Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience

Norrie, Caroline; Bramley, Stephanie; Lipman, Valerie; Manthorpe, Jill

doi:10.1108/jica-06-2021-0030

Cited by 5 publications

(3 citation statements)

References 46 publications

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“…Gambling has been discussed as a public health issue for more than twenty years [12,20,21], yet there is no national public health framework for GRH reduction in the UK, and the health harms perspective on gambling is nascent [22,23]. Engaging PLE in facilitating recognition and awareness of GRH is an emerging area of study [12,19,24,25] and in the meantime, GRH treatment and education are funded and, in some cases, directly provided by the gambling industry, rather than statutory public health bodies [18,26]. The development of LE involvement in the gambling sector is distinct because of this policy context, which is also important for understanding the barriers that PLE face when they become involved in the sector.…”

Section: Lived Experience In the Gambling Sectormentioning

confidence: 99%

Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Jenkins,

Mills,

Grimes

et al. 2023

Preprint

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Background Lived Experience (LE) involvement has been shown to improve interventions across diverse sectors. Yet LE contributions to public health approaches to address gambling-related harms remain underexplored, despite notable detrimental health and social outcomes linked to gambling. This paper analyses the potential of LE involvement in public health strategy to reduce gambling-related harms. It focuses on the example of a UK city-region gambling harms reduction intervention that presented multiple opportunities for LE input. Methods Three focus groups and 33 semi-structured interviews were conducted to hear from people with and without LE who were involved in the gambling harms reduction intervention, or who had previous experience of LE-informed efforts for reducing gambling-related harms. People without LE provided reflections on the value and contributions of others’ LE to their work. Data analysis combined the Framework Method with themes developed inductively (from people’s accounts) and deductively (from the literature, including grey literature). Results Four themes were identified: (1) personal journeys to LE involvement; (2) the value added by LE to interventions for reducing gambling-related harms; (3) emotional impacts on people with LE; and (4) collective LE and diverse lived experiences. Two figures outlining LE involvement specific to gambling harms reduction in the UK, where public health efforts aimed at reducing gambling-related harms coexist with industry-funded programmes, are proposed. Conclusions Integrating a range of LE perspectives in a public health approach to gambling harms reduction requires local access to involvement for people with LE via diverse routes that are free from stigma and present people with LE with options in how they can engage and be heard in decision-making and operate in relation to industry influence. Involving LE in gambling harms reduction requires enabling people to develop the affective and critical skills necessary to navigate complex emotional journeys and a challenging commercial and policy environment.

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Section: Lived Experience In the Gambling Sectormentioning

confidence: 99%

Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Jenkins,

Mills,

Grimes

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“…Engaging PLE in facilitating recognition and awareness of GRH is an emerging area of study [ 12 , 19 , 26 , 27 ] and in the meantime, GRH treatment and education are funded and, in some cases, directly provided by the gambling industry, rather than statutory public health bodies [ 18 , 28 ]. The development of LE involvement in the gambling sector is distinct because of this policy context, which is also important for understanding the barriers that PLE face when they get involved in the sector.…”

Section: Introductionmentioning

confidence: 99%

Involving lived experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Jenkins,

Mills,

Grimes

et al. 2024

BMC Public Health

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Background Lived Experience (LE) involvement has been shown to improve interventions across diverse sectors. Yet LE contributions to public health approaches to address gambling-related harms remain underexplored, despite notable detrimental health and social outcomes linked to gambling. This paper analyses the potential of LE involvement in public health strategy to address gambling-related harms. It focuses on the example of a UK city-region gambling harms reduction intervention that presented multiple opportunities for LE input. Methods Three focus groups and 33 semi-structured interviews were conducted to hear from people with and without LE who were involved in the gambling harms reduction intervention, or who had previous experience of LE-informed efforts for addressing gambling-related harms. People without LE provided reflections on the value and contributions of others’ LE to their work. Data analysis combined the Framework Method with themes developed inductively (from people’s accounts) and deductively (from the literature, including grey literature). Results Four themes were identified: (1) personal journeys to LE involvement; (2) the value added by LE to interventions for addressing gambling-related harms; (3) emotional impacts on people with LE; and (4) collective LE and diverse lived experiences. Two figures outlining LE involvement specific to gambling harms reduction in the UK, where public health efforts aimed at addressing gambling-related harms coexist with industry-funded programmes, are proposed. Conclusions Integrating a range of LE perspectives in a public health approach to gambling harms reduction requires local access to involvement for people with LE via diverse routes that are free from stigma and present people with LE with options in how they can engage and be heard in decision-making, and how they operate in relation to industry influence. Involving LE in gambling harms reduction requires enabling people to develop the affective and critical skills necessary to navigate complex emotional journeys and a challenging commercial and policy environment.

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“…As the above examples highlight, a PH approach requires a multifaceted response with a range of initiatives and interventions not only to treat GRH on presentation, but also to prevent them from occurring in the first instance. Recent reports have identified that the targets and strategies of PH approaches to GRH must: recognise that the input of those with lived experience is integral [10]; understand product-based risks [11][12][13]; and include targeted advocacy and campaigning [14,15]. Other authors have suggested that initiatives should target affected others, wider communities [16] and entire populations [9,17] whilst also targeting specific at-risk communities [18][19][20].…”

Section: Introductionmentioning

confidence: 99%

Towards a conceptual framework for the prevention of gambling-related harms: Findings from a scoping review

Wheaton,

Ford,

Nairn

et al. 2024

PLoS ONE

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The global gambling sector has grown significantly over recent years due to liberal deregulation and digital transformation. Likewise, concerns around gambling-related harms—experienced by individuals, their families, their local communities or societies—have also developed, with growing calls that they should be addressed by a public health approach. A public health approach towards gambling-related harms requires a multifaceted strategy, comprising initiatives promoting health protection, harm minimization and health surveillance across different strata of society. However, there is little research exploring how a public health approach to gambling-related harms can learn from similar approaches to other potentially harmful but legal sectors such as the alcohol sector, the tobacco sector, and the high in fat, salt and sugar product sector. Therefore, this paper presents a conceptual framework that was developed following a scoping review of public health approaches towards the above sectors. Specifically, we synthesize strategies from each sector to develop an overarching set of public health goals and strategies which—when interlinked and incorporated with a socio-ecological model—can be deployed by a range of stakeholders, including academics and treatment providers, to minimise gambling-related harms. We demonstrate the significance of the conceptual framework by highlighting its use in mapping initiatives as well as unifying stakeholders towards the minimization of gambling-related harms, and the protection of communities and societies alike.

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Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience

Cited by 5 publications

References 46 publications

Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Involving Lived Experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Involving lived experience in regional efforts to address gambling-related harms: going beyond ‘window dressing’ and ‘tick box exercises’

Towards a conceptual framework for the prevention of gambling-related harms: Findings from a scoping review

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