Translation and Linguistic Validation of the Caregiver Quality of Life Cystic Fibrosis Scale (Cqolcf) and the Multidimensional Scale of Perceived Social Support (Mspss) for use in Germany and the United Kingdom (Uk)

Abstract

in particular areas. Participants performed a Visual Analog Scale valuation of five EQ-5D health states: one severe, two mild and two medium. Health states were described generically. Only better-than-death valuations were taken into account. Individuals valuing a state as worse than death were excluded from that state. Results: The total number of valid observations for each heath state fell between 100 and 110, with the exception of the severe state (62). Results were different depending on healthstate and test. Gallup's ladder and life satisfaction tests were not correlated with any valuation. A medium health state was not correlated to any happiness test. Severe states were more correlated to emotions than milder states. "Not very happy" people in the Global happiness test had lower valuations for a mild state (rho= -0.224, p< 0.10). Positive affects were negatively correlated with valuations. (rho= -0.306, -.0252, p< 0.05, p< 0.10, rho= 0.335, p< 0.05, rho= -282, p< 0.05). Negative affects increased valuations of a medium and a mild states (rho= 0.25, 0.313, p< 0.10). Satisfaction in particular areas of life also had an impact on extreme states. ConClusions: Some states, but not all, seem to be more easily affected by emotional variables. The results suggest that more severe health states are valued higher when the respondent has had negative affects, and lower when she has had positive affects.

Factors associated with quality of life for cystic fibrosis family caregivers

“…The CQOLCF has been translated for use in several countries [ 51 ]. To our knowledge, no prior study has been conducted regarding the factor structure of the CQOLCF.…”