Time, Dual Roles, and Departments of Public Health: Lessons Learned in CBPR by an AIDS Service Organization

Cole, Christopher; Edelman, E. Jennifer; Boshnack, Nicholas; Jenkins, Heidi; Richardson, Wanda; Rosenthal, Marjorie S.

doi:10.1353/cpr.2013.0034

Cited by 12 publications

(9 citation statements)

References 36 publications

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“…In 2011, we created Project C.O.A.C.H. : Counseling Others about Contacts and Exposures with HIV , a collaboration between academic researchers, an AIDS-service organization (ASO), and the Connecticut State Department of Public Health (CT DPH) ( Cole et al, 2013 , Edelman et al, 2013 , Edelman et al, 2014 ). Our approach was grounded in CBPR principles, whereby members of the community affected by the topic under investigation are directly involved in all stages of the project with the goal of translating the findings into action ( Agency for Healthcare Research and Quality, 2009 , Cashman et al, 2008 , Israel et al, 1998 , Minkler, 2005 ).…”

Section: Methodsmentioning

confidence: 99%

“…These three individuals, who were most directly involved with the data collection and analysis, did not have regular interaction with the study participants. Some of the participating MCMs and clients, however, were employed or received services at the ASO where CC was the ED ( Cole et al, 2013 ). We used the constant comparative method and grounded theory, in which our code structure and subsequent themes were generated iteratively based on participants' quotes ( Curry et al, 2009 ).…”

Section: Methodsmentioning

confidence: 99%

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Stigma, substance use and sexual risk behaviors among HIV-infected men who have sex with men: A qualitative study

Edelman

Cole

Richardson

et al. 2016

Preventive Medicine Reports

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BackgroundPublic health HIV-service providers, including Medical Case Managers (case managers) and Disease Intervention Specialists (DIS) have a key role to play in identifying and addressing clients' complex mental health needs and substance use which contribute to sexual risk behaviors, yet their understanding and its consensus with HIV-infected men who have sex with men (MSM) have not been well characterized.MethodsTogether with an AIDS Service Organization and the Connecticut State Department of Public Health in 2011–2012, we conducted a focus group of case managers (n = 14) and interviewed DIS (n = 7) and HIV-infected MSM (n = 17) in Connecticut. We used the constant comparison method, grounded theory, and a community-based participatory approach to guide analysis.ResultsWe identified three themes characterizing public health HIV-service providers' and MSM's perspectives regarding factors contributing to substance use and sexual risk behaviors in the context of HIV infection: 1) While both MSM and providers described a co-occurrence of HIV, stigma, substance use, and sexual risk behaviors, only MSM identified a causal relationship between these factors; 2) MSM and providers both described varying levels of self-efficacy in readiness to decrease substance use and sexual risk behaviors among MSM; both identified the social network as the key barrier to overcome; 3) Providers described how the co-occurrence of HIV, stigma and sexual risk behaviors leads to multi-faceted client needs for which they lacked sufficient training and collaboration.ConclusionsProvider education, skills-based training, and interventions targeting social networks may decrease sexual risk behaviors among HIV-infected MSM.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Stigma, substance use and sexual risk behaviors among HIV-infected men who have sex with men: A qualitative study

Edelman

Cole

Richardson

et al. 2016

Preventive Medicine Reports

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“…Real barriers exist between researchers and community partners, particularly in communities of color, which have been historically exploited by academic researchers and the medical community. These barriers may accumulate to render relationship development time-intensive work [9,10].…”

Section: Introductionmentioning

confidence: 99%

Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement

Martínez

Carolan

O’Donnell

et al. 2018

J. Clin. Trans. Sci.

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Introduction:This study employed the Delphi method, an exploratory method used for group consensus building, to determine the benefits and challenges associated with community engagement in patient-centered outcomes research.Methods:A series of email surveys were sent to the Patient-Centered Outcomes Research Institute (PCORI)-funded researchers (n = 103) in New England. Consensus was achieved through gathering themes and engaging participants in ranking their level of agreement over three rounds. In round one, participant responses were coded thematically and then tallied. In round two participants were asked to state their level of agreement with each of the themes using a Likert scale. Finally, in round three, the group was asked to rank the round two themes based on potential impact.Results:Results suggested the greatest benefit of community engagement is that it brings multiple perspectives to the table, with 92% ranking it as the first or second most important contribution. Time was ranked as the most significant barrier to engaging community. Strategies to overcome barriers to community engagement include engaging key stakeholders early in the research, being kind and respectful and spending time with stakeholders. The most significant finding was that no researchers reported having specific measures to evaluate community engagement.Conclusion:Community engagement can enhance both research relevance and methodology when researchers are engaged in meaningful collaborations. Advancing the science of community engagement will require the development of evaluation metrics to examine the multiple domains of partnership.

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“…However, conducting CBPR requires building the capacity of both community stakeholders and academic researchers (Crosby et al 2013;Goytia et al 2013;Kwon et al 2012). Though several CBPR engagement and training models have been published (Allen et al 2013;Baquet et al 2013;Cole et al 2013;Crosby et al 2013;Goytia et al 2013;Healey, Reed & Huber 2013;Martin del Campo et al 2013;Rideout et al 2013;Smith, Kaufman & Dearlove 2013;Young-Lorion et al 2013), few have focused on work with Pacific Islander communities (DiStefano et al 2013;Kaholokula et al 2014;Kwan et al 2012Kwan et al , 2014Palmer 2014).…”

Section: Discussionmentioning

confidence: 99%

Development and evaluation of a community-engaged research training program: Building capacity of Marshallese stakeholders and academic researchers to conduct health research

et al. 2019

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Pacific Islanders are a growing, yet understudied population who suffer from high rates of chronic diseases such as obesity and diabetes. Given the historical trauma experienced by Pacific Islanders, community-based participatory research (CBPR) is an appropriate way to conduct research focused on reducing the health disparities observed in this population. This paper presents the process of engaging the Marshallese community to design, conduct, and evaluate a community-engaged research training program. The goal of the program was to build the capacity of both academic researchers and community stakeholders to conduct CBPR for the purpose of addressing health disparities identified and prioritized by the Marshallese community. The program included both didactic training and experiential mentored research components delivered over a period of two years. Eleven Marshallese community stakeholders and eleven academic researchers participated in the program. Results indicated that the program successfully increased participants’ knowledge regarding the CBPR process. Groups of participants have completed exploratory research projects based on the topics identified by the community. The evaluation adds important insights to the current CBPR training literature and can inform future CBPR trainings. Keywordscommunity-based participatory research, community-engaged research, Pacific Islanders, minority health, health disparities, interprofessional training

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Time, Dual Roles, and Departments of Public Health: Lessons Learned in CBPR by an AIDS Service Organization

Cited by 12 publications

References 36 publications

Stigma, substance use and sexual risk behaviors among HIV-infected men who have sex with men: A qualitative study

Stigma, substance use and sexual risk behaviors among HIV-infected men who have sex with men: A qualitative study

Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement

Development and evaluation of a community-engaged research training program: Building capacity of Marshallese stakeholders and academic researchers to conduct health research

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