Time to listen: Chronic disease yarning with Aboriginal and Torres Strait Islander peoples living in remote Australia

Rheault, Haunnah; Coyer, Fiona; Bonner, Ann

doi:10.1016/j.colegn.2020.06.001

Cited by 9 publications

(9 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Previous Australian studies have examined First Nations people's health literacy in dental care (Parker et al, 2012; Soares et al, 2020), men's health (Smith et al, 2020), cancer care (Treloar et al, 2013), chronic disease (de‐identified for review) and primary health care (Lakhan et al, 2017). Four of these studies assessed only functional health literacy (Lakhan et al, 2017; Parker et al, 2012; Soares et al, 2020) while three studies explored First Nations people's health literacy qualitatively (Rheault et al, 2021; Smith et al, 2020; Treloar et al, 2013 (de‐identified for review)), indicating that communication with healthcare providers is problematic. Greater understanding of the multidimensional health literacy capabilities of First Nations people is urgently needed particularly in the context of chronic disease.…”

Section: Introductionmentioning

confidence: 99%

Chronic disease health literacy in First Nations people: A mixed methods study

Rheault

Coyer

Bonner

2021

Journal of Clinical Nursing

Self Cite

View full text Add to dashboard Cite

Aim To explore chronic disease education, self‐management and health literacy abilities from First Nations Australian adults with chronic disease through the integration of qualitative and quantitative findings. Background Chronic disease management requires good health literacy abilities to manage long‐term health needs. First Nations people have a higher burden of chronic disease although little is known regarding chronic disease health literacy of First Nations people. Design A concurrent embedded mixed methods study reported using the Consolidated Criteria for Reporting Qualitative Research guidelines. Methods Data were collected from First Nations people with one or more chronic diseases living in remote Australia between February–November 2017. Quantitative data (n = 200) were collected using the Health Literacy Questionnaire along with demographic and health data. Qualitative data (n = 20) were collected via face‐to‐face interviews to examine chronic disease education and self‐management experiences. Data were analysed separately then integrated to develop meta‐inferences. Results Poor communication from healthcare providers coupled with low health literacy abilities is a major barrier to both active and successful management of chronic disease. Communicating in medical jargon resulted in individuals being placed in a power differential causing lack of trust and relationship breakdowns with healthcare providers affecting active chronic disease self‐management. The perception of inevitability and ambivalence towards chronic disease and the notion of futility towards self‐management were concurred with the low level of active engagement in health care. Conclusions Yarning is an important strategy used by First Nations people for communication. For nurses, understanding and developing skills in yarning will facilitate cultural safety, communication and understanding about chronic disease self‐management in contexts where health literacy abilities are challenged. Relevance to Clinical Practice Using yarning, and plain language visual aids, and teach‐back will readdress the power differential experienced by First Nations people and may also improve understanding of chronic disease self‐management.

show abstract

Section: Introductionmentioning

confidence: 99%

Chronic disease health literacy in First Nations people: A mixed methods study

Rheault

Coyer

Bonner

2021

Journal of Clinical Nursing

Self Cite

View full text Add to dashboard Cite

show abstract

“…34 Five articles 3,8,9,43,44 described older First Nations peoples' experiences with chronic illness and how it had impacted mobility and ability to fulfil familial roles. One study noted that having a chronic disease was normalised and perceived as an 'old person's disease', 43 with participants both experiencing chronic disease and perceiving it among many family and community members. 44 Changes in physical health was discussed in the context of loss of independence, inability to work, isolation and a greater need for family support.…”

Section: Culture and Countrymentioning

confidence: 99%

Experiences and perceptions of ageing among older First Nations Australians: A rapid review

et al. 2021

View full text Add to dashboard Cite

Objective: To identify and describe articles reporting the experiences and perceptions of ageing among older First Nations Australians.Methods: Following rapid review and PRISMA guidelines, we searched five databases for peer-reviewed articles published prior to October 2019 that reported qualitative accounts of ageing among older (≥ 45 years) First Nations Australians.Data were extracted and synthesised thematically. Results: Twenty-one articles were included in the final synthesis. Priorities in ageing highlighted the role of Elders, family, community, culture and connection to ancestral lands. Experiences and perceptions of ageing reflected cultural marginalisation in aged and health care services, and highlighted the importance of cultural identity, resilience and survival as key to ageing well. Conclusions:Our review suggests that mainstream ageing frameworks do not fully reflect the priorities of older First Nations Australians. This has important implications for ageing policy and the design and delivery of culturally safe aged and health care services.

show abstract

“…Some of the social/political factors impacting Aboriginal and Torres Strait Islander health include racism and marginalisation 5 – 7 ; entrenched inter-generational trauma 8 ; discrimination 9 ; inequalities in society 10 ; disconnection from community and country 5 the historic and ongoing effects of colonisation 5 , 6 , 8 which contributes to distrust and subsequent reluctance to access services. 11 In addition, factors specific to the health system include lack of access to health care services 12 ; inadequate access to culturally competent health carers 6 , 13 which contributes to low trust and a reluctance to ask questions or even seek health services 11 creating additional barriers to self-management. These factors and others have led to the normalisation of premature death 8 and the inevitability of disease.…”

Section: Introductionmentioning

confidence: 99%

“…These factors and others have led to the normalisation of premature death 8 and the inevitability of disease. 8 , 12 , 13 …”

Section: Introductionmentioning

confidence: 99%

A new path to address health disparities: How older Aboriginal & Torres Strait Islander women use social media to enhance community health (Protocol)

et al. 2022

View full text Add to dashboard Cite

Background Digital health offers a fresh avenue to address health disparities experienced by Aboriginal and Torres Strait Islanders. Despite the scant evidence about how Aboriginal and Torres Strait Islanders access and use health technology, the Australian government has prioritised research that uses technology to enable people to manage their health and promote better health outcomes. Older Aboriginal and Torres Strait Islander women are cultural leaders in their communities, enabling them to provide valuable insights about the safety and efficacy of health care messaging. However, no research has engaged older Aboriginal and Torres Strait Islander, women as partners in digital health research. Objective This paper provides a protocol for co-designed translational research that privileges older Aboriginal & Torres Strait Islander women’s cultural expertise to design and test a framework for accessible, culturally safe and feasible digital health technologies. Methods This mixed-methods research project will use the collective impact approach, a user-centred, co-design methodology and yarning circles, a recognised Indigenous research methodology. A series of yarning circles with three different communities will elucidate enablers and barriers to access health information; co-create a framework clarifying what works and does not work for digital health promotion in their communities; and test the framework by co-creating three digital health information programs. Conclusions Privileging the cultural expertise of older Aboriginal and Torres Strait Islander women will provide a novel perspective and vital guidance that end users and developers can trust and rely upon to create and evaluate culturally safe and efficacious digital health promotion programs.

show abstract

Time to listen: Chronic disease yarning with Aboriginal and Torres Strait Islander peoples living in remote Australia

Cited by 9 publications

References 13 publications

Chronic disease health literacy in First Nations people: A mixed methods study

Chronic disease health literacy in First Nations people: A mixed methods study

Experiences and perceptions of ageing among older First Nations Australians: A rapid review

A new path to address health disparities: How older Aboriginal & Torres Strait Islander women use social media to enhance community health (Protocol)

Contact Info

Product

Resources

About