Translation into Portuguese, cross-cultural adaptation and validation of “The European Organization for Research and Treatment of Cancer—Quality of Life Questionnaire—Bone Metastases-22”

Miki-Rosário, Natália; Filho, Reynaldo Jesus Garcia; Garcia, Jairo Greco; Dini, Gal Moreira; Bottomley, Andrew; Chow, Edward; Neto, Miguel Sabino

doi:10.21037/apm.2016.06.02

Cited by 4 publications

(10 citation statements)

References 16 publications

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“…First, the longitudinal administration of the same tool to patients with BM in seven occasions over a 2-year period represents a solid assessment of the user-acceptance, respondent burden of the tool, and stability of the measurement. As aforementioned, this contrasts with other studies which include just one or two follow-ups over periods of time under 1 year [9, 16, 18, 23, 26], with the exception of Jordhøy and colleagues who followed 395 patients for 2 years [29]. Second, our main overall outcome, patients´ HRQoL, was assessed by three methods in addition to BOMET-QoL-10: the doctor’s perception, the patient’s perception, and the VAS score.…”

Section: Discussionmentioning

confidence: 85%

“…Recently, Lin and Pakpour (2016) [24] performed a psychometric evaluation of QLQ-BM22 based on a pre-treatment single administration of a pooled sample of 573 BM patients from 8 countries. Miki-Rosário and colleagues (2016), [26] validated the Brazilian Portuguese translation of the QLQ-BM22 based on a sample of 95 men and women with BM derived from 9 different cancers. Reliability, face and content validity were assessed based on 40 patients over three administrations of the module.…”

Section: Discussionmentioning

confidence: 99%

“…This is the result of an initial small sample size compounded by a much higher lost-to-follow-up rate (51.7%) than anticipated (20%). However, recent adaptation and validation studies of HRQoL instruments as well as HRQoL assessments of palliative care patients have been based on small samples followed for short periods of time ranging from 1 to 6 months [9, 23, 26].…”

Section: Discussionmentioning

confidence: 99%

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BOMET-QoL-10 questionnaire for breast cancer patients with bone metastasis: the prospective MABOMET GEICAM study

Barnadas

Muñoz

Margelı́

et al. 2019

J Patient Rep Outcomes

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BackgroundBone metastasis (BM) is the most common site of disease in metastatic breast cancer (MBC) patients. BM impacts health-related quality of life (HRQoL). We tested prospectively the psychometric properties of the Bone Metastasis Quality of Life (BOMET-QoL-10) measure on MBC patients with BM.MethodsPatients completed the BOMET-QoL-10 questionnaire, the Visual Analogue Scale (VAS) for pain, and a self-perceived health status item at baseline and at follow-up visits. We performed psychometric tests and calculated the effect size of specific BM treatment on patients´ HRQoL.ResultsAlmost 70% of the 172 patients reported symptoms, 23.3% experienced irruptive pain, and over half were receiving chemotherapy. BOMET-QoL-10 proved to be a quick assessment tool performing well in readability and completion time (about 10 min) with 0–1.2% of missing/invalid data. Although BOMET-QoL-10 scores remained fairly stable during study visits, differences were observed for patient subgroups (e.g., with or without skeletal-related events or adverse effects). Scores were significantly correlated with physician-reported patient status, patient-reported pain, symptoms, and perceived health status. BOMET-QoL-10 scores also varied prospectively according to changes in pain intensity.ConclusionsBOMET-QoL-10 performed well as a brief, easy-to-administer, useful, and sensitive HRQoL measure for potential use for clinical practice with MBC patients.Trial registrationNCT03847220. Retrospectively registered on clinicaltrials.gov (February the 20th 2019).

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Section: Discussionmentioning

confidence: 85%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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BOMET-QoL-10 questionnaire for breast cancer patients with bone metastasis: the prospective MABOMET GEICAM study

Barnadas

Muñoz

Margelı́

et al. 2019

J Patient Rep Outcomes

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“…Embora essa diferença não demonstre a importância e eficácia dos CPs precoces, o seu impacto para melhora da QV e manejo de sintomas já foi comprovado (BAKITAS et al, 2009;TEMEL et al, 2010 -ROSÁRIO et al, 2016). Além disso, a pressão do tempo na prática clínica requer o uso de medidas curtas (por exemplo, que tenham de seis a 10 itens) e que são fáceis de administrar e interpretar para direcionar as decisões clínicas (EVANS et al, 2013).…”

Section: A Validade Convergente Da Pos-brunclassified

“…A compreensão do paciente acerca do processo de comunicação é continuamente modificada conforme novas informações são apresentadas nas consultas clínicas (KISSANE et al, 2012;MIKI-ROSÁRIO et al, 2016). A presença de sintomas de ansiedade e depressão influencia na compreensão adequada dessas informações (DELGADO-SANZ et al, 2011).…”

Section: Validade De Construto Da Pos-brunclassified

Validação da versão adaptada para o português do Brasil da <i>Palliative care Outcome Scale</i> (POS)

