Toward a model of quality of life for family caregivers of stroke survivors

White, Carole L.; Lauzon, Sylvie; Yaffe⃰, Mark J.; Wood-Dauphinée, Sharon

doi:10.1023/b:qure.0000021312.37592.4f

Cited by 67 publications

(64 citation statements)

References 44 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In addition, burden and low education were independent predictors of poor HRQoL in caregivers. Negative association between caregiver burden and HRQoL has also been established in western countries [32]. …”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Burden and Perceived Health Status Among Caregivers of Stroke Patients

Carod-Artal¹,

Coral²,

Trizotto³

et al. 2009

Cerebrovasc Dis

View full text Add to dashboard Cite

Objective: To identify the main determinants of burden and perceived health status in caregivers of Brazilian stroke survivors. Methods: Cross-sectional study. Caregivers answered the Hospital Anxiety and Depression Scale (HADS), Zarit caregiver burden interview (ZCBI) and EuroQol. Patients were assessed with the National Institute of Health Stroke Scale, Barthel index (BI), modified-Rankin scale (m-RS), Mini Mental State Examination and HADS. Results: 200 caregiver-patient dyads were assessed. Caregivers were significantly younger (42 vs. 57.7 years) and had more years of formal education (10 vs. 7.8 years); p < 0.0001. Seventy-seven percent of caregivers were females, and 41% were spouses. The prevalence of anxiety disorders was significantly higher in female caregivers than in males (26.1 vs. 10.9%; p = 0.04). ZCBI mean score was 27.2, and female caregivers had significantly worse scores (28.7 vs. 22.3, p = 0.003). ZCBI mean score significantly increased (worsened) as the severity of the disease, based on m-RS, increased. ZCBI mean scores were significantly higher in wives than in other relatives (31.4 vs. 22.6; ANOVA, p < 0.0001). The EuroQol-5D and EuroQol-Visual Analog Scale mean scores were 0.7 (range: 0.04–0.85) and 75.2 (range: 1–100), respectively. Adequate convergent validity (r = –0.38 to –0.40) between EuroQol and ZBCI mean scores was observed. Patient´s disability (as measured by the BI) and caregiver’s factors (female sex, depression as measured by HADS-depression) were independent predictors of caregiver’s burden (r² adjusted = 0.48; p < 0.0001) in the multivariate regression analysis. Conclusions: Caregiver’s mood was the most consistent factor influencing caregiver burden and perceived health in stroke caregivers.

show abstract

Section: Discussionmentioning

confidence: 99%

“…Some follow-up studies showed that caregiver’s depression and lack of family support may be additional determinants of caregiver burden [37]. The HRQoL, particularly mental health, of primary caregivers appears to decrease over time [32]. …”

Section: Discussionmentioning

confidence: 99%

Burden and Perceived Health Status Among Caregivers of Stroke Patients

Carod-Artal¹,

Coral²,

Trizotto³

et al. 2009

Cerebrovasc Dis

View full text Add to dashboard Cite

show abstract

“…Although quality of life has been an important key concept in research and clinical services, there is still no agreement on what quality of life is and how it should be measured. [64][65][66] Discussion in the literature about (social) participation might mirror the whole conceptual development of the perceived quality of life concept.…”

Section: Implications For Rehabilitationmentioning

confidence: 99%

Participation and social participation: are they distinct concepts?

et al. 2013

View full text Add to dashboard Cite

Introduction: The concept of participation has been extensively used in health and social care literature since the World Health Organization introduced its description in the International Classification of Functioning, Disability and Health (ICF) in 2001. More recently, the concept of social participation is frequently used in research articles and policy reports. However, in the ICF, no specific definition exists for social participation, and an explanation of differences between the concepts is not available. Aim: The central question in this discussion article is whether participation, as defined by the ICF, and social participation are distinct concepts. This article illustrates the concepts of participation and social participation, presents a critical discussion of their definitions, followed by implications for rehabilitation and possible future directions. Discussion: A clear definition for participation or social participation does not yet exist. Definitions for social participation differ from each other and are not sufficiently distinct from the ICF definition of participation. Although the ICF is regarded an important conceptual framework, it is criticised for not being comprehensive. The relevance of societal involvement of clients is evident for rehabilitation, but the current ICF definition of participation does not sufficiently capture societal involvement. Conclusion: Changing the ICF’s definition of participation towards social roles would overcome a number of its shortcomings. Societal involvement would then be understood in the light of social roles. Consequently, there would be no need to make a distinction between social participation and participation.

show abstract

“…Reviewing the existing literature on stroke caregivers, the authors criticize the scarcity of studies focusing upon physical aspects of health and QoL (quality of life) as well as the lack of longitudinal designs [5, 24, 25]. We know little about how much stroke affects these variables in close relatives.…”

Section: Introductionmentioning

confidence: 99%

A Longitudinal Study of Health-Related Quality of Life of First Stroke Survivors’ Close Relatives

et al. 2006

View full text Add to dashboard Cite

Background and Purpose:Mental and social burdens of stroke patients’ relatives have been investigated repeatedly, but there is little information about their quality of life (QoL). The purpose of the study was to describe the health-related QoL of stroke patients’ relatives at 3 points in time after the stroke. Method: Sixty-four closest relatives of patients suffering from a disabling stroke were questioned at admission to inpatient rehabilitation as well as 6 months and 1 year after discharge with the SF36 (short form 36-item questionnaire) and about probable covariates. Results: During inpatient rehabilitation relatives’ perception of their physical role as well as of all mental health scales was significantly lower than the normative data. We found improvements in all scales except physical functioning between inpatient rehabilitation and 6 months after discharge. Deteriorations between 6 months and 1 year occurred in physical functioning, role physical, social functioning, role emotional and mental health. Conclusions: Changes in perceived health-related QoL indicate that relatives go through different stages while coping with the chronic illness of their family member during rehabilitation and in the first year after discharge. These findings may aid support and counseling.

show abstract

Toward a model of quality of life for family caregivers of stroke survivors

Cited by 67 publications

References 44 publications

Burden and Perceived Health Status Among Caregivers of Stroke Patients

Burden and Perceived Health Status Among Caregivers of Stroke Patients

Participation and social participation: are they distinct concepts?

A Longitudinal Study of Health-Related Quality of Life of First Stroke Survivors’ Close Relatives

Contact Info

Product

Resources

About