Transition Experience of Families with Young Children in the Australian National Disability Insurance Scheme (NDIS)

Boaden, Nirosha; Purcal, Christiane; Fisher, Karen R.; Meltzer, Ariella

doi:10.1080/0312407x.2020.1832549

Cited by 12 publications

(18 citation statements)

References 10 publications

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“…Six of the included papers reported on there being insufficient service providers and professional supports in regional, rural and remote areas. 7,21,39,40,41,42 Individual choice and control over the NDIS planning process within these geographical locations was reportedly due to multiple factors, including a transient health/NDIA workforce, staffing shortages, and low capacity of service providers/NDIA staff within these regions 7,21 The participation information does not identify regional locations of the participants. Several main findings emerge from the evaluation of the NDIS.…”

Section: Rural Health Workforce and Ndis Planning Workforcementioning

confidence: 99%

“…4.3.1 | NDIS package holders and carers lack of awareness of the NDIS Three papers identified a relationship between living in regional, rural or remote areas and decreased access to preparatory transition supports for people who transitioned from the old government funded system to the newly established NDIS. 39,42,44 Seven of the papers 7,21,39,42,43,44 reported that NDIS participants living in regional, rural or remote areas were uninformed about the NDIS and unaware of how to find information.…”

Section: Disability Awareness Amongst Ndis Planners and Local Area Co...mentioning

confidence: 99%

“…Of the few papers that discussed Aboriginal and Torres Strait Islander interactions with the NDIS during the planning process, those who lived in rural or remote areas were more at risk of communication breakdowns leading to delays in plan approvals and reviews. 7,21 4.3.2 | Cultural competence and cultural safety Five papers 7,21,39,41,42 reported a relationship between people's education attainment levels, socio-economic status, main spoken language, and regional location and their ability to self-advocate during the NDIS planning process. The access to already existing social capital and geographic capacity within urban areas led to better advocacy skills during the planning process and consequently higher levels of funding.…”

Section: Disability Awareness Amongst Ndis Planners and Local Area Co...mentioning

confidence: 99%

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The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

Veli-Gold

Gilroy

Wright

et al. 2023

Australian J Rural Health

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Background Australia's National Disability Insurance Scheme (NDIS) was launched in 2013 to provide financial support packages for people with disability to purchase supports and services to enhance independence. People with disability are required to develop a plan with the National Disability Insurance Agency (NDIA), the government department responsible for managing the NDIS. This scoping review aims to ascertain the level of research into people's experience of the NDIS planning process in these geographic areas. Methodology Research publication databases were searched using a specific search string to identify research about people with disability and their families/carer's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications focused on Aboriginal and Torres Strait Islander people were additionally appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications' contents was undertaken to ascertain people with disabilities and carers experience of the NDIS planning process. Results Ten (N = 10) research papers were found that met the inclusion criteria. Two papers were policy reviews and reported on the improvements of the NDIS planning process since its conception. The analysis found the research archive focused on five themes: (1) healthcare workforce and NDIA staff; (2) NDIS package holders and carers lack of awareness of the NDIS; (3) cultural/socio‐economic barriers; (4) travel funding; and (5) emotional burden of the NDIS planning process. Conclusion There are limited papers available that explore people's experiences of the NDIS planning process in regional, rural and remote regions of Australia. This systematic review illuminates the difficulties, barriers and concerns of people with disability and their carers about the planning process.

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Section: Rural Health Workforce and Ndis Planning Workforcementioning

confidence: 99%

Section: Disability Awareness Amongst Ndis Planners and Local Area Co...mentioning

confidence: 99%

Section: Disability Awareness Amongst Ndis Planners and Local Area Co...mentioning

confidence: 99%

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The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

Veli-Gold

Gilroy

Wright

et al. 2023

Australian J Rural Health

View full text Add to dashboard Cite

show abstract

“…15 There are, however, several bottlenecks in service delivery and there are concerns for timely access to meet the needs of children and adults with disability from vulnerable backgrounds. [16][17][18][19][20]21 Much of the critiques of the NDIS are related to service planning de cits, with a lack of accurate disability data to inform NDIS service provision to those most in need.…”

Section: Introductionmentioning

confidence: 99%

Exploring Inequity in Childhood Neurodisability in a Disadvantaged Metropolitan Region in Australia

