Towards a Developmental Framework of Consumer and Carer Participation in Child and Adolescent Mental Health Services

MacDonald, Elspeth; Lee, Erica; Geraghty, Kerry; McCann, Karen; Mohay, Heather; O’Brien, Thomas C.

doi:10.1080/10398560701458228

Cited by 11 publications

(8 citation statements)

References 11 publications

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“…The recent interest in promoting child-centered psychiatric care whereby children's and families' needs as consumers shape priorities, practices and policies [26,35,[42][43][44] necessitates better understanding of the most salient subjective features that both help and harm adolescents, during a time of significant vulnerability. This is particularly true for inpatient psychiatric treatment settings where, historically, practices and policies reflect a more traditional 'top-down' model of care, not closely shaped by consumer input.…”

Section: Resultsmentioning

confidence: 99%

Adolescents’ Perspectives About Brief Psychiatric Hospitalization: What is Helpful and What is Not?

Moses

2010

Psychiatr Q

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Significant numbers of adolescents receive inpatient psychiatric services, yet we know little about their experiences: what about hospitalization is perceived as helpful and what is counter-productive or even harmful? In this study, eighty adolescents hospitalized for the first time in a psychiatric program were interviewed within a week of discharge (using a semi-structured interview format), and asked to describe what did and did not help them. Multiple themes emerged relating to helpful experiences and these were grouped in three categories: interpersonal support, therapy and psycho-education, and environment; Unhelpful/harmful experiences were classified in four categories: rigidity and confinement, lack of treatment responsiveness, frightening/anxiety-provoking experiences, and other. Participants provided rich feedback that both reinforces existing practices and offers ways for programs to change practices to better meet adolescents' developmental needs. Some factors noted as key therapeutic ingredients, especially the helpful role of peers, have not previously been included in hospital satisfaction surveys.

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Section: Resultsmentioning

confidence: 99%

Adolescents’ Perspectives About Brief Psychiatric Hospitalization: What is Helpful and What is Not?

Moses

2010

Psychiatr Q

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“…Severity of child behavior problems and resulting caregiver strain may impact PPE due to competing demands and depleted resources. Although the one study that examined child age did not find significant effects, participation researchers have suggested the importance of attending to child developmental level, in particular how the parent’s role in treatment can change across infancy through early adulthood (Macdonald et al, 2007). …”

Section: Discussionmentioning

confidence: 99%

A Review of Parent Participation Engagement in Child and Family Mental Health Treatment

Haine‐Schlagel

Walsh

2015

Clin Child Fam Psychol Rev

266

214

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Engagement in child and family mental health treatment has critically important clinical, implementation, and policy implications for efforts to improve the quality and effectiveness of care. This article describes a review of the existing literature on one understudied element of engagement, parent participation. Twenty-three published articles were identified. Questions asked of the literature include what terms are used to represent parent participation engagement, how parent participation engagement is measured, what are the rates of parent participation engagement reported in studies of child and family mental health treatment, whether parent participation engagement has been found to overlap with attendance engagement, what factors have been identified as associated with parent participation engagement, whether parent participation engagement is associated with improved outcomes, and what strategies have been designed to improve PPE and whether such strategies are associated with improved outcomes. Results indicate varied terms and measures of parent participation engagement, moderate overall rates, and high overlap with measures of attendance engagement. The extant literature on factors associated with parent participation engagement was somewhat limited and focused primarily on parent/family-level factors. Evidence of links between parent participation engagement and outcome improvements was found across some outcome domains, and strategies designed to target parent participation engagement were found to be effective overall. A framework for organizing efforts to examine the different elements of engagement is described, and findings are discussed in terms of suggestions for consistent terminology, clinical implications, and areas for future research.

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“…Family‐inclusive practice improves individual, community, and financial outcomes, and healthy family systems are important for individual and community well‐being (Macdonald et al . ; Nicholson et al . ; Oei et al .…”

Section: Introductionmentioning

confidence: 99%

“…Holistic person-centred, recovery-focused treatment in partnership with family and whānau (Māori family group) is acknowledged as best practice in New Zealand (NZ) as elsewhere (Foster 2009(Foster , 2011Ministry of Health, 2006;Ministry of Health and Ministry of Pacific Affairs 2010). Family-inclusive practice improves individual, community, and financial outcomes, and healthy family systems are important for individual and community well-being (Macdonald et al 2007;Nicholson et al 2007;Oei et al 2009;Watkins 2007;Wolff & Roter 2011).…”

Section: Introductionmentioning

confidence: 99%

Qualitative exploration of family perspectives of smoke‐free mental health and addiction services

Missen¹,

Brannelly

Newton‐Howes

2012

Int J Mental Health Nurs

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The significant health disparities experienced by people with mental illness indicate the need for mental health service improvement. This qualitative study explored family and whānau (Māori family group) perspectives of smoke-free mental health services. Thematic analysis found that family and whānau identified a number of barriers to the implementation of successful smoke-free policy, including lack of coordination and consistency, and limited, if any, family and whānau inclusion. Family and whānau discussed smoking as a strategy for coping with anxiety and boredom; therefore, the need for other activities and strategies to replace smoking was identified as necessary in effective service delivery. The attitude that mental health service policy should be different from general health policy, due to the experience of mental distress, was also identified. In this paper, we argue that the development and implementation of quality mental health services would be strengthened by involving family and whānau in smoke-free initiatives. Furthermore, the provision of relevant information to family, whānau, and service users would help dispel myths and stigma associated with tobacco and mental health.

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Towards a Developmental Framework of Consumer and Carer Participation in Child and Adolescent Mental Health Services

Cited by 11 publications

References 11 publications

Adolescents’ Perspectives About Brief Psychiatric Hospitalization: What is Helpful and What is Not?

Adolescents’ Perspectives About Brief Psychiatric Hospitalization: What is Helpful and What is Not?

A Review of Parent Participation Engagement in Child and Family Mental Health Treatment

Qualitative exploration of family perspectives of smoke‐free mental health and addiction services

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