Translating Genetics Leaflets into Languages Other Than English: Lessons from an Assessment of Urdu Materials

Shaw, Alison; Ahmed, Mushtaq

doi:10.1023/b:jogc.0000035525.68249.52

Cited by 22 publications

(14 citation statements)

References 33 publications

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“…These identified and confirmed areas of challenge are not dissimilar to those identified internationally by groups in the USA and the UK (Karbani 2002;Shaw and Ahmed 2004). While the topics introduced by the facilitators to the groups were based on the researchers' assumed areas of potential challenges, the results of our discussions have confirmed the significance of recognizing these areas.…”

Section: Discussionsupporting

confidence: 68%

“…While the topics introduced by the facilitators to the groups were based on the researchers' assumed areas of potential challenges, the results of our discussions have confirmed the significance of recognizing these areas. These identified and confirmed areas of challenge are not dissimilar to those identified internationally by groups in the USA and the UK (Karbani 2002;Shaw and Ahmed 2004).…”

Section: Discussionsupporting

confidence: 62%

“…In an effort to overcome the challenges of cultural diversity and language barriers, many health services implement culturally competent practices and policies including the provision of culturally and linguistically appropriate health information aimed at improving access and equity in health systems. In Australia, this is promoted for both federal and state-based health service providers and is supported by government-funded community programs and the imple-community (Barlow-Stewart et al 2006;Browner et al 2003;Shaw and Ahmed 2004;Wang 2001;Weil 2001). This challenge is reflected in Australia, given its cultural diversity and the large number of languages spoken.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Challenges Faced by Genetics Service Providers’ Practicing in a Culturally and Linguistically Diverse Population: An Australian Experience

Saleh

Barlow‐Stewart

Meiser

et al. 2009

Journal of Genetic Counseling

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This paper explores the perceived challenges facing clinical genetics practitioners in multicultural Australia. Focus groups conducted with 53 practitioners explored: 1) participants' experiences and definitions of cultural diversity; 2) their use of educational resources with clients; 3) their experiences with culturally diverse groups/individuals in practice; 4) their experiences working with interpreters; and 5) the impact culturally specific educational training and/or experiential learning had on their confidence or practice when dealing with culturally diverse clients. Participants viewed culture as extending beyond traditional definitions such as ethnicity, language and religion. Most respondents had experienced positive results working with health care interpreters, although at times, this was a challenge for the family as they preferred privacy and the use of family members as interpreters. Another commonly reported challenge was the limited availability of reliable, culturally appropriate translated resources. Some participants expressed concern that learning theories about specific cultures may lead to stereotypes and that opportunities for formal cultural competence training were limited. Recommendations for practice include the targeting of educational resources to meet the needs of a diverse community and placing cultural competence on the agenda for ongoing training and maintenance of professional standards for clinical genetics practitioners to avoid the current ad hoc approach.

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Section: Discussionsupporting

confidence: 68%

Section: Discussionsupporting

confidence: 62%

Section: Introductionmentioning

confidence: 99%

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Challenges Faced by Genetics Service Providers’ Practicing in a Culturally and Linguistically Diverse Population: An Australian Experience

Saleh

Barlow‐Stewart

Meiser

et al. 2009

Journal of Genetic Counseling

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“…2002). Genetic conditions that may affect South Asian families in particular are thalassaemia and autosomal recessive conditions including those associated with developmental delay (Shaw & Ahmed 2004). Children who have the latter conditions have high support needs as a result of severe or profound learning impairments and associated physical and sensory impairments.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of the causes of childhood disability among Pakistani families living in the UK

Croot

Grant

Cooper

et al. 2008

Health &Amp; Social Care in the Community

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It has been well documented that South Asian families caring for a child with a disability experience discrimination and disadvantage in accessing health and social care services. This gives increasing cause for concern as the number of South Asian people with severe learning impairments in the UK continues to rise. Mainstream services are ill-equipped to provide individual services to parents who choose to define and address disability differently, and whose concerns and solutions may differ from the majority population, despite the fact that these parents possess many strengths and may present alternative ways of addressing their needs. This study aimed to provide a detailed account of the ways that Pakistani parents living in a northern city in the UK and caring for a child with a disability, account for and understand their child's disability. Sixteen in-depth interviews were carried out between October 2002 and July 2003, with Pakistani parents and one grandparent of children with a disability. All final transcripts were in English, and a thematic analysis was undertaken. Results include a detailed account of parents' understanding of the causes of their child's disability. All parents made reference to theological explanations as to why they had a child with a disability; however, most parents also gave biomedical or other explanations. The relationship between theological and biomedical explanations was explored along with the consequences of the different beliefs for individuals and families. Parents also spoke vividly about the impact of negative and stigmatizing beliefs about causes of disability which they felt were prevalent in the Pakistani community, and they used a biomedical discourse to refute these ideas. The authors suggest that knowledge of individual and family beliefs, and awareness of the impact of these beliefs, can provide a valuable conceptual lens for health and social care practitioners to use when working in family-centred, culturally congruent ways with parents.

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“…Due to the diverse population in the unit, the questionnaire was translated into Arabic and Russian by the process of "back translation" to ensure as accurate a translation as possible (Shaw & Ahmed, 2004).…”

Section: Measurementsmentioning

confidence: 99%

Perceptions of a patient-staff-caregiver group among inpatients in a radiotherapy unit

et al. 2014

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Translating Genetics Leaflets into Languages Other Than English: Lessons from an Assessment of Urdu Materials

Abstract: Genetic counselors frequently counsel clients whose first language is not English

Cited by 22 publications

References 33 publications

Challenges Faced by Genetics Service Providers’ Practicing in a Culturally and Linguistically Diverse Population: An Australian Experience

Challenges Faced by Genetics Service Providers’ Practicing in a Culturally and Linguistically Diverse Population: An Australian Experience

Perceptions of the causes of childhood disability among Pakistani families living in the UK

Perceptions of a patient-staff-caregiver group among inpatients in a radiotherapy unit

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