Tracking patients with advanced kidney disease in the last 12 months of life

Bonner, Ann; Chambers, Shirley; Healy, Helen; Hoy, Wendy E.; Mitchell, G.; Kark, Adrian; Ratanjee, Sharad; Yates, Patsy

doi:10.1111/jorc.12239

Cited by 7 publications

(7 citation statements)

References 26 publications

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“…The results of the survey (HEM preday : 0.82 ± 0.94, HEM day : 0.95 ± 0.83, and HEM postday : 1.41 ± 1.82, km/day) are not in line with those of Brown et al [ 7 ] who reported a decrease in patients' physical activity after hemodialysis. However, the findings of the research are in line with those of Bonner et al [ 13 ] who showed the strong influence of the disease on work, daily life, and in general the lifestyle of patients while at the same time identifying differences between them due to their different lifestyles.…”

Section: Discussionsupporting

confidence: 89%

“…Concerns about the physical health and dependence of the artificial kidney machine cause severe symptoms of anxiety and depression in patients undergoing dialysis following the onset of mental disorders. Significant mental disorders identified are phobias and coercion in the therapeutic approach, while social disorders are not uncommon [13]. The change in appearance and the self-esteem decline that accompany it lead to introversion and isolation, and relationships with the social environment are affected.…”

Section: Discussionmentioning

confidence: 99%

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Physical Activity and Quality of Sleep in Patients with End-Stage Renal Disease on Hemodialysis: A Preliminary Report

et al. 2020

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Chronic kidney disease significantly impairs patients’ daily lives and worsens their quality of life. The aim of this study was to investigate the physical activity and quality of sleep, during three days (previous day of dialysis, on the day of dialysis and after day of dialysis), in patients with end-stage renal on hemodialysis. 12 hemodialysis patients were included in our study, answered the Pittsburgh Sleep Quality Index (PSQI) questionnaire, and for each patient were used a smart bracelet for three days (day-pre- and posthemodialysis and day at hemodialysis) to record daily physical activity (steps, distance) and estimate the quality of sleep. Results showed differences between three days average of steps and distance and PSQI parameters “…engaging in social activity?” (steps, p=0.006, distance, p=0.006) and “…enthusiasm to get things done?” (steps, p=0.029, distance, p=0.030). Our study suggests interrelationship between sleep quality and physical activity.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 99%

Physical Activity and Quality of Sleep in Patients with End-Stage Renal Disease on Hemodialysis: A Preliminary Report

et al. 2020

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“…Second, the most common symptoms among participants with ESRD were pain, lack of energy, numbness, itching, and difficulty sleeping. This was slightly different from what has been previously reported [ 10 , 12 , 23 , 24 ]. For example, in a study conducted in Saudi Arabia, Almutary et al [ 10 ] found that the most prevalent symptoms among patients with ESRD were fatigue, bone pain, itching, and decreased appetite.…”

Section: Discussioncontrasting

confidence: 99%

“…Multiple studies have been conducted to assess the prevalence of symptoms among patients with chronic obstructive pulmonary disease (COPD), chronic heart failure (CHF), and end-stage renal disease (ESRD) [ 9 – 12 ]. For example, a study was conducted to assess the burden of symptoms among COPD patients and found that patients experienced on average 13 to 15 symptoms [ 9 ].…”

Section: Introductionmentioning

confidence: 99%

Symptom prevalence, severity, distress and management among patients with chronic diseases

ALHosni,

Al Qadire,

Omari

et al. 2023

BMC Nurs

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Background Advanced knowledge, technology, and treatment approaches resulted in longer survival rates for patients suffering from chronic diseases. However, symptoms of these diseases persist and affect the individual’s entire life and normal functioning. Aim To assess symptoms prevalence, severity, distress, and management among patients with chronic obstructive pulmonary diseases (COPD), chronic heart failure (CHF), and end-stage renal disease (ESRD) in Oman. Design A descriptive cross-sectional design was used. Sample and settings The study sample comprised 340 participants who were recruited between May and December 2021 from two referral hospitals and one large dialysis unit in the Sultanate of Oman, Muscat Governate using a convenience sampling technique. Results The highly prevalent symptoms among patients with selected chronic diseases were lack of energy (60.9%), pain (57.4%), numbness (53.2%), difficulty sleeping (49.4%), and shortness of breath (45.9%). The most severe symptoms were shortness of breath (53.2%), problems with urination (51.9%), constipation (50.8%), difficulty sleeping (49.7%), and pain (46.2%). The symptom “problems with sexual interests or activity” was found to be the most frequently occurring and highly distressing symptom out of all reported symptoms. Conclusions The current study’s findings showed that symptoms were prevalent and that some symptoms were frequent, severe, and highly distressing. In addition, patients perceived symptom treatment as inadequate. Psychological symptoms received less treatment attention compared with physical symptoms. One of the mainstays for managing symptoms can be the introduction of palliative care. Providing palliative care to these patients can alleviate their suffering and improve their quality of life. In addition, designing chronic disease self-management programmes can make a difference in patients’ life.

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“…This is consistent to some extent with, Bonner et al . (), who reported that, regardless of the treatment modality (i.e. dialysis or conservative management), those who were potentially in their last 12 months of life had relatively stable HRQoL over time.…”

Section: Discussionmentioning

confidence: 99%

The Relationship Between Chronic Kidney Disease, Symptoms and Health‐Related Quality of Life: A Systematic Review

Yapa

Purtell

Chambers

et al. 2019

Journal of Renal Care

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A. (2020). The relationship between chronic kidney disease, symptoms and healthrelated quality of life: a systematic review. Journal of Renal Care 46(2), 74-84. S U M M A R YBackground: People with chronic kidney disease (CKD) experience a wide range of symptoms due to reduced kidney function. As the disease progresses these symptoms become more burdensome and often negatively affect a person's health-related quality of life (HRQoL). Objective: To examine the evidence of symptoms and HRQoL in CKD stages 1-5 and the relationships between these. Methods: Studies published in English from January 2008 to July 2018 using six databases (PubMed, MEDLINE, CINAHL, PsycINFO, Cochrane Library and JBI Library) were searched. Results: Thirteen studies were included in this review although only three had interventional designs. By considering symptom experience and HRQoL together, four studies found that HRQoL decreased when symptoms increased. Feeling washed out, fatigue and drowsiness were found to be the most common symptoms reported. Only two studies reported follow-up measurements although six studied how symptoms change over time. None of the studies examined the change of symptoms over time across the different CKD stages. The majority of studies showed a decline in physical HRQoL and improvement in mental HRQoL over time. Nutritional and exercise interventions showed some improvements in symptom experience and HRQoL. Conclusions: Only four studies were found that reported the relationship between symptoms and HRQoL of those with CKD. Of these, in view of symptom experience and HRQoL together, HRQoL decreased when symptoms increased. However, more research is warranted to establish a clear understanding of the relationship between symptoms and HRQoL in CKD to enable the design of appropriate interventions.

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Tracking patients with advanced kidney disease in the last 12 months of life

Cited by 7 publications

References 26 publications

Physical Activity and Quality of Sleep in Patients with End-Stage Renal Disease on Hemodialysis: A Preliminary Report

Physical Activity and Quality of Sleep in Patients with End-Stage Renal Disease on Hemodialysis: A Preliminary Report

Symptom prevalence, severity, distress and management among patients with chronic diseases

The Relationship Between Chronic Kidney Disease, Symptoms and Health‐Related Quality of Life: A Systematic Review

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