Transition of Care for Adolescent Patients With Chronic Illness: Education for Nurses

Osterkamp, Erin M.; Costanzo, Amy J.; Ehrhardt, Barbara S.; Gormley, Denise K.

doi:10.3928/00220124-20121101-52

Cited by 5 publications

(11 citation statements)

References 13 publications

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“…The emotional experiences of families and young people with ABI did not differ substantially from those reported for people with other medical conditions (Gleeson & Turner, 2012;Osterkamp et al, 2013). Sadness over having to leave the paediatric team is a common theme in transition research.…”

Section: Emotional Experience Of Parents During the Transition Processmentioning

confidence: 84%

“…These include participation in work or further study options and the development of new social connections. This is a time when young people lose many of the social supports established through school which may make them vulnerable to poorer outcomes if health care relationships are also disrupted (Osterkamp et al, 2013 ). From a service provider perspective, clinicians report that having a predetermined time of transfer is helpful in facilitating the planning process (Berg Kelly, 2011).…”

Section: Transition In Health Carementioning

confidence: 99%

“…Nevertheless, from a health delivery perspective, most clinicians are trained either as paediatric or adult providers, the skills sets for which can be quite different. Some even argue that working with adolescents and young adults requires a unique skill set that differs from that of either paediatric or adult providers (Gleeson & Turner, 2012;Osterkamp et al, 2013 ).…”

Section: Transition In Health Carementioning

confidence: 99%

“…When a transition occurs, a person is expected to make appropriate adjustments, acquire new skills and cope with experiences that accompany this new life phase (Osterkamp, Costanzo, Ehrhardt, & Gormley, 2013). This process often involves a period of uncertainty as individuals develop a sense of their new life roles, responsibilities and relationships (Lenz, 2001).…”

Section: What Is Transition?mentioning

confidence: 99%

“…Paediatric services are often described as family-centred and supportive (Osterkamp et al, 2013;Reiss et al, 2005;Young et al, 2009). The paediatric service providers within Study 1 expressed pride in their ability to actively involve families in the planning and decision making for their child.…”

Section: Models Of Carementioning

confidence: 99%

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Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

Francis¹

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The transition into adulthood is one of significance as societal expectations require a person to participate in adult occupations that contribute to their community. While the significance of transition has been well recognised, consideration is still being given to how this process can be best supported. Health care transition is seen as the planned movement of young people with chronic conditions from paediatric to adult orientated care systems. Processes surrounding transition to adult health services became topical when it was realised that young people have a heightened risk of being lost to medical follow up during this time, impacting their long term health outcomes. Discussion regarding what is best practice to facilitate transition between services has resulted in a number of guiding principles being advanced. The need to prepare and guide families through a gradual process, and address the medical, psychosocial and vocational needs of young people, underpins many of these principles. Acquired brain injury (ABI) can be described as any injury sustained to the brain and may be the result of trauma, stroke, hypoxia, surgery or infection. It has been identified that people who sustain an ABI during childhood are at risk of having poorer outcomes with respect to health, employment and lifestyle compared to their peers and as a result, may require support well into adulthood.The overall aim of this thesis was to ascertain the effectiveness of a formal transition program for young people with ABI. In order to answer the proposed question, two distinct studies were undertaken. The first study focused on program development. This study was exploratory in nature, and sought to gain an understanding regarding the complexities associated with transition for young people with ABI. The specific aims of Study 1 were to: The pilot was successful in meeting the third objective as participants reported overall high levels of satisfaction and client centred care. There were no significant improvements with respect to iv increased knowledge of services available during adulthood or in the level of functional independence of the young person during this period.This study provides insights into the complexities associated for young people with ABI at the time of transition. It indicates that a transition program is required to support these young people navigate these complexities. Preliminary findings indicate that the proposed transitional care program provides client centred care. Non significant change in performance and knowledge related outcome measures however, indicate that further research is required to refine this program.

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Section: Emotional Experience Of Parents During the Transition Processmentioning

confidence: 84%

Section: Transition In Health Carementioning

confidence: 99%

Section: Transition In Health Carementioning

confidence: 99%

Section: What Is Transition?mentioning

confidence: 99%

Section: Models Of Carementioning

confidence: 99%

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Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

Francis¹

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Multidisciplinary Support for Healthcare Transitioning Across an Urban Healthcare Network

Davidson

Doyle

Silver

2015

Journal of Pediatric Nursing

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Adolescents' Lived Experiences While Hospitalized After Surgery for Ulcerative Colitis

Olsen

Jensen

Larsen

et al. 2016

Gastroenterology Nursing

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Adolescents are in a transitional phase of life characterized by major physical, emotional, and psychological challenges. Living with ulcerative colitis is experienced as a reduction of their life quality. Initial treatment of ulcerative colitis is medical, but surgery may be necessary when medical treatment ceases to have an effect. No research-based studies of adolescents' experience of the hospital period after surgery for ulcerative colitis exist. The objective of the study was to identify and describe adolescents' lived experiences while hospitalized after surgery for ulcerative colitis. This qualitative study was based on interviews with eight adolescents. Analysis and interpretation were based on a hermeneutic interpretation of meaning. Three themes were identified: Body: Out of order; Seen and understood; and Where are all the others? The adolescents experience a postoperative period characterized by physical and mental impairment. Being mentally unprepared for such challenges, they shun communication and interaction. The findings demonstrate the importance of individualized nursing care on the basis of the adolescent's age, maturity, and individual needs. Further study of adolescent patients' hospital stay, focusing on the implications of being young and ill at the same time, is needed.

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Transition of Care for Adolescent Patients With Chronic Illness: Education for Nurses

Cited by 5 publications

References 13 publications

Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

Multidisciplinary Support for Healthcare Transitioning Across an Urban Healthcare Network

Adolescents' Lived Experiences While Hospitalized After Surgery for Ulcerative Colitis

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