Treatment-Seeking, Aspects of Sexual Activity and Life Satisfaction in Men with Laser-Treated Penile Carcinoma

Skeppner, Elisabet; Windahl, Torgny; Andersson, Swen‐Olof; Fugl-Meyer, Kerstin

doi:10.1016/j.eururo.2007.10.028

Cited by 65 publications

(32 citation statements)

References 23 publications

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“…Both under and overtreatment can have considerable short and longer term repercussions. It is established that conservative surgery is associated with an increased quality of life 4 …”

mentioning

confidence: 99%

The development of a supraregional network for the management of penile cancer

Kumar

Singh

Goddard

et al. 2012

annals

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INTRODUCTION Although its incidence is increasing, penile cancer remains a rare disease in the UK. In view of this low volume, the National Institute for Clinical Excellence recommended that treatment is centralised in a limited number of centres arranged as supraregional networks. The aim of this centralisation is to allow the best standardised treatment for the primary tumours and nodal disease, thereby avoiding under or overtreatment. In this paper we review the formation and functioning of our network in the East Midlands. METHODS Data were collected up to August 2010 from our prospective penile network database since its inception in 2005. These data were analysed to see our workload, patterns of referral and surgeries performed over this time period. RESULTS The structure and function of the East Midlands network are described. There has been an increase in the number of cases discussed since its formation. There has also been a trend towards more conservative surgery, both of the primary tumour and of nodal management. Between September 2009 and August 2010, 16 glansectomies were performed versus 5 total and 9 partial penectomies. The same period saw 18 dynamic sentinel lymph node biopsies against 7 bilateral and 3 unilateral superficial groin dissections. There was a very high patient satisfaction rate, with patients feeling they had good support and information. CONCLUSIONS On reviewing the literature it can be clearly seen that supraregional networks have led to a decrease in overtreatment and better recognition of the need to manage lymph node status optimally. Our network has demonstrated the trend toward conservative surgery and sentinel node biopsy. The formation of supraregional networks with a multidisciplinary approach will facilitate high volume centres that will offer optimal surgical therapy and also allow recruitment into studies and new chemotherapeutic regimens. It will also allow better data collection to aid clinical studies that hopefully will also demonstrate better outcomes.

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“…Both under and overtreatment can have considerable short and longer term repercussions. It is established that conservative surgery is associated with an increased quality of life 4 …”

mentioning

confidence: 99%

The development of a supraregional network for the management of penile cancer

Kumar

Singh

Goddard

et al. 2012

annals

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“…In the 2001 guidelines [19] , no studies are cited even though at least three were available. In 2004 [20] , the Italian study [14] is cited and in 2009 [1] the Swedish and second Brazilian studies [11,13] are cited although the Italian study is omitted. Such inconsistences and the limited number of studies used in the guidelines could be viewed as an indication that more good quality, in depth data are required.…”

Section: Resultsmentioning

confidence: 99%

“…There were 5 borderline studies (across 8 publications [11][12][13][14][15][16][17][18] ) from 4 countries (see Table 1). Each borderline study combined interviews with psychometric measures, and such research could potentially be included in a qualitative synthesis.…”

Section: Search Outcomementioning

confidence: 99%

“…In the most recent of two Brazilian studies [11] , the interview would be better termed a "clinical interview" because it was used to measure the penile shaft and assess complications post-surgery. In a Swedish study [12,13] , they conduct "structured interviews" where they deliver a questionnaire to the participant verbally. In an Italian study [14] , the interview reported was with a physician whose role appeared to be to answer questions about the study and/or explain any of the items in the psychometric measures with which the participant had difficulties.…”

Section: Borderline Studiesmentioning

confidence: 99%

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Clinical practice as research for a rare condition: systematic research review of qualitative research exploring patients’ experiences of penile cancer

Branney

Raine²,

Witty³

et al. 2013

Clinical Nursing Studies

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Background: Penile cancer is a rare but destructive malignancy. The aim of this study was to identify published qualitative research exploring patients' experiences of being diagnosed and treated for penile cancer. As only one study met our inclusion criteria and yet there were five borderline studies, a secondary aim that emerged was to discuss those studies to see what, if anything, we could learn. Methods:We searched ASSIA, CINAHL, EMBASE, PUBMED/MEDLINE, PsycINFO & Web of Science and found 313 papers published since 1990. Two reviewers independently selected 17 papers for potential inclusion using titles and abstracts, which were obtained and independently assessed. A synthesis was not possible as only one study met our inclusion criteria. Five borderline studies, covering 4 countries, invited closer inspection because they are often reported in guidelines on penile cancer. Results:The 5 borderline studies reported using a mixed methods design combining a psychometric measure with interviews. Unfortunately, none of these studies reported the method or process used for analysing qualitative data or for integrating the interview and psychometric findings, making it difficult to understand the interview element of their research. Conclusions:If we are to understand and improve the long-term consequences of treatment for penile cancer, qualitative studies of patients' experiences need to be conducted with high quality analysis and reporting. While pen-and-paper questionnaires may take up little of the time of clinicians conducting research about rare conditions, time could be better used by using methodologies that explore patients experiences.

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“…A more conservative approach using treatment modalities such as laser therapy, brachytherapy or conservative surgery such as glans resurfacing or glansectomy has recently been advocated (1,2). While the potential benefits of using a more conservative surgical approach has not been fully evaluated the effects of laser therapy for early stage tumours has been investigated in some detail (6). A third of patients failed to resume sexual activities three years after treatment.…”

Section: Quality Of Lifementioning

confidence: 99%