Trust in American Medicine: A Call to Action for Health Care Professionals

Mohottige, Dinushika; Boulware, L. Ebony

doi:10.1002/hast.1081

Cited by 20 publications

(13 citation statements)

References 14 publications

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“…Studies have demonstrated that community forums that provide accurate, linguistically- and culturally-appropriate information to its participants offer a potential approach for enhancing trust [34] , [50] . Second, increased education and sensitivity training in medical mistrust for healthcare providers and medical researchers may help facilitate a constructive dialogue about how to acknowledge mistrust, recognize implicit and explicit biases, and begin to foster or deepen trust across relationships with patients and community members [51] , [52] . Addressing this challenge head on will be an integral action for transforming the culture and atmosphere of mistrust in medical institutions that has been reported by racial and ethnic minorities.…”

Section: Discussionmentioning

confidence: 99%

The role of trust in HPV vaccine uptake among racial and ethnic minorities in the United States: a narrative review

et al. 2021

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Despite the clinically proven benefits of the human papillomavirus (HPV) vaccine in preventing cervical and other HPV-associated cancers, vaccination coverage has been suboptimal among adolescents and young adults in the United States (US), particularly among racial and ethnic minority adolescents. Historical legacies, combined with current racial/ethnic disparities in healthcare, may contribute to suboptimal uptake and completion of the HPV vaccine in part through differing levels of trust in doctors and healthcare institutions. The purpose of this narrative review was to characterize trust and its role in decision making about HPV vaccine uptake among US racial and ethnic minorities. We conducted a literature search using the PubMed database, and our search terms yielded 1176 articles. We reviewed 41 full-text articles for eligibility and included 20 articles in this review. These studies used varied measures of trust or mistrust and assessed trust in not only doctors/healthcare providers, but also other sources including pharmaceutical companies, media, and clergy. Our review findings revealed generally high levels of trust in doctors and healthcare providers, but less so in pharmaceutical companies. Mistrust of either healthcare providers, government agencies or pharmaceutical companies was consistently associated with less favorable attitudes and lower vaccine uptake. The downstream effects of mistrust may occur through selected health beliefs regarding the perceived efficacy and safety of the vaccine. Minority groups were more likely to report trust in family members, religious organizations, and media sources compared to their white counterparts. Decision making about vaccine uptake is a multilayered process that involves comparing the perceived benefits of the vaccine against its perceived risks. Understanding how trusted sources can effectively harness the tools of social and traditional media to increase knowledge and awareness may help combat misinformation about the HPV vaccine and improve engagement with diverse communities.

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Section: Discussionmentioning

confidence: 99%

The role of trust in HPV vaccine uptake among racial and ethnic minorities in the United States: a narrative review

et al. 2021

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“…The majority of PLWH interviewed in this study had positive interactions within the healthcare system and during COVID-19 testing, yet a significant proportion of participants expressed concerns that they could not trust the test results. Medical mistrust has been described as a social determinant of health and is considered to be a result of historic and ongoing structural injustices that disproportionately impact Black patients, with downstream health impacts [ 30 , 31 ], including for HIV [ 32 , 33 ]. Mistrust has been seen throughout the United States during the COVID-19 pandemic due to misinformation and politicization of the COVID-19 response [ 34 ].…”

Section: Discussionmentioning

confidence: 99%

“That same stigma...that same hatred and negativity:” a qualitative study to understand stigma and medical mistrust experienced by people living with HIV diagnosed with COVID-19

et al. 2021

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Background The COVID-19 and HIV epidemics have exacerbated existing inequities among vulnerable groups and severely impacted communities of color. People living with HIV (PLWH), who may already face stigma or discrimination, are at risk of experiencing further stigma as a result of COVID-19, which can result in medical mistrust. Methods We performed qualitative interviews between June and August 2020 among 32 PLWH, including 10 individuals diagnosed with COVID-19. A majority of participants perceived themselves as having an increased risk of contracting COVID-19 due to their HIV status. Results Of those who tested positive for COVID-19, the majority regarded their HIV diagnosis as having a more profound impact on their lives but found similarities between COVID-19 stigma and HIV-related stigma. Many participants also expressed mistrust. Conclusions These results can be used to better understand the perspectives of PLWH during the COVID-19 pandemic and have important implications for potential COVID-19 vaccine hesitancy and future health crises.

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“…With reference to trust in medical institutions, Larson et al (44) emphasize the importance of past experiences. Relatedly, the current tendency toward lack of trust in science and medicine has been related to historical and contemporary structures of inequality and injustice (40,82), i.e., to historical or personal experiences of being deprioritized or maltreated by institutions, including healthcare (83). History offers several examples of negative effects of contraceptive methods and their methods of administration, which have initially gone unrecognized by medical authorities (51)(52)(53)(54)(55)(56)(57)61).…”

Section: The Use and Perceived Reliability Of Informationmentioning

confidence: 99%

Attitudes Toward the Copper IUD in Sweden: A Survey Study

Wemrell

Gunnarsson

2022

Front. Glob. Womens Health

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BackgroundWhile the efficacy and safety of the contraceptive copper intrauterine device (IUD) have been affirmed, alongside its importance for the prevention of unintended pregnancies, some studies have pointed to negative attitudes toward the device. In recent years, social media communication about it has included claims about systemic side effects, unsubstantiated by medical authorities. Research from the Swedish context is sparse. This study investigates attitudes toward the copper IUD and any correlations between negative attitudes toward or experiences of the device, and (1) sociodemographic characteristics, (2) the evaluation of the reliability of different sources of information, and (3) trust in healthcare and other societal institutions.MethodsA survey was distributed online to adult women in Sweden (n = 2,000). Aside from descriptive statistics, associations between negative attitudes toward or experiences of the copper IUD and sociodemographic and other variables were calculated using logistic regressions and expressed as odds ratios (ORs) with 95% confidence intervals (95% CIs). Open survey responses (n = 650) were analyzed thematically.ResultsWhile many reported positive attitudes toward and experiences of the IUD, 34.7% of all respondents reported negative attitudes and 45.4% of users reported negative experiences. Negative attitudes were strongly correlated with negative experiences. Negative attitudes and experiences were associated with low income, but no conclusive associations were identified with other socioeconomic variables. Negative attitudes and experiences were associated with lower levels of confidence in and satisfaction with healthcare, as well as lower self-assessed access and ability to assess the origin and reliability of information about the IUD. In open responses, negative comments were prevalent and included references to both common and unestablished perceived side-effects. Respondents pointed to problematic aspects of information and knowledge about the copper IUD and called for improved healthcare communication and updated research.ConclusionHealthcare provider communication about the copper IUD should promote reproductive autonomy and trust by providing clear information about potential side effects and being open to discuss women's experiences and concerns. Further research on copper IUD dissatisfaction and ways in which health professionals do and may best respond to it is needed.

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Trust in American Medicine: A Call to Action for Health Care Professionals

Cited by 20 publications

References 14 publications

The role of trust in HPV vaccine uptake among racial and ethnic minorities in the United States: a narrative review

The role of trust in HPV vaccine uptake among racial and ethnic minorities in the United States: a narrative review

“That same stigma...that same hatred and negativity:” a qualitative study to understand stigma and medical mistrust experienced by people living with HIV diagnosed with COVID-19

Attitudes Toward the Copper IUD in Sweden: A Survey Study

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