Through the Touch of God: Child Death and Spiritual Sustenance in a Hutterian Colony

Cacciatore, Joanne; Ong, Rebecca

doi:10.2190/om.64.3.a

Cited by 12 publications

(19 citation statements)

References 13 publications

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“…Services were often shorter, there were fewer prayers, cremation was used frequently, and often there were fewer family and friends attending the rituals and gatherings, data consistent with the research of Cacciatore and Ong (2011–2012). Deceased infants and children were dressed in a wide variety of colors and types of clothing from jeans and T-shirts to frilly white dresses.…”

Section: Discussionsupporting

confidence: 70%

“…Ritual practices for wakes, funerals, and burials or cremations for an infant or child differ from those practiced for adults and can be influenced by the child’s age, gender, and cause of death. Services are often shorter, there are fewer prayers, cremation may be used more frequently, and often there are fewer family and friends attending and there are fewer family gatherings after burials (Cacciatore & Ong, 2011–2012). …”

Section: Infant and Child Deathmentioning

confidence: 99%

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Death Rituals Reported by White, Black, and Hispanic Parents Following the ICU Death of an Infant or Child

Brooten

Youngblut

Charles

et al. 2016

Journal of Pediatric Nursing

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Purpose To examine rituals (disposing remains, wakes, funerals/burials, celebrations) of White, Black, Hispanic parents post ICU infant/child death. Design and methods Qualitative design, 63 parents completed English or Spanish semi-structured interviews at 7 & 13 months after infant’s/child’s death. Interviews were audio-recorded, transcribed verbatim, and entered into Atlas.ti for analysis. An inductive approach to thematization was used to develop codes. Results Parents: mean age 35.1 years (SD = 9.03); 33% Black, 27% White, 40% Hispanic; from 17 countries. Three themes emerged: immediately after death - shock and stress, needing help with arrangements, decisions on burial or cremation (conflicts due to finances, religion, culture), when and where to hold wakes, funerals/burials. Wakes and funerals - who prepares child’s body, appropriate dress (deceased child, mourners), who can come (cultural restrictions),-variations by child age, parent choice, culture, religion, country. After burial/cremation - being with family, milestone celebrations. Conclusion Child death is devastating for parents, other children, grandparents, and family members. Practice Implications. Rituals after child death require decisions about the child’s remains, wakes, funerals/burials at time of great pain for parents. This is especially true for newly immigrated parents and those with language barriers where making arrangements is especially hard and often very isolating. Health professionals who provide support need to be cognizant of practice differences based on religion, culture, economics, family traditions, and individual preference and provide as much support and resource as possible. A list of religious leaders representing the community’s cultures and funeral service providers who may provide lower cost burials/cremations is helpful.

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Section: Discussionsupporting

confidence: 70%

Section: Infant and Child Deathmentioning

confidence: 99%

Death Rituals Reported by White, Black, and Hispanic Parents Following the ICU Death of an Infant or Child

Brooten

Youngblut

Charles

et al. 2016

Journal of Pediatric Nursing

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“…Because parents experience grief within the social context, they can be profoundly affected by their environment (Neimeyer et al, 2014). Research on parental grief demonstrates benefit in positive community engagements, including bereavement peer groups either in-person (Cacciatore, 2007;Klass, 1997) or online (Carlson, Lammert, & O'Leary, 2012); support from family systems (Cacciatore, Schnebly, & Froen, 2009;Lang et al, 2004) and religious communities (McIntosh, Silver, & Wortman, 1993); shared ceremony and ritual for grief (Cacciatore & Flint, 2012;Kobler, Limbo, & Kavanaugh, 2007); and cultural (Cacciatore, 2012;Neimeyer & Jordan, 2002) and compassionate psychosocial interventions (Blood & Cacciatore, 2014;Cacciatore, 2013).…”

mentioning

confidence: 99%

From “Silent Birth” to Voices Heard: Volunteering, Meaning, and Posttraumatic Growth After Stillbirth

Cacciatore

Blood

Kurker

2017

Illness, Crisis & Loss

Self Cite

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Volunteerism after stillbirth has not been adequately explored despite recent advances in research on volunteering after trauma and the voluminous research on posttraumatic growth (PTG). Previous research on PTG, ''altruism born of suffering,'' and constructivist theories of grief, meaning, and social narrative provide applicable frameworks. Parents (N ¼ 191) in the present study were assessed for self-reported growth factors with the Posttraumatic Growth Inventory (PTGI) scale and gave narrative reports describing the importance of volunteering for them after their baby's death. Parents who volunteered after their baby's death self-reported significantly higher mean scores on the PGTI than parents who did not volunteer. Qualitative analysis with parents who volunteered only after their baby's death (n ¼ 39) discovered salient categories that confirm and connect theoretically similar explorations from prior research, and also illuminate new directions for research. Clinical implications and caveats are presented.

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“…Education occurs within the colony. Although prior to the 1990's, colonies rarely offered education to grade 12 or had students graduating grade 12, both are now common (Cacciatore and Ong 2013;Cacciatore and Thieleman 2014;Hutterian Brethern 2012).…”

Section: Hutterites Southern Manitobamentioning

confidence: 99%

“If It Helps, It's Worth a Try”: an Investigation of Perceptions and Attitudes about Genetic Counseling among Southern Manitoba Hutterites

Gemmell

Veach

MacFarlane

et al. 2017

Journal of Genetic Counseling

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Few studies have explored the public's views of genetic counseling services, and even fewer focus on founder populations with high prevalence of genetic disease, such as Hutterites. The Hutterites are an Anabaptist religious group grounded in a strong Christian faith. The primary aim of this study was to assess Hutterites' views of genetic counseling services. A secondary aim was to compare their views to those obtained in a study of rural Midwestern U.S. residents (Riesgraf et al., Journal of Genetic Counseling, 24(4), 565-579, 2015). One-hundred eleven individuals from southern Manitoba Hutterite colonies completed an anonymous survey assessing familiarity with and attitudes about genetic counseling; perceptions of its purpose, scope and practice; and willingness to use genetic counseling services. Although many respondents were not familiar with genetic counseling, most had accurate perceptions and positive attitudes. For instance, mean ratings showed endorsement of trust in information provided by genetic counselors and agreement that genetic counseling aligns with their values. Logistic regression indicated reported willingness to use genetic counseling services increased if respondents: had a higher self-rated familiarity with genetic counseling; were younger; agreed with the statement: I would trust the information provided by a genetic counselor; and disagreed with the statements: Genetic counseling is only useful for a small group of people with rare diseases, and Genetic counselors help expectant parents choose the eye color of their child. Thematic analysis of comments regarding willingness to use genetic counseling services yielded themes of personal/family risk, pragmatism (genetic counseling is sensible and practical for managing health concerns), and desire to prevent genetic conditions in the Hutterite population. Comparison of the present findings to those of Riesgraf et al. suggests predictors of Hutterites' willingness to use genetic counseling are unique and culturally-based. Limited replication of Riesgraf et al. was achieved. Additional findings, practice implications and research recommendations are presented.

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Through the Touch of God: Child Death and Spiritual Sustenance in a Hutterian Colony

Cited by 12 publications

References 13 publications

Death Rituals Reported by White, Black, and Hispanic Parents Following the ICU Death of an Infant or Child

Death Rituals Reported by White, Black, and Hispanic Parents Following the ICU Death of an Infant or Child

From “Silent Birth” to Voices Heard: Volunteering, Meaning, and Posttraumatic Growth After Stillbirth

“If It Helps, It's Worth a Try”: an Investigation of Perceptions and Attitudes about Genetic Counseling among Southern Manitoba Hutterites

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