Transitions to Postsecondary Education in Young Adults with Hemoglobinopathies: Perceptions of Patients and Staff

Allemang, Brooke; Bradley, James R.; Leone, Rosemary; Henze, Megan

doi:10.1097/pq9.0000000000000349

Cited by 2 publications

(1 citation statement)

References 17 publications

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“…Previous reports have highlighted patient anxiety about not knowing where to go for their first appointment, or how to get there, 16 and the benefit to patients when introduced in person to the adult clinic in advance of their first appointment. 17 However, we did not find a difference in excess time between the Calgary and Edmonton sites, despite the co-location of paediatric and adult CHD programs in Edmonton, compared to the separate paediatric and adult sites, 15 km apart, within Calgary. It appears that patient factors and other system factors are more important determinants of timely arrival in the adult CHD clinic.…”

Section: Discussioncontrasting

confidence: 72%

Patient factors and geographic barriers influencing excess time between paediatric and adult CHD care

Patzer,

Yaskina,

Chappell

et al. 2023

Cardiol Young

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Introduction: Over 90% of children with CHD survive into adulthood and require lifelong cardiology care. Delays in care predispose patients to cardiac complications. We sought to determine the time interval to accessing adult CHD care beyond what was recommended by the referring paediatric cardiologist (excess time) and determine risk factors for prolonged excess time. Materials and Methods: Retrospective cohort study including all patients in the province of Alberta, Canada, age 16–18 years at their last paediatric cardiology visit, with moderate or complex lesions. Excess time between paediatric and adult care was defined as the interval (months) between the final paediatric visit and the first adult visit, minus the recommended interval between these appointments. Patients whose first adult CHD appointment occurred earlier than the recommended interval were assigned an excess time of zero. Results: We included 286 patients (66% male, mean age 17.6 years). Mean excess time was 7.9 ± 15.9 months. Twenty-nine (10%) had an excess time > 24 months. Not having a pacemaker (p = 0.03) and not needing cardiac medications at transfer (p = 0.02) were risk factors for excess time >3 months. Excess time was not influenced by CHD complexity. Discussion: The mean delay to first adult CHD appointment was almost 8 months longer than recommended by referring paediatric cardiologists. Not having a pacemaker and not needing cardiac medication(s) were risk factors for excess time > 3 months. Greater outpatient resources are required to accommodate the growing number of adult CHD survivors.

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Section: Discussioncontrasting

confidence: 72%