Towards reducing inequalities: European Standards of Care for Children with Cancer

Kowalczyk, Jerzy; Samardakiewicz, Marzena; Fitzgerald, E. J.; Essiaf, Samira; Ladenstein, Ruth; Vassal, Gilles; Kienesberger, Anita; Pritchard‐Jones, Kathy

doi:10.1016/j.ejca.2013.11.004

Cited by 46 publications

(46 citation statements)

References 8 publications

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“…may hamper access to best cancer diagnosis and treatment for this group of patients. Different international consensuses emphasize the importance of specialized care and clearly state that ''all care for children and young people under 19 years old must be provided in age-appropriate facilities'', ''must have access to tumor-specific or treatment-specific clinical expertise'', ''be offered entry to any clinical research trial for which they are eligible'' and ''treated according to the best available treatment protocol'' [20,21]. In order to achieve these aims, centralization of care of adolescents with cancer, as already successfully achieved for children, will surely improve their care and outcome.…”

Section: Discussionmentioning

confidence: 99%

Cancer in children and adolescents in Spain: incidence, treatment setting and provider specialty

et al. 2015

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This is the first population-based epidemiological study carried out in Spain on children and adolescents with cancer. Centralization of care to a small number of specialized centers and thorough pediatric and oncology team collaboration are needed to improve care and survival for adolescents with cancer in our country. We suggest the creation of specific adolescent tumor boards in main tertiary care hospitals, in which adolescents with cancer can benefit from the shared expertise of medical and pediatric specialists.

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Section: Discussionmentioning

confidence: 99%

Cancer in children and adolescents in Spain: incidence, treatment setting and provider specialty

et al. 2015

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“…Más importante aún, existe una necesidad urgente de continuar apoyando estas estructuras y recursos emergentes creados con el apoyo de MCM (5,6) Pretendemos solidificar el modelo actual de la red nacional de cáncer pediátrico, desarrollado por el proyecto MCM. A través de este esfuerzo, pretendemos mejorar exitosamente el acceso temprano al diagnóstico y cuidado, y la culminación exitosa del tratamiento, guiados por las mejores prácticas y guías basadas en evidencia y protocolos de atención, y para abolir las desigualdades en el nivel de atención entre estos centros (7,8) Se sabe poco sobre la epidemiología y la carga de los tumores sólidos infantiles en la mayoría de los países latinoamericanos, incluido el Paraguay. Los datos disponibles muestran diferencias en toda la región.…”

Section: Introduccionunclassified

Model of Cancer Care for Children and Adolescents

Samudio¹,

Figueredo²,

Ayala³

et al. 2016

An. Fac. Cienc. Méd. (Asunción)

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RESUMENLa atención integral de niños y adolescentes con cáncer es uno de los grandes desafíos para el sistema de salud pública de nuestros países donde el cáncer infantil representa un problema de salud pública y un problema social. El cáncer pediátrico en Paraguay, un país de escasos recursos, es un problema social y de salud pública por las consecuencias que se infringen a los pacientes, sus familias, las comunidades y los sistemas de salud. Un modelo descentralizado con clínicas más cercanas y dedicadas a cuidados primarios y referencias de niños con diagnóstico potencial de cáncer mejoraron el acceso a cuidados especializados y seguimiento del cáncer. Estas clínicas, implementadas dentro de los hospitales regionales de los sistemas nacionales de salud, ofrecen soluciones sostenibles y efectivas para un mejor acceso y seguimiento del cuidado de los niños con cáncer. El análisis de los desafíos, el éxito y la rentabilidad de estas clínicas regionales de cáncer pediátrico para referencias y seguimiento, permite sugerir un modelo óptimo para tales clínicas en entornos de bajos ingresos. Este modelo podría ser replicado para el cuidado de otras enfermedades y en otros grupos de edad. Presentamos aquí el resultado de la evaluación de los resultados de los pacientes de las cuatro clínicas regionales desde su implementación inicial.Palabras Clave: cáncer, atención integral, My Child Matters.

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“… To accelerate the translation of results from research to clinical care and allow patients to benefit from new knowledge in a timely fashion. 4. Share the clinical-biological data generated by the introduction of technologies that analyse the biology of specific tumours (such as high-throughput sequencing and other tumour profiling technologies) between clinicians and researchers.…”

Section: Strategymentioning

confidence: 99%

“…Across Europe, there is a 10 to 20% difference in 5 year survival, between countries with population-based cancer registration -the differences may be much greater where no such outcome data currently exist. SIOPE led the preparation, definition and dissemination of the 'European Standards of Care for Children with Cancer', and a recent SIOPE survey within the European Partnership for Action Against Cancer (EPAAC) showed that there is a wide disparity in the implementation of these standards of care across different European countries [4].…”

Section: Objective 4: Equal Accessmentioning

confidence: 99%

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The SIOPE strategic plan: A European cancer plan for children and adolescents

Vassal

Schrappe

Pritchard‐Jones

et al. 2016

Journal of Cancer Policy

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Executive summaryCancer in young people is rare, but it is still a major health issue in Europe. Each year, more than 6,000 young people in Europe die of cancer. There are more than 300,000 European childhood cancer survivors (in 2020, they will be nearly half a million): two-thirds of them have some late side effects of treatment, that are severe and impact on the daily life of half of those affected.Within the European Network for Cancer research in Children and Adolescents (ENCCA), SIOPE and the European paediatric haematology-oncology community have established a long-term sustainable Strategic Plan to increase the cure rate and the quality of survivorship for children and young people with cancer over the next ten years. The ultimate goal is to increase the disease-and late-effect-free survival after 10 years from the diagnosis, and beyond.

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Towards reducing inequalities: European Standards of Care for Children with Cancer

Cited by 46 publications

References 8 publications

Cancer in children and adolescents in Spain: incidence, treatment setting and provider specialty

Cancer in children and adolescents in Spain: incidence, treatment setting and provider specialty

Model of Cancer Care for Children and Adolescents

The SIOPE strategic plan: A European cancer plan for children and adolescents

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