Treatment of feet deformities in epidermolysis bullosa

Sternick, Marcelo Back; Formentini, Pierina Kaneno Ishida; Souza, Gustavo Moreira Costa de; Teixeira, Eduardo Cembranelli; Filho, Ildeu Afonso de Almeida; Costa, Sirlene Maria da

doi:10.1007/s00264-016-3135-1

Cited by 7 publications

(15 citation statements)

References 11 publications

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“… Foot surgery for joint contracture deformity release and digital amputation can be successfully performed in EB and may benefit patients by reducing pain, improving ability to wear shoes and improving mobility (Quality evidence level 3) …”

Section: Recommendationsmentioning

confidence: 99%

“…These complications occur to a lesser degree and later in RDEB generalized intermediate. Cutaneous scarring can also lead to joint contractures and deformities in the feet, resulting in reduced mobility and pain (Quality evidence level 3) …”

Section: Recommendationsmentioning

confidence: 99%

“…The release of pseudosyndactyly makes it easier to wear normal footwear and it is of psychological benefit to the patient to observe a ‘normal’ foot with five toes (Quality evidence level 3) . Improvements were seen for several years, but due to the progression of the EB reoccurrence was likely. Despite the long‐term complications of surgery, early extension procedures to address contractures of the toes and equinus and cavus deformities using soft‐tissue surgery were recommended by the experts reviewing six cases (Quality evidence level 3) In a case study of foot syndactyly in six patients with RDEB, the main foot surgery goal was to reduce extreme flexion or extension contractures to allow the patient to wear shoes and ambulate comfortably (Quality evidence level 3) …”

Section: Recommendationsmentioning

confidence: 99%

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Foot care in epidermolysis bullosa: evidence‐based guideline

et al. 2019

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Summary This guideline was designed to provide service providers and users with an evidence‐based set of current best practice guidelines for people and their families and carers, living with epidermolysis bullosa (EB). A systematic literature review relating to the podiatric care of patients with EB was undertaken. Search terms were used, for which the most recent articles relating to podiatric treatment were identified from as early as 1979 to the present day, across seven electronic search engines: MEDLINE, Wiley Online Library, Google Scholar, Athens, ResearchGate, Net and PubFacts.com. The Scottish Intercollegiate Guidelines Network (SIGN) methodology was used. The first guideline draft was analysed and discussed by clinical experts, methodologists and patients and their representatives at four panel meetings. The resulting document went through an external review process by a panel of experts, other healthcare professionals, patient representatives and lay reviewers. The final document will be piloted in three different centres in the U.K. and Australia. Following an EB community international survey the outcomes indicated six main areas that the community indicated as a priority to foot management. These include blistering and wound management, exploring the most suitable footwear and hosiery for EB, management of dystrophic nails, hyperkeratosis (callus), maintaining mobility and fusion of toes (pseudosyndactyly). The evidence here is limited but several interventions currently practised by podiatrists show positive outcomes.

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Section: Recommendationsmentioning

confidence: 99%

Section: Recommendationsmentioning

confidence: 99%

Section: Recommendationsmentioning

confidence: 99%

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Foot care in epidermolysis bullosa: evidence‐based guideline

et al. 2019

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“…El manejo debe ser individualizado y multidisciplinario, con buen apoyo de curas, ortopédico y nutricional 10 .…”

Section: Genodermatosis Ictiosisunclassified

Los pies en los niños

Prado¹,

Laguna²

2017

Más Dermatol

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REsuMENLos pies representan una zona anatómica muy especial. Se encuentran sometidos a constantes traumatismos en cada paso que damos y además sufren la oclusión, la sudo ración y la fricción constante del calzado. La patología dermatológica que afecta a los pies es superponible a la que encontramos en otras localizaciones; sin embargo, existen algunas patologías que tienen predilección o características especiales, como por ejemplo las verrugas plantares. Además, tienen una mayor repercusión en la calidad de vida de los pacientes, ya que afectan a la marcha y por lo tanto a la movilidad. Un problema asociado que suelen tener los pacientes es a quién acudir, ya que las enfermedades del pie no están del todo delimitadas y por ello existen diferentes especialistas que comparten y manejan dicha patología.Palabras clave: dermatosis del pie, micosis, dermatitis atópica, patología ungueal. AbsTRACTThe feet are a very special anatomical area. With every step we take, they are constantly subject of different traumas, apart from the continuous occlusion, sweating and friction with the shoes. The dermatological disorders affecting the feet is similar to that affecting other parts of the body; Nevertheless, there are many pathologies which are more likely to take place on the feet or have special characteristics such as the plantar warts. Besides, this has a direct effect on patients' quality of life, provided that it affects their ability to walk and, therefore, their mobility. A recurring associated problem raised by the patients is that they do not know who to resort to for help, since the feet pathology is not clearly delimited and therefore there are different professionals that share and manage such pathology.Keywords: skin disorders, feet, inflammatory disorders, ungueal pathology. Los pies en los niños artículo de revisión Fátima Albizuri PradoSección de Dermatología Pediátrica. Hospital Universitario La Paz. Madrid. Raúl de Lucas LagunaSección de Dermatología Pediátrica. Hospital Universitario La Paz. Madrid.© Editorial Glosa, S.L. Autorizado el uso en el ámbito académico o docente según lo previsto por la Ley de Propiedad Intelectual. Un problema asociado que suelen tener los pacientes es que la patología del pie no está del todo delimitada y por ello existen diferentes especialistas que comparten y manejan dicha localización. Entre médicos generales, podólogos, dermatólogos y traumatólogos, no es raro encontrarnos a pacientes que han visitado a más de un especialista antes de acudir a nuestra consulta. En este artí-culo se exponen las patologías cutáneas del pie más frecuentes en las consultas de dermatología infantil y probablemente también podológicas, así como las manifestaciones cutáneas de los pies, de patologías más complejas como las genodermatosis. Para ello hemos clasificado dichas patologías en diferentes bloques: dermatosis de origen exógeno, dermatosis inflamatorias, infecciosas, tumores y anomalías vasculares, genodermatosis y miscelánea. DERMATOsIs DE ORIGEN ExÓGENO Helomas y tilomasEl heloma duro ...

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“…Other communications are related to new implants that would help in rare and difficult cases [4,5]. We also communicate on conditions that are frequent in some parts of the globe and could help our readership in recognizing or managing such situations [6,7]. As participants to the scientific life of our community we also try to stimulate our readers and authors to provide reliable information for the patients.…”

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confidence: 99%