk with photovoicing, followed by rating of the photos and a focus-group discussion elaborating on the photos and ratings. Six focus groups, with six to eight children in each group, were conducted and analysed using inductive content analysis. Results: The results show that, according to the children, places that they think are bright and beautiful, where they can do fun things with others and do not risk being exposed to danger, create safety. To increase safety, the children suggested cleaning up, making the environment beautiful with grass and flowers and painting it in nice colours. Furthermore, they suggested that building features that increase the opportunities to play and engage in activities together with others would improve safety and enhance protection and surveillance. Conclusions: All children have the right to protection and safety. Therefore, it is important to create safe environments for all children by listening to children's own voices.

show abstract

‘Through my eyes’: health‐promoting factors described by photographs taken by children with experience of cancer treatment

Abstract: Background Health promotion for children with cancer should be based on the children's own

Cited by 15 publications

References 45 publications

Experiences of Young Children With Cancer and Their Parents With Nurses’ Caring Practices During the Cancer Trajectory

Experiences of Young Children With Cancer and Their Parents With Nurses’ Caring Practices During the Cancer Trajectory

Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term

Safe environments—Through the eyes of 9‐year‐old schoolchildren from a socially vulnerable area in Sweden

Contact Info

Product

Resources

About