Tourette’s syndrome: challenging misconceptions and improving understanding

Freeman-Ferguson, Mark

doi:10.7748/ncyp.2022.e1416

Cited by 3 publications

(2 citation statements)

References 13 publications

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“…Given that participants reported difficulties with self-stigma; compassion-focused therapy (CFT) approaches which encourage self-acceptance and the development of self-worth may be helpful. It has been suggested that responding to individuals affected by TS with compassion can support them to view their condition more positively and encourage self-acceptance (Freeman-Ferguson, 2022 ). CFT approaches may also reduce the impact of external scrutiny; potentially alleviating co-occurring anxiety and depression.…”

Section: Discussionmentioning

confidence: 99%

Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette’s Syndrome

Coleman

Melia

2023

J Dev Phys Disabil

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Women with Tourette’s syndrome (TS) continue to be under-researched, despite female sex being associated with increased tic-related impairment in adulthood. Existing literature indicates that individuals with TS are more likely than the general population to report self-stigma, but little is known about the subjective identities of women with TS and how this relates to psychological wellbeing. Semi-structured interviews were conducted via Zoom with a purposive sample of 11 females. All were diagnosed with TS and aged 18–28. Data was transcribed verbatim and thematic analysis applied. Five themes were established: “I’m not normal”, “I just want to be me”, I’m a “people pleaser”, seeing oneself as an “outsider”, and “it's just part of me…it's not going anywhere”. Difficulties with self-acceptance and the autonomy to be one’s true self were noted and appeared to be intensified by stereotypical gender roles and attempts to conceal tics. Findings also suggested that personal growth and feelings of mastery can be achieved through embracing TS as part of one’s identity, or recognising it as just one aspect of the self. Psychological support focused on accepting and living with tics rather than reducing them may benefit this population and is currently difficult to access. Consideration should also be given to improving the availability of support groups where women with TS can meet others like themselves. Supplementary Information The online version contains supplementary material available at 10.1007/s10882-023-09911-x.

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Section: Discussionmentioning

confidence: 99%

Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette’s Syndrome

Coleman

Melia

2023

J Dev Phys Disabil

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“…Family history of neuropsychiatric disorders is hardly believed to be negative as several association studies have already established the crucial relationship of parental psychopathology in patients with epilepsy, autistic spectrum disorder, attention deficit hyperkinetic disorder, and tics. [96][97][98][99][100][101][102][103][104][105][106]…”

Section: Pitfalls In Perceptionmentioning

confidence: 99%

Psychosocial Basis of Human Sufferings and Poverty in Patients with Neurological and Psychiatric Disorders

Dubey,

Ghosh,

Dubey

et al. 2023

MRAJ

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Neurological disorders and psychiatric ailments often lead to cognitive disabilities and low attainment of education, pivoting misconceptions, myths, and misbeliefs. Poverty and low educational attainment are intriguingly associated with poor awareness and perception of these diseases that add to the suffering. Poverty goes parallel with a low level of education and is intricately associated with neuropsychiatric ailments, which have the potential to spread transgenerationally. Robust education policies, proper government rules and regulations against the spread of disease-related myths and misconceptions, uplifting medical education in its true sense, voices against consanguinity, and programs to raise scientific perception about diseases can help to throw light at the end of this dark tunnel. In this article, the authors intend to 1) decipher the potential psychosocial basis of human suffering and poverty in patients with neurological and psychiatric disorders, and 2) discuss the apropos way-outs that would potentially mitigate suffering, and alleviate the economic burden and cognitive disabilities of families with neuropsychiatric diseases.

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An update on the pharmacological management of Tourette syndrome and emerging treatment paradigms

Lenka,

Jankovic

2024

Expert Review of Neurotherapeutics

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Tourette’s syndrome: challenging misconceptions and improving understanding

Cited by 3 publications

References 13 publications

Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette’s Syndrome

Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette’s Syndrome

Psychosocial Basis of Human Sufferings and Poverty in Patients with Neurological and Psychiatric Disorders

An update on the pharmacological management of Tourette syndrome and emerging treatment paradigms

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