Transitioning Patients to Survivorship Care: A Systematic Review

Section: Introductionmentioning

confidence: 95%

Thyroid cancer survivors’ perceptions of survivorship care follow-up options: a cross-sectional, mixed-methods survey

Bender

Wiljer

Sawka

et al. 2015

“…To date, most research testing the delivery of a printed SCP, without follow-up to personalize the application of the information to the individual, has not found positive outcomes with regard to health care adherence or distress, although survivors may report feeling positive about having received SCPs [29][30][31][32][33][34][35][36][37][38][39][40][41][42][43]. Further personalizing the delivery of care plans, allowing interaction and updating of material as care needs change, and provision of action plans with reminders for individuals through online interventions has the potential to make SCPs and delivery of care more efficient and effective [44,45].…”

Section: Discussionmentioning

confidence: 99%

Engaging hematopoietic cell transplantation patients and caregivers in the design of print and mobile application individualized survivorship care plan tools

Preussler

Denzen

Majhail

et al. 2019

Purpose-INSPIRE (INteractive Survivorship Program with Information and REsources) is an online health program that includes a mobile app, website, health action plan, and individualized survivorship care plans for adult hematopoietic cell transplant (HCT) survivors. The INSPIRE program integrates two previously effective randomized control trials that tested an internet-based program and patient-centered survivorship care plans for HCT survivors. Methods-Three focus groups were conducted with a total of 22 participants (20 patients, 2 caregivers/patient advocates) to explore patient and caregiver preferences and to optimize the patient-centered emphasis of INSPIRE. Adult (age > 18 years at the time of study entry) HCT recipients had to be at least 1-year post-HCT to participate; caregivers/patient advocates were also eligible. Participants had to be able to communicate in English, could have any diagnosis, transplant type, or donor source, and could have had multiple transplants. Results-All patient participants received an allogeneic HCT; average time since HCT was 8 years (range 2-22 years). The majority of participants were female (77.3%). Overall, the tools were well received by participants in this study, particularly the personalized features of all the tools. Major themes included interest in having the ability to tailor features to individual needs, and an interest in tracking information over time. Discussion-Engaging patients and caregivers is invaluable to optimize tools designed to improve HCT survivorship care.

“…Existing reviews on survivorship models are largely limited by their lack of contextualization [3,[9][10][11]. Consequently, there is a lack of robust evaluations of models in assessing their appropriateness for clinical use.…”

Section: Introductionmentioning

confidence: 99%

Survivorship care models for breast cancer, colorectal cancer, and adolescent and young adult (AYA) cancer survivors: a systematic review

Chan

2018

The reviewed survivorship model studies were comprehensive but were limited by a lack of existing rigorous evaluation efforts to assess their effectiveness. This review further provided valuable recommendations for future methodological evaluation of such models. This review has highlighted care coordination as an area for improvement and emphasized the importance of obtaining data on the effectiveness of these survivorship models to ensure satisfactory quality of life and health outcomes.