Translation, Adaptation, and Validation of Chronic Kidney Disease Self-Management and Knowledge Instruments for People at Pre-Dialysis Stage in the Arab World

Almutary, Hayfa; Tayyib, Nahla

doi:10.1177/10547738211006242

Cited by 6 publications

(15 citation statements)

References 41 publications

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“…The result of test-retest analyses showed that the MCKD-SM was very stable over the 2-week period. Besides, ICC score was higher than the original [9], Vietnamese [10], Arabic [11], and Australian versions [12].…”

Section: Discussionmentioning

confidence: 71%

“…Similar to the original (α = 0.77-0.92) [9], Vietnamese (α = 0.77-0.90) [10], Arabic (α = 0.71-0.83) [11], and Australian (α = 0.72-0.85) [12] versions, Cronbach's α for all factors in MCKD-SM are reasonably high and reliable to measure self-management behaviour in the Malay-speaking population. The result of test-retest analyses showed that the MCKD-SM was very stable over the 2-week period.…”

Section: Discussionmentioning

confidence: 72%

“…The four-point Likert scale was deployed for all items; 1 (never) to 4 (always). The total scores for each factor are as follows: Self-integration (11-44), Problem-solving (9-36), Seeking Social Support (5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20), and Adherence to Recommended Regimen (4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16). The overall score is between 29 and 116, whereby higher scores signify better CKD self-management behaviour.…”

Section: Instrumentsmentioning

confidence: 99%

“…The CKD-SM can be used to assess how patients self-manage their CKD and to develop more relevant, patient-centred teaching and implement interventions tailored to the needs of individual patients. The CKD-SM has been recently translated, culturally adapted, and validated in both Vietnamese and Arabic languages to enable the measurement of self-management behaviour for all CKD stages [10,11]. Additionally, the reliability and validity of the modi ed CKD-SM was assessed in Australian context as well [12].…”

Section: Introductionmentioning

confidence: 99%

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Cultural Adaptation and Validation of the Malay Chronic Kidney Disease Self-Management Instrument (MCKD-SM)

Ali

Lim

Tang

et al. 2021

Preprint

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Background: There is growing evidence that self‐management behaviour can improve outcomes for patients with chronic kidney disease (CKD). However, there are no measures available in Malay to effectively assess self-management of CKD. The aim of this study was to translate, culturally adapt, and validate the Malay Chronic Kidney Disease Self-Management (MCKD-SM) for Malay-speaking health professionals and patients. Methods: This study was carried out in two phases: translation and cultural adaptation, and validation. Instruments were translated from English to Malay then adapted and validated in a sample of 337 patients with CKD stages 3-4 attending a nephrology clinic in a tertiary hospital in Malaysia. Construct validity was evaluated by exploratory factor analysis. Reliability of the instrument was assessed by internal consistency and test‐retest reliability. The correlations between MCKD-SM and kidney disease knowledge, MCKD-SM and self-efficacy were hypothesised a priori and investigated. Results: The Malay version of the Chronic Kidney Disease Self-Management instrument has 29 items grouped into three factors: “Understanding and Managing my CKD”, “Seeking Support” and “Adherence to Recommended Regimen”. The three factors accounted for 56.3 % of the total variance. Each factor showed acceptable internal reliability with Cronbach’s α from 0.885-0.960. 2-week intra-rater test-retest reliability intraclass correlation coefficient values for all items ranged between 0.938 to 1.000. MCKD-SM scores significantly correlates with kidney disease knowledge (r = 0.366, p < 0.01) and self-efficacy (r = 0.212, p < 0.01).Conclusion: The Malay version of the CKD-SM was found to be a valid and reliable patient‐reported outcome measure of pre-dialysis CKD self-management behaviour in the Malay-speaking population.

