Toward assessing family outcomes of service delivery: validation of a family quality of life survey

Park, Jiyeon; Hoffman, Lesa; Marquis, Janet; Turnbull, Ann P.; Poston, Denise J.; Mannan, Hasheem; Wang, M.; Nelson, Laura L.

doi:10.1046/j.1365-2788.2003.00497.x

Cited by 237 publications

(193 citation statements)

References 45 publications

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“…For the family QL (FQL), the main idea depends on the fact if the special needs of each member are being fulfilled, as they spend time together and dedicate themselves to each other. There are also the influences of interaction between the aspects that represent family life areas, such as family interaction, care of parents with their children, emotional well-being, resources, and support (7)(8)(9) . The FQL becomes extremely important, especially when the services perform early intervention and the need to work directly with the family (10) , such as at the moment of deafness diagnosis, because guidance and reception are the tools for family support.…”

Section: Introductionmentioning

confidence: 99%

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Jorge¹,

Levy²,

Granato³

2015

CoDAS

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Purpose: To culturally adapt the Family Quality of Life Scale to the Brazilian Portuguese version and evaluate the instrument reliability and family quality of life of those who have children with hearing loss. Methods:The process of cultural adaptation of the scale followed the steps of the Guidelines for the Process of Cross-Cultural Adaptation of Self-Report Measure. It was conducted in three stages: translation, back translation, and application in a pilot sample, as a way to check the comprehension difficulties of the items. After it had been completed, it was administered to 41 families who have children with hearing loss and, with their results, the quality of life and reliability were analyzed based on the Cronbach's alpha statistical test. Results:In the first version (translation), among the 25 items, there were differences between the translators only in four items; after the corrections, the second version was done (back translation), in which other four more differences were found. Finally, after the final corrections, the last version was developed and used in the pilot sample without differences. Thus, it was applied to families with deaf children, who believe to be satisfied as to their quality of life. The Cronbach's alpha test found that the scale shows a satisfactory reliability. Self-Report Measure. Realizada em três momentos: tradução, retrotradução e aplicação na amostra piloto como forma de verificar dificuldades de compreensão dos itens. Quando finalizada foi aplicada em 41 famílias que possuem filhos com deficiência auditiva e, com os seus resultados, foram analisadas a qualidade de vida (QV) e a confiabilidade, a partir do teste estatístico alfa de Cronbach (α). Resultados: Na primeira versão (tradução), dentre os 25 itens presentes, apenas em 4 houve divergências entre as tradutoras; após as correções, houve a segunda versão (retrotradução), em que foram identificadas mais 4 divergências. Por fim, após as correções finais, a última versão foi elaborada e usada na amostra piloto sem divergências, e, dessa forma, foi aplicada nas famílias de filhos surdos, as quais se consideraram satisfeitas em relação à QV. Com o teste alfa de Cronbach (α) foi verificado que a escala tem confiabilidade satisfatória. Conclusão: A versão em PB da FQOLS é um instrumento de fácil aplicação e com confiabilidade satisfatória. As famílias estão satisfeitas com sua QVF. Conclusion

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Section: Introductionmentioning

confidence: 99%

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Jorge¹,

Levy²,

Granato³

2015

CoDAS

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“…A. McCubbin & H. I., McCubbin, 1991;Mellon & Northouse, 2001;Patterson, 2002). Lastly, Family Functioning consists of family members' roles and responsibilities (e.g., family care, daily activities, getting help) as well as their satisfaction with how well the family meets individual and family unit needs (Bigner, 1998;Ingoldsby et al, 2004;Park et al, 2003;Rettig & Leichtentritt, 1999).…”

Section: Family Quality Of Lifementioning

confidence: 99%

Preparing for and Coping with Breast Cancer-Related Lymphedema

Radina¹,

Fu²

2012

Novel Strategies in Lymphedema

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Lymphedema is a swelling caused by the abnormal accumulation of lymphatic fluid in the skin. Lymphedema can be caused by burns, injury, surgery, radiation therapy or cancer treatment that cancer survivors undergo. Risk of developing lymphedema is high especially in those with breast or prostate cancer. It is hereditary and can appear without warning at any time of life and is related to obesity and circulatory problems. If not treated, lymphedema can be painful and lead to life-threatening infections. This book will help physicians who deal with lymphedema. It will help you understand how the lymphatic system works, how lymphedema is diagnosed, how to cope with the challenges of lymphedema, how to find treatment, and how to deal with insurance issues.Novel Strategies in Lymphedema is for those with, or at risk of, developing lymphedema, and the healthcare professionals who care for them.

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“…Research and development activities led to the development of models and assessments of QoL of persons with developmental or intellectual disabilities in the early 1990s [1]- [4]. More recently, this construct has been extended to the lives of families that include persons with disabilities and has become the focus of assessment devices developed for this purpose [5]- [7].…”

Section: Introductionmentioning

confidence: 99%

The Quality of Life of Adults with Developmental Disabilities and Their Families in Calgary Canada: A Pilot Study

Clark¹,

R²,

Smith³

et al. 2013

IJSSH

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Abstract-This pilot study investigated the level of satisfaction in a number of life domains in addition to the overall life satisfaction experienced by group of individuals with developmental disabilities in Calgary. This study also examined the quality of life of their families who are often impacted the continuing responsibilities, concerns and anxieties related to their adult child with developmental disabilities. The average ratings from the family and individual responses across the various life domains were computed. The inter-relationships between the dimensions of family quality of life across the various life domains included in the quality of life assessment were also calculated. Understanding these associations may be helpful in identifying supports and policies that enhance individual and/or family quality of life. Finally, the connections between individual and family quality of life were identified to highlight any areas where changes in supports or services to either families or their adult children with intellectual disabilities would support the wellbeing of all family members.

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Toward assessing family outcomes of service delivery: validation of a family quality of life survey

Abstract: The implications for future research and practice are discussed.

Cited by 237 publications

References 45 publications

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Preparing for and Coping with Breast Cancer-Related Lymphedema

The Quality of Life of Adults with Developmental Disabilities and Their Families in Calgary Canada: A Pilot Study

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