Tics, twitches, tales: The experiences of Gilles de la Tourette's syndrome.

Turtle, Lance; Robertson, Mary M.

doi:10.1037/a0014329

Cited by 19 publications

(11 citation statements)

References 46 publications

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“…The synthesis results aligned with the wider field of published literature in a number of ways. The findings were concurrent with quantitative research which captures the negative impact of TS (e.g., Conelea et al, 2013;Eddy, Rizzo, et al, 2011), and were concordant with personal accounts of TS (Rosen, 1996;Turtle & Robertson, 2008).…”

Section: Discussionsupporting

confidence: 77%

The lived experiences of individuals with Tourette syndrome or tic disorders: A meta‐synthesis of qualitative studies

Smith

Fox

Trayner

2015

British J of Psychology

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There is a growing body of qualitative literature describing the lived experiences of people with tic disorders (TDs). The aim of this paper was to conduct a systematic review of this literature, synthesizing the perspectives of individuals on their experiences. Meta-synthesis methodology was utilized to review and draw together findings from 10 articles, from which key concepts were extracted, and over-arching themes generated. Six themes were identified to encompass the experience of TDs, including (1) cultural, semantic issues of the condition; (2) negative experiences in organizations and treatment; (3) the value and negative impact on interpersonal relationships; (4) personal identity in the constant presence of TDs; (5) concerns for the future; and (6) strategies to control and manage the observable presence of tics. Adaptive coping strategies were found to encompass continuous social adaptation, strategies to manage tics and social perceptions, self-acceptance, advocacy, and support from others. The results highlighted the significant role of social and cultural issues related to understanding and stigma, which underpinned many of the lived experiences. Implications for clinical practice in supporting individuals with TDs were also highlighted.

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Section: Discussionsupporting

confidence: 77%

The lived experiences of individuals with Tourette syndrome or tic disorders: A meta‐synthesis of qualitative studies

Smith

Fox

Trayner

2015

British J of Psychology

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“…One way of understanding the personal and social experiences of individuals with TS comes from the stories of people who have lived with TS for many years such as Joseph Bliss ( 3 ), and the writings of professionals with TS such as the neuroscientist Peter Hollenbeck ( 4 ), and physicians Lance Turtle ( 5 ), and Sam Zinner ( 6 ). Despite having marked symptoms, Bliss ( 3 ) received his diagnosis only at the age of 67 years.…”

Section: The Impact Of Comorbidities and Coexistent Psychopathologiesmentioning

confidence: 99%

Comorbidities, Social Impact, and Quality of Life in Tourette Syndrome

2016

Self Cite

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Tourette syndrome (TS) is more than having motor and vocal tics, and this review will examine the varied comorbidities as well as the social impact and quality of life (QoL) in individuals with TS. The relationship between any individual and his/her environment is complex, and this is further exaggerated in the case of a person with TS. For example, tics may play a significant role in shaping the person’s experiences, perceptions, and interactions with the environment. Furthermore, associated clinical features, comorbidities, and coexisting psychopathologies may compound or alter this relationship. In this regard, the common comorbidities include attention-deficit hyperactivity disorder and disruptive behaviors, obsessive compulsive disorder, and autism spectrum disorder, and coexistent problems include anxiety, depression, and low self-esteem, which can all lead to poorer psychosocial functioning and QoL. Thus, the symptoms of TS and the associated comorbid conditions may interact to result in a vicious cycle or a downward spiraling of negative experiences and poor QoL. The stigma and social maladjustment in TS and the social exclusion, bullying, and discrimination are considered to be caused in large part by misperceptions of the disorder by teachers, peers, and the wider community. Improved community and professional awareness about TS and related comorbidities and other psychopathologies as well as the provision of multidisciplinary services to meet the complex needs of this clinical population are critical. Future research to inform the risk and resilience factors for successful long-term outcomes is also warranted.

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“…Such movements produce shifts in shared body, object, and space dimensions, which places them always on the cusp of actualising compulsive potentialities. These compulsive potentialities seemingly locate in the implied extracorporeal materiality (Karp & Hallett, 1996;Turtle & Robertson, 2008). A recurring compulsive interaction involving 'Bill' ( 50 Yes, I did feel it.…”

Section: Affective Materiality/compulsive Situationsmentioning

confidence: 99%

“…He and other participants did not only express being compelled to compulsively interact with materiality, they also felt that these objects had become part of their sensorium, and as such had become powerful. Compulsivity can then be considered as involving the experience of sensations occurring to an object (Turtle & Robertson, 2008). Resembling feelings arising in phantom limbs (Bliss, 1980), this extends the body with the capacity to 'feel'not touchmateriality from a distance, as 'Dylan' (22) describes:…”

Section: Affective Materiality/compulsive Situationsmentioning

confidence: 99%

Towards compulsive geographies

Beljaars

2019

Trans Inst British Geog

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This paper presents a spatial imagining of compulsivity. Deconstructing its medicalised conceptualisation and its rendition through the diagnostic system, the paper offers a performative analysis of compulsive body-world formation. It does so by introducing compulsivity as urging the performance of acts that are unwanted, purposeless, and meaningless, and that nevertheless enlace the corporeal with and through the extracorporeal on unchosen terms. This analysis of compulsions not only develops the dimension of urgency to nonrepresentational theory in cultural geography. It also develops the critical 2 performative understanding of medicalised phenomena in disability and health geography by considering compulsivity as a more-than-human condition. Indeed, reporting on interviews, participant observations, and mobile eye-tracking sessions with 15 people diagnosed with Tourette syndrome, compulsions seem to emerge from particularly volatile compositions of bodies, objects and spaces.The paper then conceives of compulsivity as articulating the material sensibilities emerging with the body's unfolding situation, and propels it beyond the diagnosable in a broader humanity engaging in material interactions that are felt, rather than known. In addition to a geography of compulsivity, a geographical rendering and ontological centring of compulsions creates a compulsive geography. Ultimately, it situates geographical analysis as crucial to understanding this medicalised performance and as potentially generative of therapeutic outcomes.

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Tics, twitches, tales: The experiences of Gilles de la Tourette's syndrome.

Cited by 19 publications

References 46 publications

The lived experiences of individuals with Tourette syndrome or tic disorders: A meta‐synthesis of qualitative studies

The lived experiences of individuals with Tourette syndrome or tic disorders: A meta‐synthesis of qualitative studies

Comorbidities, Social Impact, and Quality of Life in Tourette Syndrome

Towards compulsive geographies

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