Topical corticosteroid phobia in parents of pediatric patients with atopic dermatitis: a multicentre survey

Hachem, Maya El; Gesualdo, Francesco; Ricci, Giampaolo; Diociaiuti, Andrea; Giraldi, Loredana; Ametrano, Orsola; Occella, C.; Fortina, Anna Belloni; Milioto, Mirella; Arcangeli, Fabio; Simonetti, Oriana; Giancristoforo, Simona; Calamelli, Elisabetta; Mazzatenta, Carlo; Neri, Iria

doi:10.1186/s13052-017-0330-7

Cited by 53 publications

(49 citation statements)

References 28 publications

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“…In line with previous research [ 9 , 10 , 19 , 20 ], parents in our study were often worried about adverse effects of TCS. Parents mentioned to be careful with, or reluctant to use “hormones”.…”

Section: Discussionsupporting

confidence: 87%

Optimizing pharmaceutical care for pediatric patients with dermatitis: perspectives of parents and pharmacy staff

et al. 2019

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Background Atopic dermatitis affects 10–20% of the children worldwide. Unfortunately not all patients who receive treatment have optimal treatment outcomes. Objective To assess the view of parents and pharmacy staff in order to optimize pharmaceutical care for young atopic dermatitis patients. Setting Community pharmacies in the Netherlands. Method We first held an expert panel meeting to determine experts’ views on treatment of atopic dermatitis and their suggestions for areas of improvement. This input was used to develop the interview guide. We conducted telephone interviews with parents of children (aged 0–12 years) with atopic dermatitis and face-to-face interviews with pharmacy staff members. All interviews were audiotaped and transcribed verbatim. Transcripts were coded using qualitative data analysis software. Codes were used to identify themes. Main outcome measure Perspectives of parents of young atopic dermatitis patients and pharmacy staff about treatment. Results We interviewed 29 parents and 18 pharmacy staff members. Many parents mentioned fear of steroid adverse effects, with intentional nonadherence as a consequence, and difficulties with the application of topical treatment. Pharmacy employees also mentioned to encounter these issues. Some employees themselves expressed concerns towards use of steroids. Most parents were satisfied with the information they received; however, they need more practical lifestyle advices, e.g. about bathing or clothing. Both pharmacists and pharmacy technicians mentioned that technicians often lack knowledge to support patients optimally in correct medication use. Conclusion Parents’ perceptions about topical corticosteroids might negatively influence treatment outcomes. Pharmacy staff has an important role to inform parents of children with eczema on the appropriate use of topical corticosteroids and emollients. Counseling should not be influenced by their own prejudices about topical corticosteroids. Close collaboration between primary care providers should ensure that parents receive uniform messages. Electronic supplementary material The online version of this article (10.1007/s11096-019-00827-1) contains supplementary material, which is available to authorized users.

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Section: Discussionsupporting

confidence: 87%

Optimizing pharmaceutical care for pediatric patients with dermatitis: perspectives of parents and pharmacy staff

et al. 2019

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“…Observations made among patients (and parents of young patients) very often raise the same problems: •general misunderstanding of the disease •poor management of aggravating factors •misuse of topical products •corticosteroid phobia, which is very common, 15 a source of psychological barriers that are very difficult to overcome •management of stress and scratching •beliefs and myths •low self‐esteem. …”

Section: Tpe and Atopic Dermatitismentioning

confidence: 99%

Therapeutic patient education: the Avène‐Les‐Bains experience

Guerrero¹,

Calmette²

2020

Acad Dermatol Venereol

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Originally developed to improve the management of serious chronic diseases such as diabetes mellitus, obesity, cardiovascular diseases, asthma and as aftercare following oncological treatments, therapeutic patient education (TPE) has been extended to other situations, including chronic dermatoses such as atopic dermatitis, eczema and psoriasis. In this article, we provide a brief overview of the development, implementation and evaluation of TPE at the Avène‐Les‐Bains Hydrotherapy Center, France.

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“…Topical corticosteroid phobia is especially affecting parents of pediatric patients with atopic dermatitis [27]. Establishing the trust-based doctor-patient/parents relationship can help overcome parents' fears about therapy [28,30]. This fear is commonly caused by misinformation or misadvice given by friends, relatives, other parents and the media.…”

Section: Fear Of Adverse Drug Effects and Steroid Phobiamentioning

confidence: 99%

Management of Atopic Dermatitis in Children: A Pediatrician State of the Art

Vujnović¹,

Domuz²

2018

Corticosteroids

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Atopic dermatitis (AD) is one of the most common skin conditions in children and adolescents. This disease is characterized by acute and chronic lesions. Acute lesions can occur at any age and have a recurring character. Localization of acute lesions is a characteristic for a certain age of the child. Chronic lesions are present after the second year of life and characterized by pruritus and lichenification. Ichthyosis and xerosis are also characteristics of chronic lesions. The authors represent two hypotheses about pathophysiology of atopic dermatitis: "inside-out" hypothesis suggests that pathophysiological process is the result of an inflammatory response, while the "outside-inside" hypothesis suggests that changes of the epidermal barrier are responsible for the process in lesions in atopic dermatitis. There is no gold standard, clinical or laboratory, for the diagnosis of atopic dermatitis. The diagnosis should be based on anamnesis, clinical features and laboratory results. The therapeutic approach includes general and specific measures. General measures including topical moisturizers, bathing and bathing practices and wet-wrap therapy. Specific measures include topical corticosteroids and topical calcineurin inhibitors. Systemic immunosuppressant agents and phototherapy are a second-line treatment and used when the atopic dermatitis is not controlled. These patients must be treated by a dermatologist or pediatricians.

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Topical corticosteroid phobia in parents of pediatric patients with atopic dermatitis: a multicentre survey

Cited by 53 publications

References 28 publications

Optimizing pharmaceutical care for pediatric patients with dermatitis: perspectives of parents and pharmacy staff

Optimizing pharmaceutical care for pediatric patients with dermatitis: perspectives of parents and pharmacy staff

Therapeutic patient education: the Avène‐Les‐Bains experience

Management of Atopic Dermatitis in Children: A Pediatrician State of the Art

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