Trends in Length of Hospice Care From 1996 to 2007 and the Factors Associated With Length of Hospice Care in 2007

Sengupta, Manisha; Park-Lee, Eunice; Valverde, Roberto; Caffrey, Christine; Jones, Adrienne

doi:10.1177/1049909113492371

Cited by 10 publications

(7 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Families were enrolled in hospice an average of 82.6 days (54 median, SD=75.9). Our reported length of stay is longer than the U.S. national average [26] [14], as patients who died before they were able to have a recorded visit were excluded. Recording most frequently began at the median (6 th ) visit after enrollment.…”

Section: Resultsmentioning

confidence: 99%

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Ellington

Clayton

Reblin

et al. 2018

Patient Education and Counseling

View full text Add to dashboard Cite

show abstract

Section: Resultsmentioning

confidence: 99%

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Ellington

Clayton

Reblin

et al. 2018

Patient Education and Counseling

View full text Add to dashboard Cite

show abstract

“…However, assessing QOL of advanced cancer patients every 2–3 weeks was found to provide similar data retention (94% [86%–98%]) as twice weekly assessments (93% [89%–98%]), but with less patient data burden (Hollen, Gralla, & Rittenberg, ). Since not all our participants were receiving hospice care [patients tend to be referred to/receive hospice care late in their disease trajectory (Sengupta, Park‐Lee, Valverde, Caffrey, & Jones, )], we decided to use a 2‐week interval for follow‐up assessments to include the largest number of subjects at each assessment. This schedule covered the most rapid changes in patients’ physical condition and the most demanding period of caregiving before the patient's death, but was balanced with data validity, participants’ data burden and data‐collection costs.…”

Section: Methodsmentioning

confidence: 99%

Changes in and modifiable patient- and family caregiver-related factors associated with cancer patients’ high self-perceived burden to others at the end of life: A longitudinal study

et al. 2018

View full text Add to dashboard Cite

This prospective, longitudinal study explored changes in and modifiable factors associated with high self‐perceived burden to others (SPB) among a convenience sample of 276 dyads of terminally ill Taiwanese cancer patients and their family caregivers over patients’ last year of life. High SPB was evaluated by scores ≥20 on the Self‐Perceived Burden Scale. Modifiable factors of high SPB included factors related to both patients (i.e., symptom distress, functional dependence and coping capacity) and caregivers (i.e., caregiving burden, depressive symptoms and quality of life [QOL]). Modifiable factors of high SPB were identified by multivariate logistic regression modelling with the generalised estimating equation while controlling for demographic factors. We found that patients tended to experience high SPB if they had more symptom distress. In contrast, the likelihood of high SPB was significantly lower if patients had greater coping capacity and their caregivers reported better QOL. High SPB was not associated with patients’ functional dependence, caregivers’ caregiving burden and depressive‐symptom level while providing end‐of‐life (EOL) care, and time proximity to death. Healthcare professionals may alleviate terminally ill cancer patients’ high SPB at EOL through palliative care that adequately manages patients’ physical symptom distress, enhances patients’ coping capacity and improves family caregivers’ QOL.

show abstract

“…For example, participants may have had longer hospice stays than the national average (Sengupta et al, 2014), which may have given these hospices more opportunities to interact with caregivers in meaningful ways. This limitation, therefore, may suggest that the results are conservative, that is, caregivers more generally may be even less likely to engage in bereavement-related conversations with hospice staff members than the participants of this study.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Missed Opportunity: Hospice Care and the Family

2015

The Gerontologist

View full text Add to dashboard Cite

A typical mission statement of hospice services is to provide quality, compassionate care to those with terminal illness and to support families through caregiving and bereavement. This study explored the ways that bereavement needs of caregivers, either pre-or post-death of their spouse/ partner, were addressed using qualitative retrospective phone interviews with 19 caregivers whose spouse/partner was enrolled in hospice care for cancer. Overall, participants expressed high satisfaction with hospice care, most often noting a high satisfaction with the quality of care provided to their spouse/partner. During the pre-death phase, caregivers recalled being so focused on their spouse/partner's needs that they rarely spoke with hospice staff about their own personal needs and emotions. Participants said that bereavement counseling occurred primarily after the death of the spouse/partner, in the form of generic pamphlets or phone calls from someone they had not met during prior interactions with hospice staff. These findings suggest that caregivers' high satisfaction with hospice may be more associated with the quality of care provided to the spouse/partner than with bereavement support they received. Our findings illustrated a potential missed opportunity for hospices to address the family-oriented goals that are commonly put forward in hospice mission statements. Keywordscaregivers; family caregivers; bereavement; hospice; grief/loss A serious chronic illness affects the quality of life of the patient, as well as the wellbeing and quality of life of family members. For example, those close to someone with a terminal cancer diagnosis often take on significant caregiving tasks, face other role changes as the dying person is not as able to engage in the same level of daily life activities, and express many feelings of uncertainty and grief as the patient experiences end-of-life (Badr et al., 2010). Research has indicated the importance of family or couple-based interventions across the entire trajectory of the chronic illnesses, including and especially during the end-of-life

show abstract

Trends in Length of Hospice Care From 1996 to 2007 and the Factors Associated With Length of Hospice Care in 2007

Cited by 10 publications

References 11 publications

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time

Changes in and modifiable patient- and family caregiver-related factors associated with cancer patients’ high self-perceived burden to others at the end of life: A longitudinal study

Missed Opportunity: Hospice Care and the Family

Contact Info

Product

Resources

About