Transitioning Pediatric Patients to Adult Health Care: A Quality Improvement Needs Assessment

Benson, Nichole D.; Cunningham, Craig A.; Braun, Lisa; Wallace, Jerrol B; Stewart, Kathryn J.; Derouin, Anne

doi:10.1016/j.pedhc.2017.09.014

Cited by 7 publications

(5 citation statements)

References 9 publications

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“…Similarly the STARx, a tool developed during this review period was tested with large sample sizes, the originator of this tool having a sample of 996 participants with 19 conditions in phase 2 of tool development [26]. Other studies utilizing the STARx had samples of 245 AYA of 14 diagnosis types [27]; 351 AYA with one of 18 conditions [28]; 160 AYA with "different chronic conditions" [30] and 341 parents and 455 children with six diagnosis groups [31]. The UNC TRxANSITION was used with a sample of 511 AYA with nine different chronic health conditions [36].…”

Section: Characteristics Of Study Participants and Sample Sizesmentioning

confidence: 99%

“…Six of these studies provided a transition measurement tool to the AYA with a parallel version for parents to use. The STAR-x and parent version of the STAR-x, the STARx-P, was used in two studies [27,31]. The RTQ was used with AYA/parent dyads in two studies [38,59].…”

Section: Characteristics Of Study Participants and Sample Sizesmentioning

confidence: 99%

“…Planned strategies should engage AYA before the expected transition period and involve all members of the pediatric healthcare team. AYA and their parents should be engaged in the preparation for transition services beginning around the age of 12-14 years [27]. Previous systematic reviews recommended assessing transition readiness from multiple perspectives yet most measures continue to lack the view of parents or healthcare providers [4,5].…”

Section: Best Practice 4: a Measure Engaging Multiple Stakeholdersmentioning

confidence: 99%

“…Measures from the parent perspective are crucial. There is an ever-changing balance between adolescent healthcare responsibility and parental involvement during the transition process [27,37,51]. Research has recognized that parents and or caregivers incorrectly perceive their AYA's feelings about transition and comfort level with their healthcare providers [27].…”

Section: Best Practice 4: a Measure Engaging Multiple Stakeholdersmentioning

confidence: 99%

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Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

Parfeniuk

Petrovic

MacIsaac

et al. 2020

Journal of Transition Medicine

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BackgroundTransition from pediatric to adult healthcare for adolescents with chronic health conditions has emerged as a critical period influencing health outcomes. Suitable transition readiness measures are necessary to facilitate effective planning. Currently, there is little consensus about well-validated transition readiness measures. The purpose of this systematic review was to identify best practices in transition readiness measurement for adolescents and young adults with chronic health conditions.Data sourcesAcademic databases searched included PubMed, Cumulative Index to Nursing and Allied Health Literature, Google Scholar and Athabasca University Library’s Discover.Study selectionArticles were included that discussed the development and psychometric properties of transition readiness measures for adolescents and young adults (11–25 years) with chronic health conditions and/or that utilized a previously developed measure.Data extractionThe primary and secondary reviewers extracted data from the selected articles as per the data extraction tool developed for this review.ResultsForty-eight articles, representing 19 tools, were included in the review. Ten of the tools were disease-specific; nine were disease-neutral. According to the Cohen criteria, eight measures were “well-established assessments”. The Transition Readiness Assessment Questionnaire was deemed the best measure of transition readiness available. The literature search included only articles published in peer-reviewed journals; measures nearing completion or awaiting publication were not included. In addition, only English manuscripts were included, many from North America.ConclusionsDespite national practice guidelines and ongoing policy development, there is slow movement towards achieving a gold standard or best-practice measure of transition readiness.

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Section: Characteristics Of Study Participants and Sample Sizesmentioning

confidence: 99%

Section: Characteristics Of Study Participants and Sample Sizesmentioning

confidence: 99%

Section: Best Practice 4: a Measure Engaging Multiple Stakeholdersmentioning

confidence: 99%

Section: Best Practice 4: a Measure Engaging Multiple Stakeholdersmentioning

confidence: 99%

See 2 more Smart Citations

Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

Parfeniuk

Petrovic

MacIsaac

et al. 2020

Journal of Transition Medicine

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“…The concept of transition emphases uninterrupted and coordinated transfer from paediatric to adult health care, combined with natural growth (White & Cooley, 2018). However, several studies have demonstrated that less than half of children with long‐term conditions possessed a satisfactory level of health and potential before transferring to adult care (Benson et al., 2018; Lebrun‐Harris et al., 2018). Lack of well‐designed preparation contributes to adverse health outcomes, such as deterioration of diseases, which increases morbidity and mortality (Garvey et al., 2017).…”

Section: Introductionmentioning

confidence: 99%

Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

Gong

Zhang

et al. 2021

Journal of Advanced Nursing

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Aim To delineate the impact of perspective of children's transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions. We used Actor–Partner Interdependence Model to identify actor effects (effect of one's own transition readiness on one's own quality of life) and partner effects (effect of one's own transition readiness on the partner's quality of life). Design A multi‐centre cross‐sectional survey. Methods The study was conducted in two paediatric hospitals in China from October 2018‐August 2019. We used a researcher‐designed questionnaire to collect demographic and clinical characteristics. Furthermore, we used four questionnaires assessing transition readiness and quality of life in child and parent respectively to collect data from 370 child–parent dyads. Structural equation modelling was applied to estimate the effect of actor–partner interdependence models. Results The total score of transition readiness had two actor effects on total child and parent quality of life controlling for age (βchildren = 3.335, p = .032 and βparents = 8.952, p < .001), while only one actor effect controlling for gender (βparents = 8.891, p < .001). Specific transition readiness dimensions had different partner effects on different domains of children and parents' quality of life. Moreover, younger children and fathers had a better quality of life. Conclusion Our study verified inherently interpersonal relationship that transition readiness appeared to influence quality of life in child–parent dyads with long‐term conditions. Impact This study was the first to verify mutual influence of transition readiness and quality of life in child–parent dyad using actor–partner interdependence model. Nurses who design the transition promoting programs should consider the effective communication between healthcare provider and child–parent dyads and support parents' involvement to improve shared understanding about managing child's condition, especially for older children and mothers.

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Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs

Anikputa,

Horner,

Betz

et al. 2025

Health Care Transitions

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Transitioning Pediatric Patients to Adult Health Care: A Quality Improvement Needs Assessment

Cited by 7 publications

References 9 publications

Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs

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