Translation and validation of the Portuguese version of the Keratoconus Outcomes Research Questionnaire (KORQ)

Quality of life of a sample of people with keratoconus in KSA

“…These findings are consistent with previous findings linking vision-associated QoL scores to vision in the better eye. 9 , 11 , 22 , 25 Keratoconus progressively diminishes vision quality, 8 , 13 in agreement with findings that distance-corrected or binocular entrance visual acuity less than 20/40, corneal thinning to less than 460 μm in the better eye, and an average refractive cylinder of less than 2.5 dioptres, are associated with severe deterioration in all vision-associated QoL scores, 8 , 9 , 10 except ocular pain and general health. 8 All regions other than the northern region had higher odds of better QoL scores, and the eastern region had almost twice the odds of both the western and southern regions.…”

“…Despite its low prevalence, keratoconus has substantial costs regarding quality of life. 8 , 9 , 13 This study indicated that 32% of patients experienced more than moderate activity limitations, and 48% experienced more than moderate discomfort due to the symptoms. These findings are critical, given the young ages of the respondents.…”

“…Although keratoconus is a low-prevalence disease that rarely results in blindness, its quality-of-life costs, particularly because it affects young adults and progresses through life, 4 are disproportionately higher than both its clinical severity and prevalence. 8 , 9 Even with acceptable visual acuity, patients with keratoconus show visual-related QoL scores comparable to those for advanced age-related macular degeneration. 10 , 11 This study evaluated a cross-sectional cohort of patients with keratoconus in KSA by using the KORQ tool.…”

“…Patients with a history of cross-linking treatment had better function scores and symptom scores that were statistically associated with best-corrected visual function. 9 …”