Transforming cancer survivorship care: An australian experience

Kinnane, Nicole; Piper, Amanda J.; Wiley, Georgina; Nolte, Linda; Evans, Judy; Jefford, Michael

doi:10.4103/2347-5625.204498

Cited by 7 publications

(25 citation statements)

References 4 publications

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“…Asian survivors reported feeling stigmatized and shamed (Wen, Hu, et al, 2014). These findings support the themes of privacy, reliance on traditional treatments, and cultural conflicts (Bedi & Devins, 2016; Kinnane et al, 2017). Beliefs about the privacy of female sexual body parts (i.e., breasts), intimacy, and sexuality underlie fatalistic views about breast cancer.…”

Section: Review Of the Literaturesupporting

confidence: 71%

Experiences of Asian Women Who Live in Urban Environments and Are Breast Cancer Survivors

2021

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Introduction Despite expanding interest in cancer survivorship, little is known about urban Asian breast cancer survivors whose experience may differ from those in suburban and rural locations. This study explores survivors’ challenges to maximize outcomes and identify common and unique themes among urban Asian survivors. Information was obtained from the survivors and outreach workers from their community. Methodology Descriptive qualitative methods including semistructured interview guides were used to plan, conduct, and analyze both individual interviews of Asian women ( n = 6) and a focus group ( n = 7) composed of community outreach workers. Results The interview and focus group findings, endorsed themes of communication/language, trust, and privacy, with generational differences. Poor health literacy in both survivors and providers was identified. Discussion Nurses are in a unique position to use the themes identified to both assist survivors expand their health literacy and lobby for resources for providers to promote culturally congruent care.

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Section: Review Of the Literaturesupporting

confidence: 71%

Experiences of Asian Women Who Live in Urban Environments and Are Breast Cancer Survivors

2021

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“…Given that the lack of educational patient resources available is a notable barrier, HICs have the responsibility to share resources with LMICs. Evidence-based, consumer informed resources for survivors who speak languages other than English, such as Mandarin, Cantonese, Vietnamese are already available in Australia [ 6 ]. These resources may be adapted to suit the cultural contexts for various countries in this region.…”

Section: Discussionmentioning

confidence: 99%

Oncology practitioners’ perspectives and practice patterns of post-treatment cancer survivorship care in the Asia-Pacific region: results from the STEP study

Chan

Yates

et al. 2017

BMC Cancer

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BackgroundMost efforts to advance cancer survivorship care have occurred in Western countries. There has been limited research towards gaining a comprehensive understanding of survivorship care provision in the Asia-Pacific region. This study aimed to establish the perceptions of responsibility, confidence, and frequency of survivorship care practices of oncology practitioners and examine their perspectives on factors that impede quality survivorship care.MethodsA cross-sectional survey of hospital-based oncology practitioners in 10 Asia-Pacific countries was undertaken between May 2015–October 2016. The participating countries included Australia, Hong Kong, China, Japan, South Korea, Thailand, Singapore, India, Myanmar, and The Philippines. The survey was administered using paper-based or online questionnaires via specialist cancer care settings, educational meetings, and professional organisations.ResultsIn total, 1501 oncology practitioners participated in the study. When comparing the subscales of responsibility perception, frequency and confidence, Australian practitioners had significantly higher ratings than practitioners in Hong Kong, Japan, Thailand, and Singapore (all p < 0.05). Surprisingly, practitioners working in Low- and Mid- Income Countries (LMICs) had higher levels of responsibility perception, confidence and frequencies of delivering survivorship care than those working in High-Income Countries (HICs) (p < 0.001), except for the responsibility perception of care coordination where no difference in scores was observed (p = 0.83). Physicians were more confident in delivering most of the survivorship care interventions compared to nurses and allied-health professionals. Perceived barriers to survivorship care were similar across the HICs and LMICs, with the most highly rated items for all practitioners being lack of time, dedicated educational resources for patients and family members, and evidence-based practice guidelines informing survivorship care.ConclusionsDifferent survivorship practices have been observed between HICs and LMICs, Australia and other countries and between the professional disciplines. Future service planning and research efforts should take these findings into account and overcome barriers identified in this study.Electronic supplementary materialThe online version of this article (10.1186/s12885-017-3733-3) contains supplementary material, which is available to authorized users.

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“…In Australia, medical care and other supportive services for cancer survivors are provided by cancer centers in public hospitals, in part supported by the state government and private foundation. Their supportive services include providing information to cancer survivors and training for healthcare professionals ( 38 ). Compared to previous studies, the advantage of our study was that it provided integrated support services to cancer survivors that manage various biopsychosocial issues and include psychosocial and medical support.…”

Section: Discussionmentioning

confidence: 99%

The Positive Effects of Cancer Survivor Support Service on Distress in South Korea: A Nationwide Prospective Study

et al. 2022

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Background and AimCancer survivors are gradually increasing, however, they suffer from various difficulties. We aimed to investigate the characteristics of cancer survivors and the effects of the services of the Korean Cancer Survivorship Center Pilot Project launched by the South Korean government on distress.MethodsA prospective observational cohort study was performed on cancer survivors who completed primary treatment. Cancer survivors' distress and symptoms such as fatigue, pain, depressive mood, anxiety, and insomnia were evaluated by well-trained nurses. Regarding their needs, medical and psychosocial support services were provided.ResultsThis study included 1,921 cancer survivors, with a mean age of 57.3 years (68.7% females). Breast cancer was most common, followed by stomach and colorectal cancer. Psychosocial and medical support decreased the percentage of the high-distress group from 50.9 to 30.5% and decreased the percentage of cancer survivors with high scores in fatigue, pain, anxiety, depressive mood, and insomnia. The independent predictors of a low distress level after the use of the services were older age, the relief of fatigue, pain, and insomnia.ConclusionThis study showed that psychosocial and medical support is associated with the lower distress and physical and mental symptoms of cancer survivors. Psychosocial and medical support could contribute to distress relief in cancer survivors. Further management strategies for fatigue, pain and insomnia are required.

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Transforming cancer survivorship care: An australian experience

Cited by 7 publications

References 4 publications

Experiences of Asian Women Who Live in Urban Environments and Are Breast Cancer Survivors

Experiences of Asian Women Who Live in Urban Environments and Are Breast Cancer Survivors

Oncology practitioners’ perspectives and practice patterns of post-treatment cancer survivorship care in the Asia-Pacific region: results from the STEP study

The Positive Effects of Cancer Survivor Support Service on Distress in South Korea: A Nationwide Prospective Study

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