Rugno¹

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por seu zelo, apoio e encorajamento constantes. Você é a minha maior torcedora! * Minha avó, Maria Martinez Capella, por manter sua fé inabalável em mim. Você é o meu Pallium, o meu refúgio! * Meu companheiro de vida, Lucas Spina, por me amar acima de todas as falhas e imperfeições. Você é quem revela o que há de melhor em mim! * Minha prima, Érika Capella Fernandes, por me impulsionar e me desafiar intelectualmente. Você é a minha amiga mais verdadeira! * Meu primo de coração, Daniel Lemos de Oliveira Mattosinho, pelas trocas de experiências acadêmica e profissional. Você é quem divide comigo o mesmo desejo de evoluir! * Minha avó do coração, Eunice Thomaselli, por me acolher em seus braços com toda ternura e desvelo. Você é o meu exemplo de perseverança! * Minha tia, Rosmari Aparecida Capella Fernandes, por seu carinho e por contribuir com o meu repertório terapêutico ocupacional. Você estimula a minha criatividade! * Meu tio, Luís Henrique Fernandes, por manter-se presente e interessado na minha trajetória. Você fomenta em mim a dedicação para a docência! * Meu avô, Florisvaldo Capella, por me ensinar o valor do passado para a construção do meu futuro. São as lembranças do nosso tempo juntos que permitem que eu suporte a sua falta. Você é a razão das minhas escolhas! Agradecimentos À minha orientadora, Profa. Dra. Marysia Mara Rodrigues do Prado De Carlo, pelas conversas, trocas e orientações frequentes e assertivas; seu voto de confiança e apoio possibilitaram a continuação da minha trajetória acadêmica e profissional em Ribeirão Preto. Aos membros da Banca de Qualificação, Profa. Dra. Claudia Benedita dos Santos e Profa. Dra. Nereida Kilza da Costa Lima, por dividirem comigo suas experiências e conhecimento. As contribuições para o aprimoramento deste projeto foram imensuráveis. A Ms. Fernanda Ribeiro Correio, por iniciar o processo de tradução e adaptação cultural da POS-Br e por compartilhar as alegrias e os desafios enfrentados ao longo da pósgraduação. Aos participantes do estudo, por tornarem possível o desenvolvimento e finalização desse projeto. Vocês compartilharam comigo seus pensamentos e emoções! Levo um pouco de cada um de vocês no meu coração! Aos colaboradores da coleta de dados, Thais Fernanda Oliveira e Gabriela Rezende, pela disponibilidade, empenho e interesse em fazer parte deste processo. Ao estatístico Bernardo dos Santos, pela paciência e pelo aprendizado compartilhado durante as análises estatísticas. À Equipe do Serviço de Oncologia Clínica e ao Grupo de Cuidados Paliativos do HCFMRP-USP por conceder o espaço físico e facilitar a coleta de dados da pesquisa. À Secretária do Programa de Pós-graduação Enfermagem em Saúde Pública, Shirley Figueiredo, pelas trocas de e-mail, pelo carinho e apoio em todos os momentos. Aos Professores Sadao Omote e Cristina Yoshie Toyoda, por fomentarem em mim o desejo de ser Melhor (melhor pessoa, melhor profissional, melhor pesquisadora e melhor docente). Epígrafe "Não sejas o de hoje. Não suspires por ontens... não queiras ser o de amanhã. Faze-te sem li...

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Measurement properties of health-related quality of life measures for people living with metastatic disease of the spine: a systematic review

Qiao,

Ding,

et al. 2023

International Journal of Surgery

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Purpose: Patients with spinal metastases (SM) suffer from a significant quality of life (QoL) deterioration. The measurement of QoL has garnered significant attention. In this study, we aimed to investigate the frequency of QoL measurement, systematically appraise the measurement properties of identified instruments, and facilitate the effective selection of an appropriate QoL instrument for patients with SM. Methods: This systematic review adhered to the newly revised Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) statement guidelines. The methodological quality of studies was assessed using the Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) checklist. Measurement property results were assessed using the adapted criteria. Each measurement property was allocated a separate rating (excellent, good, fair, or poor). “Best evidence synthesis” was performed using COSMIN outcomes and the quality of findings. Result: Two hundred and nine publications were included, and 18 instruments were identified. ECOG, EuroQol-5D, SF-36, SOSGOQ, and EORTC-QLQ-C30 were the top five instruments used for patients with SM in published literature. The measurement properties evaluated included internal consistency (four instruments), reliability (three instruments), validity (five instruments), validity (nine measures), floor and ceiling effects (four instruments), responsiveness (four instruments), and interpretability (three measures). Based on the limited evidence, Brief Pain Inventory (BPI) had the best methodological quality. Conclusions: Owing to the limitation of BPI in assessment domains, we cannot fully support the use of BPI. For the lack of high-quality research, it is challenging to nominate a single appropriate measure. Additional studies needed to explore the evidence before a confirmatory decision is made.

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Translation into Portuguese, cross-cultural adaptation and validation of “The European Organization for Research and Treatment of Cancer—Quality of Life Questionnaire—Bone Metastases-22”

Abstract: The EORTC QLQ-BM22 was translated into Brazilian Portuguese, was culturally adapted and was proven to be reliable, with face, content and construct validity.

Cited by 4 publications

References 16 publications

BOMET-QoL-10 questionnaire for breast cancer patients with bone metastasis: the prospective MABOMET GEICAM study

BOMET-QoL-10 questionnaire for breast cancer patients with bone metastasis: the prospective MABOMET GEICAM study

Validação da versão adaptada para o português do Brasil da <i>Palliative care Outcome Scale</i> (POS)

Measurement properties of health-related quality of life measures for people living with metastatic disease of the spine: a systematic review

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