Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale

Hocaoglu, Mevhibe; Hepgul, Nilay; Tunnard, India; Meltem, Emine; Efe, Hande; Ataoglu, Buse; Baybar, Yeliz Lerzan; Kınacıgil, Merve; Elsharairi, Husam; Higginson, Irene J

doi:10.1186/s12955-020-01535-5

Cited by 13 publications

(12 citation statements)

References 29 publications

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“…The IPOS has been translated into Japanese, and its validity and reliability were previously evaluated 17 . The IPOS assesses the symptoms using a 5‐point Likert scale (0–4 points) with a 17‐item questionnaire comprising three subscales: physical symptoms (10 items; pain, shortness of breath, weakness, nausea, vomiting, poor appetite, constipation, dry mouth, drowsiness and poor mobility), emotional symptoms (4 items; patient anxiety, family anxiety, depression and feeling at peace) and communication and practical issues (3 items; sharing feelings, enough information and practical issues) 18,19 . The physical symptoms are graded according to the severity.…”

Section: Methodsmentioning

confidence: 99%

Comprehensive symptom assessment using Integrated Palliative care Outcome Scale in hospitalized heart failure patients

et al. 2022

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Aims Patients with heart failure (HF) may have variable unrecognized symptom burdens. We sought to investigate the details, determinants, and prognostic significance of symptom burden in hospitalized patients with HF. Methods and resultsWe prospectively evaluated consecutive hospitalized patients with HF as primary diagnosis at our institution using the Integrated Palliative care Outcome Scale (IPOS) both on admission and at discharge. The IPOS, which is a well-validated multi-dimensional symptom assessment scale among advanced illness, consists of 17 questions for enquiring about physical symptoms (10 items), emotional symptoms (4 items) and communication and practical issues (3 items) using a 5-point Likert scale (0 [best]-4 [worst] points). Clinically relevant symptoms were defined as ≥2 points for each IPOS item. Worsening symptom burden was defined as the total IPOS score at discharge being poorer than that on admission. Of 294 patients (mean age: 77.5 ± 12.0 years, male: 168 patients, New York Heart Association class IV: 96 patients, mean left ventricular ejection fraction [LVEF]: 44%, and median N-terminal pro B-type natriuretic peptide [NT-proBNP] level: 4418 ng/L), the median (IQR) total IPOS score on admission was 19 (12, 27) and they were widely distributed (minimum: 0maximum: 52). The total IPOS score on admission was not correlated with the HF severity, including LVEF (Spearman's ρ = À0.05, P = 0.43), NT-proBNP levels (Spearman's ρ = 0.08, P = 0.20) or in-hospital mortality prediction model (GWTG-HF risk score) (Spearman's ρ = 0.01, P = 0.90). Total IPOS scores significantly decreased during hospitalization as a whole (median [IQR]: 13 [6, 21] at discharge; P < 0.001 vs. those on admission). All of the four emotional symptoms (patient anxiety, depression, family anxiety and feeling at peace) remained in the top 5 of clinically relevant symptoms at discharge, whereas none of 10 physical symptoms were nominated. Worsening symptom burden was noted in 28% of the patients during hospitalization, and was independently associated with higher all-cause mortality after discharge (hazard ratio: 2.28, 95% confidence interval: 1.02-5.09; P = 0.044) even after adjustment by age and HF mortality prediction model (MAGGIC risk score). Conclusions We revealed that hospitalized patients with HF had multi-dimensional symptom burdens which varied among individuals and were not correlated with the disease severity. Emotional symptoms, such as anxiety and depression, were the main clinically relevant symptoms at discharge. A worsening IPOS score was noted in a quarter of patients with HF and was associated with a poor prognosis, suggesting the importance of holistic symptom assessment during the course of hospitalization for HF.