Garg

Dronavalli²,

Ostojic

et al. 2021

Preprint

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BackgroundSouth Western Sydney (SWS) region, in the state of New South Wales (NSW) in Australia is a culturally and linguistically diverse area of marked social disadvantage. Using the best available data sources, we aimed to explore the prevalence of children with developmental disability and their access to disability and special education support services, to identify equity gaps. MethodsData on the potential number of children in SWS with neurodisability was identified from the district wide Child Developmental Assessment Service (CDAS) database of public-funded Community Paediatrics services, the NSW/Australian capital territory (ACT) Cerebral Palsy (CP) register, the State-wide Infant Screening-Hearing (SWISH) Program, the Royal Institute for Deaf and Blind Children and the Department of Education. The proportion of children with access to disability services for children up-to 18 years of age was explored from the datasets of the National Disability Insurance Scheme (NDIS). Relative risks were calculated to compare any differences in proportion of supports in SWS compared to NSW. ResultsIn 2018, 503 children (median age 4.3 years) were assessed by CDAS; 65% had autism spectrum disorder (ASD) either alone or in association with global developmental delays and 24% had global developmental delay. The prevalence of CP in SWS was 1.86/1000; with a higher proportion of severe functional and intellectual impairment in SWS compared to the state. The prevalence of sensori-neural hearing loss in SWS was 2.2/1000, and more children in SWS had severe visual impairment compared to the state (P=0.003). Students in support classes with special needs were overrepresented in SWS compared to the state (P<0.0001). There were slightly more children with intellectual disability in SWS supported by the NDIS, but proportions for other conditions were comparable to NSW. Conclusions While available data sources are incomplete, we identified greater proportions of children with neurodisability, experiencing more functional impairment in SWS, compared to NSW; with ASD being the most common neurodisability presenting to developmental clinics. We also identified potential equity gaps in disability service provision. A state-wide child disability register would aid planning and research, with concerted advocacy needed to improve equity in disability support provision in this region.

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mentioning

confidence: 99%

Impact of a Global Pandemic on Scope and Diversity of Social Work Research and Practice: Complexity Theory a Lens to Review Current Thinking

McDermott¹

2021

Australian Social Work

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The contents of the July (2021) Issue of Australian Social Work (ASW) are distinguished by a range and diversity of topics, notably: intellectual impairment (Catalano & Wilson, 2021); end-of-life care (Moon & McDermott, 2021); abuse of older Australians (Blundell et al., 2021); women with a physical disability (Corona-Aguilar et al., 2021); interventions for problematic eating in out-of-home care (Savaglio et al., 2021); a focus on family transitions in the National Disability Insurance Scheme (NDIS) where there are young children (Boaden et al., 2021); and post-disaster recovery (Harms et al., 2021). An examination of social work graduate outcomes (Papadopoulos & Egan, 2021), and social work e-placements under COVID-19 (Zuchowski et al., 2021) complete this "sweep" through the range of interests and specialisations undoubtedly characteristic of contemporary social work as it is practiced across fields, with diverse populations, and from a variety of standpoints: policy, practice, education, and advocacy.Such a range of areas of interest and of practice (and many more, of course) does, as we know, place considerable demands on social work educators to ensure that curricula and practicum experience make social work students "shovel ready" for the demands of future employment. Central to this is the need for social workers to practice in whatever field, and in whatever capacity in ways that are grounded in available evidence and knowledge. This is what the articles published in this, and in all issues of ASW and other social work peer-reviewed journals, the research outcomes described and the policy critiques advanced, aim to deliver. Importantly, they provide the basis for social workers to practice from an evidence-informed or evidence-based approach. Research is central to the social work project, to understanding the contextualised nature of human lives, and enabling practitioners to work with service users to better the biopsychosocial conditions of everyday life. In addition, it is through research that social workers discover, develop, and integrate useable theory that grounds their practice expertise in evidence.The person-in-environment perspective and the biopsychosocial model have formed the theoretical backbone of social work education and practice for at least the last 50 years, variously amended, developed, and enhanced by critical social work, feminist, and structural social work theorisations. Perhaps it is timely to question whether these perspectives continue, in their current form, to be "fit for purpose" for 21st Century social work practice. The onset of COVID-19 and world-wide pandemic conditions have, at the very least, confronted and challenged social work. In the pages of this Journal in the last several issues, as part of a Knowledge Exchange Project, social work practitioners have provided us with brief reflective pieces, chronicling their struggles, insights, adaptive strategies, and innovations designed to continue to provide service users with a service. In this Issue, Stephanie Drag...

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Transition Experience of Families with Young Children in the Australian National Disability Insurance Scheme (NDIS)

Cited by 12 publications

References 10 publications

The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

The experiences of people with disability and their families/carers navigating the NDIS planning process in regional, rural and remote regions of Australia: Scoping review

Exploring Inequity in Childhood Neurodisability in a Disadvantaged Metropolitan Region in Australia

Impact of a Global Pandemic on Scope and Diversity of Social Work Research and Practice: Complexity Theory a Lens to Review Current Thinking

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