Translation, Cultural Adaptation and Validation of the Kidney Disease Quality of Life–Short Form 1.3 in an African Country

Bouidida, B.; Rhou, H.; Ezaitouni, F.; Ouzeddoun, N.; Bayahia, R.; Elhajji, K.; Roudiès, R.; Sekkat, Fatima Zahra; Razine, R.; Abouqal, Rédouane; Alghadi, A.; Azennoud, A.; Benamar, L.

doi:10.1016/j.transproceed.2014.02.011

Cited by 9 publications

(3 citation statements)

References 15 publications

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“…There was strong evidence of internal consistency and structural validity [43]. Moderate evidence was found for test-retest reliability [44, 45] and hypothesis testing [46] while there was limited evidence for content validity [47]. Responsiveness was rated as 'unknown' [48].…”

Section: Resultsmentioning

confidence: 99%

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Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

et al. 2017

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BackgroundPatient-reported outcome measures (PROMs) can provide valuable information which may assist with the care of patients with chronic kidney disease (CKD). However, given the large number of measures available, it is unclear which PROMs are suitable for use in research or clinical practice. To address this we comprehensively evaluated studies that assessed the measurement properties of PROMs in adults with CKD.MethodsFour databases were searched; reference list and citation searching of included studies was also conducted. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist was used to appraise the methodological quality of the included studies and to inform a best evidence synthesis for each PROM.ResultsThe search strategy retrieved 3,702 titles/abstracts. After 288 duplicates were removed, 3,414 abstracts were screened and 71 full-text articles were retrieved for further review. Of these, 24 full-text articles were excluded as they did not meet the eligibility criteria. Following reference list and citation searching, 19 articles were retrieved bringing the total number of papers included in the final analysis to 66. There was strong evidence supporting internal consistency and moderate evidence supporting construct validity for the Kidney Disease Quality of Life-36 (KDQOL-36) in pre-dialysis patients. In the dialysis population, the KDQOL-Short Form (KDQOL-SF) had strong evidence for internal consistency and structural validity and moderate evidence for test-retest reliability and construct validity while the KDQOL-36 had moderate evidence of internal consistency, test-retest reliability and construct validity. The End Stage Renal Disease-Symptom Checklist Transplantation Module (ESRD-SCLTM) demonstrated strong evidence for internal consistency and moderate evidence for test-retest reliability, structural and construct validity in renal transplant recipients.ConclusionsWe suggest considering the KDQOL-36 for use in pre-dialysis patients; the KDQOL-SF or KDQOL-36 for dialysis patients and the ESRD-SCLTM for use in transplant recipients. However, further research is required to evaluate the measurement error, structural validity, responsiveness and patient acceptability of PROMs used in CKD.

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Section: Resultsmentioning

confidence: 99%

“…The translations conducted by 20 studies [33, 35, 39, 42, 44–46, 48, 51, 53, 57, 65, 72, 77, 85, 88, 92, 94, 96, 102] were rated as good, while the translations by 4 studies [66, 67, 82, 91] were rated as fair and 1 translation was rated as poor [79]. …”

Section: Resultsmentioning

confidence: 99%

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

et al. 2017

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“…Data related to the QOL were collected using the KDQOL SF v 1.3 scale previously validated in dialectal Arabic. 25 The kidney disease quality of life (KDQOL) is a kidney disease-specific HRQOL instrument.…”

Section: Data Collection and Variablesmentioning

confidence: 99%

Comparison of quality of life in end‐stage renal disease patients undergoing hemodialysis and peritoneal dialysis in a Moroccan city

Alaoui

Touti

Borgi

et al. 2021

Seminars in Dialysis

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Purpose: End-stage renal disease patients (ESRD) generally complain about a poor quality of life (QOL). The current study aims to describe and compare ESRD patients' QOL according to dialysis modalities (hemodialysis [HD] and peritoneal dialysis [PD]).Methods: This is a cross-sectional study, conducted in dialysis facilities of a Moroccan university hospital, during October 2018. All adult ESRD patients, treated either by HD or PD for more than 3 months and agreeing to participate, were included. Medical data were collected using a questionnaire, whereas the QOL data were collected using the Kidney Disease Quality of Life Short Form (KDQOL SF v 1.3) scale previously validated in dialectal Arabic. The patients' characteristics and QOL data were compared between dialysis modalities (HD vs. PD), using a linear regression, before and after adjustment on several demographic and medical factors as well as a propensity score created to reduce the effect of confounding factors related to the choice of the treatment.Results: Out of the 91 included patients (50.5% of men, median age 52.0 (IQR [36.5; 62.0]) years), 71 were on HD and 20 were on PD. The highest subscale score, for all participants, was the social support's one with a median of 83.3 (IQR [66.7; 100]), and the lowest one was the kidney disease burden with a median of 25.0 (IQR [0.00; 46.9]). The univariate analysis showed that the Physical Component Score (PCS), the cognitive function, and the dialysis staff encouragement were better in PD patients (p = 0.03, p = 0.04, and p = 0.007, respectively), while the multiple linear regression indicates that the PCS, the dialysis Staff encouragement, and the patient's satisfaction subscores decreased within patients on HD compared with those on PD (p = 0.01, p = 0.03, and p = 0.02, respectively) and that the burden of the kidney disease and the work status subscores increased within patients on HD against those on PD (p = 0.007 and p = 0.04, respectively). Conclusion:This study showed a significant difference between dialysis modalities in some sides of quality of life.

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Cross-cultural adaptation and psychometric properties of patient-reported outcome measures in Arabic speaking countries: A scoping review

Al-Ebrahim¹,

Harrison²,

Chen³

et al. 2023

Research in Social and Administrative Pharmacy

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Translation, Cultural Adaptation and Validation of the Kidney Disease Quality of Life–Short Form 1.3 in an African Country

Cited by 9 publications

References 15 publications

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review

Comparison of quality of life in end‐stage renal disease patients undergoing hemodialysis and peritoneal dialysis in a Moroccan city

Cross-cultural adaptation and psychometric properties of patient-reported outcome measures in Arabic speaking countries: A scoping review

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