Transition issues for children with diffuse cortical malformations, multifocal postnatal lesions, (infectious and traumatic) and Lennox–Gastaut and similar syndromes

Camfield, Peter; Bahi‐Buisson, Nadia; Trinka, Eugen

doi:10.1111/epi.12704

Cited by 11 publications

(18 citation statements)

References 32 publications

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“…Input from a pharmacologist is needed because there is often polypharmacy not just related to AEDs 67. Involvement of other medical and nonphysician services should include primary care for basic health maintenance such as nutrition, influenza immunization, and dentistry 67, 68.…”

Section: Challenges In Adolescence: Autism Behavior and Epilepsymentioning

confidence: 99%

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Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE

et al. 2016

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SummaryThe management and needs of people with intellectual disability (ID) and epilepsy are well evidenced; less so, the comorbidity of behavioral disorder in this population. “Behavioral disorder” is defined as behaviors that are difficult or disruptive, including stereotypes, difficult or disruptive behavior, aggressive behavior toward other people, behaviors that lead to injury to self or others, and destruction of property. These have an important link to emotional disturbance. This report, produced by the Intellectual Disability Task Force of the Neuropsychiatric Commission of the ILAE, aims to provide a brief review of some key areas of concern regarding behavioral disorder among this population and proposes a range of research and clinical practice recommendations generated by task force members. The areas covered in this report were identified by experts in the field as being of specific relevance to the broad epilepsy community when considering behavioral disorder in persons with epilepsy and ID; they are not intended to be exhaustive. The practice recommendations are based on the authors’ review of the limited research in this field combined with their experience supporting this population. These points are not graded but can be seen as expert opinion guiding future research and clinical practice.

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Section: Challenges In Adolescence: Autism Behavior and Epilepsymentioning

confidence: 99%

“…Involvement of other medical and nonphysician services should include primary care for basic health maintenance such as nutrition, influenza immunization, and dentistry 67, 68. Also, input from specialty physicians and rehabilitation therapists is needed 68, 69…”

Section: Challenges In Adolescence: Autism Behavior and Epilepsymentioning

confidence: 99%

Behavioral disorder in people with an intellectual disability and epilepsy: A report of the Intellectual Disability Task Force of the Neuropsychiatric Commission of ILAE

et al. 2016

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“…For example, Chiron and An [21] discussed AED treatment. Transitional issues in specific epilepsy syndromes are described by Scheffer and Dravet [22], Camfield et al [18,[23][24][25], de SaintMartin et al [26], Thiele et al [27], Kossoff et al [28], Kerr et al [29], Glauser [30], and Nordli [31].…”

Section: Description Of Studiesmentioning

confidence: 99%

“…Although many adult patients still live at home with their parents, early decisions concerning living arrangements and financial guardianship are recommended because patients tend to outlive their parents [24].…”

Section: Intellectual Disabilitymentioning

confidence: 99%