Transition to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills and correlates of a successful transition

Ricci, Piera; Dimopoulos, Konstantinos; Bouchard, Melissa; Zhiya, Cheryl Chong; Meira, Virginia Castro; Pool, Danielle; Lambell, Michelle; Rafiq, Isma; Kempny, Aleksander; Heng, Ee Ling; Haidu, Loredana; Constantine, Andrew

doi:10.1093/ehjqcco/qcad014

Cited by 3 publications

(1 citation statement)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Thus, participating in group interactions can facilitate the sharing of opinions and experiences. Engaging with peers in these settings can make discussing the transition process more comfortable and empower adolescents to play an active role in their healthcare journey [ 31 ].…”

Section: Reviewmentioning

confidence: 99%

The Transition of Children Living With Congenital Heart Disease to Adult Care

Tyagi,

Sontakke

2023

Cureus

View full text Add to dashboard Cite

The article explores the significance of the timely transition of a child living with congenital heart disease (CHD) to adult care and the role played by multidisciplinary care. Due to recent healthcare advances, more children with CHD survive to adulthood without surgical intervention. This survival is mainly due to the lesion being compatible with life and its management being done medically. However, further management requires meeting the child's needs and helping him transition to become a healthy, independent adult with almost equal life expectancy as his counterparts. The article reviews the comprehensive framework of transition through multidisciplinary care. Highlighting the necessity of training physicians to acquire expertise in the management of CHD is a foundational aspect of this review article. Introduction to transition requires assessment of the child's needs through all phases of life and informative counseling of both parents and child. It highlights the approach to educating patients and families with the knowledge to safeguard compliance. Multidisciplinary collaboration from various fields such as cardiology, pediatric physiatrist, nursing, and psychology has been stressed. Patients also need to cultivate skills in self-management and independence and be educated to comprehend their condition, including the potential health issues. This collaborative and multidisciplinary process necessitates the cooperation of patients, families, and the adult congenital heart disease (ACHD) team. Emphasis has been given to individualized counseling for girls to address their sexual health. The article also highlights the possible obstacles and how to tackle them to improve healthcare adherence. Timely transition and follow-up can be measured using various tools or through indices measuring the quality of life and average life expectancy. The global patterns of transition to ACHD care have also been emphasized, as well as the need for research studies to develop reliable indicators for assessing transition success.

show abstract

Section: Reviewmentioning

confidence: 99%

The Transition of Children Living With Congenital Heart Disease to Adult Care

Tyagi,

Sontakke

2023

Cureus

View full text Add to dashboard Cite

show abstract

Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease

de Hosson,

De Groote,

Hecke

et al. 2024

Patient Education and Counseling

View full text Add to dashboard Cite

European Society of Cardiology: the 2023 Atlas of Cardiovascular Disease Statistics

Timmis,

Aboyans,

Vardas

et al. 2024

European Heart Journal

View full text Add to dashboard Cite

This report from the European Society of Cardiology (ESC) Atlas Project updates and expands upon the 2021 report in presenting cardiovascular disease (CVD) statistics for the ESC member countries. This paper examines inequalities in cardiovascular healthcare and outcomes in ESC member countries utilizing mortality and risk factor data from the World Health Organization and the Global Burden of Disease study with additional economic data from the World Bank. Cardiovascular healthcare data were collected by questionnaire circulated to the national cardiac societies of ESC member countries. Statistics pertaining to 2022, or latest available year, are presented. New material in this report includes contemporary estimates of the economic burden of CVD and mortality statistics for a range of CVD phenotypes. CVD accounts for 11% of the EU’s total healthcare expenditure. It remains the most common cause of death in ESC member countries with over 3 million deaths per year. Proportionately more deaths from CVD occur in middle-income compared with high-income countries in both females (53% vs. 34%) and males (46% vs. 30%). Between 1990 and 2021, median age-standardized mortality rates (ASMRs) for CVD decreased by median >50% in high-income ESC member countries but in middle-income countries the median decrease was <12%. These inequalities between middle- and high-income ESC member countries likely reflect heterogeneous exposures to a range of environmental, socioeconomic, and clinical risk factors. The 2023 survey suggests that treatment factors may also contribute with middle-income countries reporting lower rates per million of percutaneous coronary intervention (1355 vs. 2330), transcatheter aortic valve implantation (4.0 vs. 153.4) and pacemaker implantation (147.0 vs. 831.9) compared with high-income countries. The ESC Atlas 2023 report shows continuing inequalities in the epidemiology and management of CVD between middle-income and high-income ESC member countries. These inequalities are exemplified by the changes in CVD ASMRs during the last 30 years. In the high-income ESC member countries, ASMRs have been in steep decline during this period but in the middle-income countries declines have been very small. There is now an important need for targeted action to reduce the burden of CVD, particularly in those countries where the burden is greatest.

show abstract

Transition to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills and correlates of a successful transition

Cited by 3 publications

References 24 publications

The Transition of Children Living With Congenital Heart Disease to Adult Care

The Transition of Children Living With Congenital Heart Disease to Adult Care

Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease

European Society of Cardiology: the 2023 Atlas of Cardiovascular Disease Statistics

Contact Info

Product

Resources

About