Transition Readiness for Talking With Providers in Urban Youth With Asthma: Associations With Medication Management*

Abstract

All coauthors confirm that there are no known conflicts of interest associated with this publication and there has been no significant financial support for this work that could have influenced its outcome. We confirm that the manuscript has been read and approved by all named authors and that there are no other persons who satisfied the criteria for authorship but are not listed. We further confirm that the order of authors listed in the manuscript has been approved by all of us. We confirm that we have given due consideration to the protection of intellectual property associated with this work and that there are no impediments to publication, including the timing of publication, with respect to intellectual property. In so doing we confirm that we have followed the regulations of our institutions concerning intellectual property. The work described has not been published previously, except in the form of the abstracts listed below. It is not under consideration for publication elsewhere, and if accepted, it will not be published elsewhere including electronically in the same form, in English or in any other language, without the written consent of the copyright-holder. We further confirm that any aspect of the work covered in this manuscript that has involved either experimental animals or human patients has been conducted with the ethical approval of all relevant bodies and that such approvals are acknowledged within the manuscript.

Understanding the challenges faced by adolescents and young adults with allergic conditions: A systematic review

“…Caregivers seemed to be unaware of gaps in their adolescents’ food allergy management and expressed difficulties with their child's transition to independence and their subsequent loss of control . Readiness for transition was associated with greater perceived medication independence, but this was not associated with improved responsibility or medication adherence in the young person . Successful transition required systematic support, developmentally appropriate and adaptive health care from healthcare professionals …”

Responsibility for Asthma Management Among Adolescents With and Without Attention-Deficit/Hyperactivity Disorder

“…As we predicted, both adolescents with ADHD and their caregivers reported that caregivers carry more responsibility for asthma management, compared with caregivers of teens with asthma only. Asthma self-management may be a particular challenge for low-income youth because they are likely to be given responsibility for asthma management at an early age [5]. Caregivers may need to provide additional support to adolescents with ADHD, who have impaired concentration and attention.…”

Adherence to Medication During Transition to Adult Services

“…Of note, the outcome variable of this study was self-reported medication nonadherence, which may have been susceptible to misreporting. Interestingly, teenagers who were "ready" were more likely to be white and have a caregiver who was educated past high school, highlighting the potential role of socioeconomic status [19]. Verma and Rohan [20], who studied resilience and transition readiness among pediatric patients with various chronic illnesses, presented similar findings, reporting that neither transition readiness nor resilience was associated with self-reported or actual adherence, as measured by prescription refill data [20].…”

“…Research in populations with pediatric liver transplants, asthma, and IBD have reported conflicting results [17,19,20]. One study looked at the role of transition readiness, specifically readiness to talk with providers and manage daily activities, amongst youth with asthma [19]. These behaviors, as well as perceptions of independence in taking medication, were not related to actual medication adherence.…”

“…Patients completed a transition readiness questionnaire, which included a medication management scale; lower scores on this scale were associated with greater medication and visit nonadherence, as captured by medical records [ 18 ]. Yet, findings have been equivocal, and the relationship between transition readiness and adherence outcomes may be complicated [ 17 , 19 , 20 ] and related to poorly studied assessments [ 21 ].…”