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Section: Discussionmentioning

confidence: 71%

Section: Discussionmentioning

confidence: 72%

Section: Instrumentsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Cultural Adaptation and Validation of the Malay Chronic Kidney Disease Self-Management Instrument (MCKD-SM)

Ali

Lim

Tang

et al. 2021

Preprint

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“…Both instruments were translated into Arabic using the backward translation technique and validated in patients with CKD [ 31 ]. The internal consistency of the Arabic version of the KiKS and CKD-SM-29 was 0.75 and 0.91, respectively.…”

Section: Methodsmentioning

confidence: 99%

Factors Influencing Self-Management among Non-Dialysis Chronic Kidney Disease Patients

Almutary

Tayyib

2022

Healthcare

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Aim: The new trend in the management of chronic kidney disease (CKD) is based on the adoption of self-management approaches. However, there is a paucity of research assessing the level of self-management behavior among non-dialysis patients. The aim of the study is to assess the association between self-management behaviors and the level of disease-specific knowledge among non-dialysis CKD patients. In addition, this study aimed to assess the predictors of self-management among non-CKD patients. Methods: A convenience sample of 203 non-dialysis patients with stage 3–5 CKD was surveyed from the nephrology clinics in Saudi Arabia. Descriptive statistics and linear regression were used to analyze the data. Results: The mean level of knowledge and self-management was 17.9 ± 3.2 and 76.9 ± 13.3, respectively. The results of the multiple regression of self-management showed that knowledge was independently associated with self-management (r = 0.51, **, p < 0.001). Conclusions: This study demonstrated that knowledge and self-management were associated with each other in non-dialysis patients. More efforts are needed to track and enhance the knowledge levels in patients with CKD. Future research should focus on the effectiveness of educational programs of self-management behavior.

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Assessment of kidney disease knowledge among chronic kidney disease patients in the Kingdom of Saudi Arabia

Almutary

2021

Journal of Renal Care

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Background The persistent global increase in chronic kidney disease (CKD) prevalence highlights the importance of providing patients with sufficient knowledge to allow them to self‐manage their disease. Objectives To gain insights into non‐dialysis CKD patients' knowledge of their disease, and assess associations between knowledge and sample characteristics. Design A descriptive cross‐sectional design was undertaken. Participants A convenience sample of 203 stages 3–5 CKD patients was recruited. Measurements The Kidney Disease Knowledge Survey (KiKs) was used. Results This study revealed that the mean age of the patients was 47.34 years. 50.2% were male and most (75.9%) were married. The mean score of knowledge (measured using KiKs) relating to kidney disease was 17.87 ± 3.212. The lowest scores were related to knowledge of effects of proteinuria (13.3%), meanings of “glomerular filtration rate” (29.6%) and “targeted blood pressure” (31.5%). Although more than 60% of participants knew about some kidney functions, they misunderstood others, including those related to glucose control (23.6%) and blood pressure (54.7%). Patients displayed knowledge scores >70% for five other areas, including disease stage and time since diagnosis. Almost all participants did not know that chronic kidney disease (CKD) could be asymptomatic. The results showed that late‐stage CKD (Stages 4 and 5) and longer time since diagnosis of CKD were independently associated with a higher score of knowledge (r = 0.18, p = 0.017; r = 0.41, p < 0.001; r = 0.26, p = 0.001, respectively). Conclusions This study provided initial insights on CKD‐related knowledge among patients with Stage 3–5 CKD in the Kingdom of Saudi Arabia. Many gaps in knowledge were identified, especially those relating to blood pressure. More studies are required to fully understand the extent of the knowledge deficit in the wider population; however, these findings will allow nurses to address significant gaps.

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Translation, Adaptation, and Validation of Chronic Kidney Disease Self-Management and Knowledge Instruments for People at Pre-Dialysis Stage in the Arab World

Cited by 6 publications

References 41 publications

Cultural Adaptation and Validation of the Malay Chronic Kidney Disease Self-Management Instrument (MCKD-SM)

Cultural Adaptation and Validation of the Malay Chronic Kidney Disease Self-Management Instrument (MCKD-SM)

Factors Influencing Self-Management among Non-Dialysis Chronic Kidney Disease Patients

Assessment of kidney disease knowledge among chronic kidney disease patients in the Kingdom of Saudi Arabia

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