Transition care for adolescents and young adults with attention‐deficit hyperactivity disorder (ADHD): A descriptive summary of qualitative evidence

Scarpellini, Francesca; Bonati, Maurizio

doi:10.1111/cch.13070

Cited by 6 publications

(3 citation statements)

References 88 publications

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“…They may even contribute to inequalities in care, which every individual should be guaranteed as a fundamental human right (Munyikwa et al ., 2023). Supporting patients with ADHD during transitions is crucial, and clinicians must be empowered to facilitate an appropriate transition process (Scarpellini and Bonati, 2022).…”

Section: Discussionmentioning

confidence: 99%

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The Transition from adolescence to adulthood mental health services for young people with ADHD in Italy

Roberti,

Clavenna,

Basso

et al. 2024

Preprint

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AimsEnsuring a successful transition to Adult Mental Health Services (AMHS) is fundamental for ADHD patients to prevent adverse scenarios in adults (e.g., psychiatric disorders, substance or alcohol abuse). Yet, most European nations do not have appropriate transition guidelines. This study aims to enquire about the current transition paths in Italy and the perceived experiences of the patients and their clinicians.MethodsThe present qualitative, observational study collected 36 interviews with young adults with ADHD who turned 18 between 2017 and 2021. Simultaneously, two questionnaires were filled in by the clinicians (both from pediatric and adult mental health services) who were involved in their transition paths. These tools collected information about the transition process, the services that cared for the young adults, and well-being indicators such as impairment in daily life, employment status, and the presence of sentinel events (e.g., critical stage accesses to the emergency room or hospitalizations). Successful and failed referrals were analyzed.ResultsA referral to an AMHS was attempted for sixteen young adults (8 before age 18 and 8 when turning 18), and 8 patients (22.2% overall) were successfully taken into the care of the AMHS. Twenty patients were not referred since it was deemed unnecessary (N=6) or because of the lack of specialized services or compliance (N=14). At the time of the interview, only nine participants were still under AMHS care. Of eleven individuals with a high need for care (identified by the level of impairment, support needs, or sentinel events), five were not followed by a mental health professional at the time of the interview.ConclusionsFor the majority of ADHD young adults, a transition path was never started or completed. While this is partly due to mild levels of impairment, in many cases it was difficult to find a service that could care for the adult patient. Only 1 out of 4 young adults are successfully transferred to AMHS care. Creating or improving evidence-based transition guidelines should be a priority of the public health system to ensure healthcare for as many patients as possible. The results of this study will converge towards the need for recommendations for the transition of services from adolescence to adulthood for young people with ADHD for Italian clinical practice.

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Section: Discussionmentioning

confidence: 99%

“…Supporting patients with ADHD during transitions is crucial, and clinicians must be empowered to facilitate an appropriate transition process (Scarpellini and Bonati, 2022).…”

Section: Discussionmentioning

confidence: 99%

The Transition from adolescence to adulthood mental health services for young people with ADHD in Italy

Roberti,

Clavenna,

Basso

et al. 2024

Preprint

View full text Add to dashboard Cite

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“…Moreover, a consensus is growing that the 18-years criterion may not be in the best interest of young patients [25]. Another criterion that might be worth considering is not using the age of 18, but the end of a school cycle (See Scarpellini & Bonati, 2022 for ages reported in different studies) [26]. Future guidelines might suggest re-evaluating the patients in that particular moment as part of the monitoring aspect.…”

Section: Discussionmentioning

confidence: 99%

Protocols for transitioning to adult mental health services for adolescents with ADHD

Roberti¹,

Scarpellini²,

Campi³

et al. 2023

Preprint

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For Attention Deficit/Hyperactivity Disorder (ADHD) youth transitioning from child to adult services, protocols that guide the transition process are necessary. While some guidelines are available, they do not always consider effective workload and scarce resources. In Italy, there are currently very few guidelines available, and they do not adhere to common standards, possibly leading to a non-uniform use. The present study analyzes 6 protocols collected from different services for ADHD patients that took part in the TransiDEA (Transitioning in Diabetes, Epilepsy, and ADHD patients) Project. Their content is described in parallel to the National Institute for Clinical Health and Excellence (NICE) guidelines. While there are some strong points and several common core elements, a need emerges to standardize practices and to make them more adherent to patients’ needs and to the resources available to clinicians.

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Transition Readiness Among Youth Accessing Mental Health Services With Physical Health Co‐Morbidities

Davies,

Brennenstuhl,

Allemang

et al. 2024

Child

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BackgroundTransition readiness, or skills and preparation for navigating adult health care, is an important factor in the successful transition from child and adolescent mental health services (CAMHS) to adult care; however, predictors of transition readiness are not fully understood. One factor which may impact transition readiness among youth accessing CAMHS is the presence of a co‐occurring physical health condition; however, this has not been previously examined. Within a cohort of youth receiving CAMHS, the objective of this study was to understand if there is an association between co‐occurring physical health conditions and transition readiness and if this relationship is impacted by severity of mental health symptoms.MethodsThis study was a secondary analysis of baseline data from the Longitudinal Youth in Transition Study, including 237 16‐ to 18‐year‐old youth accessing outpatient CAMHS from four different clinical sites. Participants completed self‐report measures on mental health symptoms, functioning, service use, transition readiness, and physical health conditions. Multiple linear regression models were used to measure the association between the presence of health conditions and transition readiness scores as well as determine if there was an interaction between mental health symptoms and physical health conditions to predict transition readiness.ResultsCo‐occurring physical conditions were reported by 41% of youth and were associated with greater overall transition readiness. There was no interaction between mental health symptom severity and co‐occurring physical conditions, though attention problems were independently associated with lower transition readiness scores.ConclusionsYouth accessing CAMHS who have a co‐occurring physical condition have overall greater transition readiness than youth without a co‐occurring condition. Further research should explore the role of frequency and types of healthcare encounters in transition readiness for transition age youth needing ongoing mental health care to better understand how to support self‐management and care navigation skill development.

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Transition care for adolescents and young adults with attention‐deficit hyperactivity disorder (ADHD): A descriptive summary of qualitative evidence

Cited by 6 publications

References 88 publications

The Transition from adolescence to adulthood mental health services for young people with ADHD in Italy

The Transition from adolescence to adulthood mental health services for young people with ADHD in Italy

Protocols for transitioning to adult mental health services for adolescents with ADHD

Transition Readiness Among Youth Accessing Mental Health Services With Physical Health Co‐Morbidities

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