Translating PEARLS: Lessons Learned from Providers and Participants

Snowden, Mark; Steinman, Lesley; Piering, Pamela; Rigor, Sluggo; Yip, Andrea

doi:10.3389/fpubh.2014.00256

Cited by 4 publications

(3 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Epilepsy self-management extends beyond the clinic into the patient’s home and community, and ultimately is a synergistic partnership between a patient and their provider. Chronic disease models demonstrate that effective self-management programs and supports can be implemented in clinical and community settings [1,6,9,63–65]. In response to the Institute of Medicine’s recommendations calling for the promotion of evidence-based epilepsy self-management programs, we hope to engage epilepsy providers to serve as epilepsy self-management education disseminators and self-management program adopters.…”

Section: Discussionmentioning

confidence: 99%

Self-management in epilepsy: Why and how you should incorporate self-management in your practice

Helmers

Kobau

Sajatovic

et al. 2017

Epilepsy & Behavior

View full text Add to dashboard Cite

Section: Discussionmentioning

confidence: 99%

Self-management in epilepsy: Why and how you should incorporate self-management in your practice

Helmers

Kobau

Sajatovic

et al. 2017

Epilepsy & Behavior

View full text Add to dashboard Cite

“…This section focuses on the evolution of the evidence-based movement from the perspective of the program developers themselves Included is information regarding the processes involved in developing and taking some of the major evidence-based programs for older adults to scale, including: (1) the Stanford suite of CDSME programs ( 38 ); (2) a Matter of Balance ( 39 ); (3) stepping On ( 40 ); (4) Otago Exercise Program ( 41 ); (5) enhance fitness ( 42 ); (6) fit and strong! ( 43 ); (7) texercise ( 44 ); and (8) Program for Encouraging Active and Rewarding Lives (PEARLS) ( 45 ). Many of these programs have a long history, as exemplified by the Chronic Disease Self-Management Program (CDSMP) that has its roots as a doctoral dissertation in the 1980s ( 46 ).…”

Section: Guiding the Evidence-based Movement: Past Present And Futumentioning

confidence: 99%

Research, Practice, and Policy Perspectives on Evidence-Based Programing for Older Adults

Ory

Smith

2015

Front. Public Health

View full text Add to dashboard Cite

“…One model for community-based depression care is the Program to Encourage Active and Rewarding Lives (PEARLS) ( 20 , 21 ). Although PEARLS was created with community partners, uptake has been limited ( 22 ). This “know-do gap” ( 23 , 24 ) has been well-defined by the implementation science field, which has recently called for centering equity as the key indicator of success ( 25 ) so that efforts to increase reach do not exacerbate inequities.…”

Section: Introductionmentioning

confidence: 99%

Partnering with community-based organizations to improve equitable access to depression care for underserved older adults in the U.S.: Qualitative formative research

Steinman

Parrish

Kohn

et al. 2023

Front. Public Health

Self Cite

View full text Add to dashboard Cite

BackgroundEmbedding evidenced-based programs (EBPs) like PEARLS outside clinical settings can help reduce inequities in access to depression care. Trusted community-based organizations (CBOs) reach older adults who are underserved; however, PEARLS adoption has been limited. Implementation science has tried to close this know-do gap, however a more intentional focus on equity is needed to engage CBOs. We partnered with CBOs to better understand their resources and needs in order to design more equitable dissemination and implementation (D&I) strategies to support PEARLS adoption.MethodsWe conducted 39 interviews with 24 current and potential adopter organizations and other partners (February–September 2020). CBOs were purposively sampled for region, type, and priority older populations experiencing poverty (communities of color, linguistically diverse, rural). Using a social marketing framework, our guide explored barriers, benefits and process for PEARLS adoption; CBO capacities and needs; PEARLS acceptability and adaptations; and preferred communication channels. During COVID-19, interviews also addressed remote PEARLS delivery and changes in priorities. We conducted thematic analysis of transcripts using the rapid framework method to describe the needs and priorities of older adults who are underserved and the CBOs that engage them, and strategies, collaborations, and adaptations to integrate depression care in these contexts.ResultsDuring COVID-19, older adults relied on CBO support for basic needs such as food and housing. Isolation and depression were also urgent issues within communities, yet stigma remained for both late-life depression and depression care. CBOs wanted EBPs with cultural flexibility, stable funding, accessible training, staff investment, and fit with staff and community needs and priorities. Findings guided new dissemination strategies to better communicate how PEARLS is appropriate for organizations that engage older adults who are underserved, and what program components are core and what are adaptable to better align with organizations and communities. New implementation strategies will support organizational capacity-building through training and technical assistance, and matchmaking for funding and clinical support.DiscussionFindings support CBOs as appropriate depression care providers for older adults who are underserved, and suggest changes to communications and resources to better fit EBPs with the resources and needs of organizations and older adults. We are currently partnering with organizations in California and Washington to evaluate whether and how these D&I strategies increase equitable access to PEARLS for older adults who are underserved.

show abstract

Translating PEARLS: Lessons Learned from Providers and Participants

Cited by 4 publications

References 11 publications

Self-management in epilepsy: Why and how you should incorporate self-management in your practice

Self-management in epilepsy: Why and how you should incorporate self-management in your practice

Research, Practice, and Policy Perspectives on Evidence-Based Programing for Older Adults

Partnering with community-based organizations to improve equitable access to depression care for underserved older adults in the U.S.: Qualitative formative research

Contact Info

Product

Resources

About