Trust as a key measure of quality and safety after the restriction of family contact in Canadian long-term care settings during the COVID-19 pandemic

Hunter, Paulette V.; Ward, H.A.; Puurveen, Gloria

doi:10.1016/j.healthpol.2022.12.009

Cited by 6 publications

(6 citation statements)

References 74 publications

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“…In this way, the Namaste Care program cannot be viewed as an independent tool to improve social interactions of residents with advanced dementia without considering how it also engages the family and staff. This is especially important as family members do not forfeit the role of a caregiver once their relative enters LTC, and continue to hold numerous key responsibilities in the resident’s care plan, such as hands-on assistance, care management, socioeconomic support, and contributions to the resident’s LTC community at large [ 36 , 37 ]. Yet, their engagement should not be merely viewed as “another helping hand” for staff, as family involvement has been shown to be embedded within the complexities of the family-resident dynamic [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Supporting the “hallway residents”: a qualitative descriptive study of staff perspectives on implementing the Namaste Care intervention in long-term care

Li,

Yous,

Hunter

et al. 2023

BMC Geriatr

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Background Long-term care (LTC) settings are becoming home to an increasing number of people living with advanced or late-stage dementia. Residents living with advanced dementia represent some of society’s most vulnerable and socially excluded populations and are thus at an increased risk of social isolation. A multisensory intervention tailored to this population, Namaste Care, has been developed to improve quality of life for residents living with advanced dementia in LTC homes. To date, limited research has explored the perspectives of staff in implementing the Namaste Care program with an emphasis on social inclusion of residents in Canadian LTC homes. This study aimed to describe the perspectives of LTC staff on the implementation facilitators and barriers of Namaste Care as a program to support the social inclusion of residents living with advanced dementia. Methods Using a qualitative descriptive design, semi-structured interviews (n = 12) and focus groups (n = 6) were conducted in two LTC homes in Southern Ontario, Canada, over a 6-month period. Convenience sampling was used to recruit LTC home staff from the two participating sites. Thematic analysis was used to analyze data. Results LTC staff (n = 46) emphasized the program’s ability to recognize the unique needs of residents with advanced dementia, and also stated its potential to facilitate meaningful connections between families and residents, as well as foster care partnerships between staff and families. Findings indicated staff also perceived numerous facilitators and barriers to Namaste Care. In particular, providing staff with dedicated time for Namaste Care and implementing volunteer and family participation in the program were seen as facilitators, whereas the initial perception of the need for extra staff to deliver Namaste Care and identifying times in the day where Namaste Care was feasible for residents, families, and staff, were seen as barriers. Conclusions LTC staff recognized the need for formalized programs like Namaste Care to address the biopsychosocial needs of residents with advanced dementia and offer positive care partnership opportunities between staff and family members. Although staffing constraints remain the largest barrier to effective implementation, staff valued the program and made suggestions to build LTC home capacity for Namaste Care.

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Section: Discussionmentioning

confidence: 99%

Supporting the “hallway residents”: a qualitative descriptive study of staff perspectives on implementing the Namaste Care intervention in long-term care

Li,

Yous,

Hunter

et al. 2023

BMC Geriatr

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“…Due to the increased attention to informal care, conventional perceptions of informal caregivers as visitors to a nursing home and older persons as passive care recipients have evolved. This recent shift acknowledges older persons, informal caregivers and care professionals as collaborative partners in ‘care triads’ 8–10 . In care triads, care provision is seen as a communal effort.…”

Section: Introductionmentioning

confidence: 99%

“…Where older persons and informal caregivers focus more on the process of collaborative care, professionals emphasize the care recipient's outcomes in their collaborative efforts 1,5 . In relation to the process, older persons address the importance of reciprocity 20 and autonomy 21 and informal caregivers underscore the importance of trust and open communication 8,19 . In addition, different views exist on the roles of older persons and informal caregivers in the collaborations of the care triad 11 .…”

Section: Introductionmentioning

confidence: 99%

“…This recent shift acknowledges older persons, informal caregivers and care professionals as collaborative partners in ‘care triads’. 8 , 9 , 10 In care triads, care provision is seen as a communal effort. Each partner's perspective on collaboration shapes the dynamics within these care triads.…”

Section: Introductionmentioning

confidence: 99%

“… 1 , 5 In relation to the process, older persons address the importance of reciprocity 20 and autonomy 21 and informal caregivers underscore the importance of trust and open communication. 8 , 19 In addition, different views exist on the roles of older persons and informal caregivers in the collaborations of the care triad. 11 While informal caregivers explicitly address the importance of valuing their role in the care triad, 18 , 22 care professionals sometimes view the role of informal caregivers as burdensome.…”

Section: Introductionmentioning

confidence: 99%

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Different views on collaboration between older persons, informal caregivers and care professionals

van Muijden,

Gräler,

van Exel

et al. 2024

Health Expectations

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BackgroundInformal care features high on the policy agenda of many countries to deal with workforce shortages. As a consequence, care provision increasingly takes place in the care triad of care recipients, informal caregivers and care professionals. How collaboration between care partners takes shape depends on how the different partners perceive this collaboration. This paper aims to investigate the relative importance of the different aspects of collaboration from the perspectives of care recipients, informal caregivers and care professionals in the context of the care for older persons in The Netherlands.MethodsUsing Q‐methodology, 32 participants ranked 28 statements that reflect different aspects of collaboration in the care triad and explained their ranking during a follow‐up interview. Participants comprised 9 older persons, 10 informal caregivers and 13 care professionals. Data were analysed using by‐person factor analysis to identify common patterns in the rankings of the statements. Emerging patterns were interpreted and described as views on collaboration using aggregated rankings and qualitative data from the interviews.ResultsFive distinct views on collaboration were found: (1) Emphasizing warm collaboration, (2) trusting care professional's expertise, (3) open and compassionate care professionals, (4) responsive decision‐making by autonomous care professionals and (5) prioritizing care recipient's and informal caregiver's interests. Care recipients and/or informal caregivers were associated with views 1, 3 and, 5, whereas care professionals were associated with all five views.ConclusionsOur study highlights the importance of recognizing the potential diversity of views between and within different partner groups in care triads. Governmental and organizational policy makers, as well as healthcare professionals who aim to increase or support the involvement of informal caregivers, should take this heterogeneity into consideration.Patient or Public ContributionAn advisory board of older persons (care recipients and informal caregivers) was involved in the recruitment of the participants, the formulation of the statements and the reflection on the findings of the study and potential implications.

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The Micropolitics of (Re)Negotiating Professional and Informal Care in the Changing Welfare State

Gräler,

van de Bovenkamp,

Felder

2024

Societal Value of Welfare Politics, Policies and Services

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Trust as a key measure of quality and safety after the restriction of family contact in Canadian long-term care settings during the COVID-19 pandemic

Cited by 6 publications

References 74 publications

Supporting the “hallway residents”: a qualitative descriptive study of staff perspectives on implementing the Namaste Care intervention in long-term care

Supporting the “hallway residents”: a qualitative descriptive study of staff perspectives on implementing the Namaste Care intervention in long-term care

Different views on collaboration between older persons, informal caregivers and care professionals

The Micropolitics of (Re)Negotiating Professional and Informal Care in the Changing Welfare State

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