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Section: Methodsmentioning

confidence: 99%

Comprehensive symptom assessment using Integrated Palliative care Outcome Scale in hospitalized heart failure patients

et al. 2022

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“…With the growing attention on patient-centered care, 21 , 22 measurements of the relationship between different dimensions of quality perceptions and the choice of provider help to identify what aspects matter most to patients, 9 , 23–26 and are accordingly, informative in delivering patient-centered health care service by taking targeted measures to make health service responsive to the patient demands. Previous studies have helped identify the important drivers of positive perception of service experiences, such as patient-doctor communication, 24 , 25 waiting time, 23 environment 26 and physician ability.…”

Section: Introductionmentioning

confidence: 99%

Quality Perceptions and Choice of Public Health Facilities: A Mediation Effect Analysis of Outpatient Experience in Rural China

Yin¹,

Hu²,

Chen³

2022

PPA

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Purpose Outpatients have choices of providers in the hierarchical health service delivery system of China. Understanding how quality perceptions and outpatient experience affect the choice of health facility would help inform decisions about priorities for action aimed at guiding the use of primary care. This study examines how quality perceptions of outpatient service affect the facility level choice in rural China. Methods Household surveys were conducted in 2011, 2012 and 2015 in Ningxia Hui Autonomous Region, China. We selected 968 respondents as the study sample, who had at least two outpatient visits to the public health facilities during each survey period. Prior quality perceptions of the outpatient service at the village clinics, township centers, and county hospitals were reported on an 8-item Quality Indicator questionnaire. Experienced quality perception from the first outpatient visit was also reported. The outcome of interest was outpatients’ facility level choices. We used regression and mediation analysis to explore whether and how outpatient experience at a specific health facility would mediate the relationship between prior quality perceptions and the facility level choice. Results Overall, the quality perception was positively and significantly associated with outpatients’ staying at the same or lower levels of care ( β =0.265, P =0.007). This effect was fully mediated by experienced quality perception (z=2.985, P =0.003). The indirect effect was significant for three particular dimensions, including quality perceptions of the environment ( β =0.075, P =0.025), doctor-patient communication ( β =0.065, P =0.022), and physician ability ( β =0.062, P =0.021). Conclusion Outpatient quality perceptions—especially positive perceptions regarding environment, doctor-patient communication, and physician ability—could contribute to minimizing upward referral via improvement in outpatient experience. Policymakers and health care providers may need to therefore optimize outpatient experience as they push to develop a more locally responsive primary care system.

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“…Based on POS and POS-S (a symptom module), The Integrated Palliative care Outcome Scale (IPOS) was developed [ 6 ]. IPOS has been translated into several languages, including Chinese [ 7 ], Italian [ 8 ], Estonian [ 9 ], French [ 10 ], Czech [ 11 ], Turkish [ 12 ], Portuguese [ 13 ] and Japanese [ 14 ]. A Swedish version of IPOS has been developed by Beck et al [ 15 ] and has now been partly implemented in specialised palliative care in Sweden.…”

Section: Introductionmentioning

confidence: 99%

Translation and cultural adaptation of the Integrated Palliative care Outcome Scale for Dementia (IPOS-Dem) to Swedish

Martinsson

Sahlén

2022

BMC Nurs

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Introduction Systematic assessment tools are helpful for improving and maintaining quality of care. The Integrated Palliative care Outcome Scale (IPOS) was developed for systematic assessment of persons receiving palliative care in a patient-centred way. A version of this tool, the Integrated Palliative care Outcome Scale for Dementia (IPOS-Dem), has been developed for patients with dementia. The aim of this study was to develop a version of the IPOS-Dem translated into Swedish and culturally adapted to a Swedish care setting. Methods Forward and backward translations from English into Swedish were performed to develop a first Swedish version. This version was modified for clarity and cultural adaptation based on 13 interviews with nurses and assistant nurses working in geriatrics and dementia care homes. Results The interview process revealed several issues with the first version that emerged from the translation process. This was changed and further tested to work well, resulting in the final version of the Swedish IPOS-Dem. The tool was perceived as clinically useful but somewhat overlapping with already implemented tools for assessing behavioural and psychological symptoms in dementia. Conclusion The Swedish version of the IPOS-Dem can now be used as a tool for assessing palliative care related problems and concerns for persons with advanced dementia. Future studies can focus on implementation as well as examining validity and reliability of this tool in a Swedish context.

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Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale

Cited by 13 publications

References 29 publications

Comprehensive symptom assessment using Integrated Palliative care Outcome Scale in hospitalized heart failure patients

Comprehensive symptom assessment using Integrated Palliative care Outcome Scale in hospitalized heart failure patients

Quality Perceptions and Choice of Public Health Facilities: A Mediation Effect Analysis of Outpatient Experience in Rural China

Translation and cultural adaptation of the Integrated Palliative care Outcome Scale for Dementia (IPOS-Dem) to Swedish

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