Trust in the Health Care System and the Use of Preventive Health Services by Older Black and White Adults

Musa, Donald; Schulz, Richard; Harris, R J; Silverman, Myrna; Thomas, Stephen B.

doi:10.2105/ajph.2007.123927

Cited by 368 publications

(297 citation statements)

References 39 publications

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“…The story of African Americans' mistrust of health care institutions and biomedical research has been told in many studies (e.g., Hall et al 2001;Musa et al 2009;Shoff and Yang 2012;White 2005). Their specific mistrust of human genetics research is only more recently becoming apparent (Bonham et al 2009;Bussey-Jones et al 2010;McDonald et al 2012;Skinner et al 2008).…”

Section: Discussionmentioning

confidence: 99%

Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiatives

et al. 2013

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There is limited information about what African Americans think about biobanks and the ethical questions surrounding them. Likewise, there is a gap in capacity to successfully enroll African Americans as biobank donors. The purposes of this community-based participatory study were to: (a) explore African Americans' perspectives on genetics/genomic research, (b) understand facilitators and barriers to participation in such studies, and (c) enlist their ideas about how to attract and sustain engagement of African Americans in genetics initiatives. As the first phase in a mixed methods study, we conducted four focus groups with 21 African American community leaders in one US Midwest city. The sample consisted of executive directors of community organizations and prominent community activists. Data were analyzed thematically. Skepticism about biomedical research and lack of trust characterized discussions about biomedical research and biobanks. The Tuskegee Untreated Syphilis Study and the Henrietta Lacks case influenced their desire to protect their community from harm and exploitation. Connections between genetics and family history made genetics/genomics research personal, pitting intrusion into private affairs against solutions. Participants also expressed concerns about ethical issues involved in genomics research, calling attention to how research had previously been conducted in their community. Participants hoped personalized medicine might bring health benefits to their people and proposed African American communities have a "seat at the table." They called for basic respect, authentic collaboration, bidirectional education, transparency and prerogative, and meaningful benefits and remuneration. Key to building trust and overcoming African Americans' trepidation and resistance to participation in biobanks are early and persistent engagement with the community, partnerships with community stakeholders to map research priorities, ethical conduct of research, and a guarantee of equitable distribution of benefits from genomics discoveries.

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Section: Discussionmentioning

confidence: 99%

Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiatives

et al. 2013

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“…Nevertheless, although the credibility of health Web sites and pages may depend on site genres (Flanagin & Metzger, 2007;Iding, Crosby, Auernheimer, & Klemm, 2009), factors such as site design can counteract the effect of Web site genre on site credibility (Flanagin & Metzger). Meanwhile, a number of studies also measured consumers' global trust in various sources of health information, such as doctors, television, newspapers and magazines, relatives and friends, and the Internet (Khoo, Bolt, Babl, Jury, & Goldman, 2008;Musa, Schulz, Harris, Silverman, & Thomas, 2009;Narhi, 2007). This practice appears to be acceptable: Several Health Information National Trends Survey studies that use such measures have been published (Hesse et al, 2005;Hong, 2008;Ling, Klein, & Dang, 2006;McQueen, Vernon, Meissner, Klabunde, & Rakowski, 2006;Rains, 2007;Roach et al, 2009;44 Y. Ye Rutten, Augustson, Doran, Moser, & Hesse, 2009), and some of them have been highly cited McQueen et al;Ramanadhan & Viswanath, 2006).…”

Section: Discussionmentioning

confidence: 99%

Correlates of Consumer Trust in Online Health Information: Findings From the Health Information National Trends Survey

2010

Journal of Health Communication

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“…For instance, a recent study has suggested that high levels of distrust in the health care system is associated with low odds of using preventive health services, controlling for other competing explanations. 49 Our results also imply that policies that target crime to help establish safe and cohesive neighborhoods may further reduce the impact of distrust on self-rated health. These macro-level actions can increase individuals' perception of health care performance and facilitate health.…”

Section: Discussionmentioning

confidence: 62%

Individual Health Care System Distrust and Neighborhood Social Environment: How Are They Jointly Associated with Self-rated Health?

2011

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Americans' distrust in the health care system has increased in the past decades; however, little research has explored the impact of distrust on self-rated health and even less is known about whether neighborhood social environment plays a role in understanding the relationship between distrust and self-rated health. This study fills these gaps by investigating both the direct and moderating associations of neighborhood social environment with self-rated health. Our analysis is based on the 2008 Philadelphia Health Management Corporation's household survey and neighborhood-level data. Findings from multilevel logistic regression show that after controlling for individual-and neighborhood-level covariates, distrust is directly and adversely related to self-rated health, and that neighborhood social affluence and stability are directly and negatively associated with the odds of reporting poor/fair health. Neighborhood disadvantage and crime rates are not directly related to self-rated health, but increase the odds of having poor/fair health via distrust. Overall, our results suggest that macro-level actions can alter individual's perception of residential environment and lead to improved health. To improve the public health in an urban setting, rebuilding confidence in the health care system is integral, and the policies that help establish safe and cohesive neighborhoods may reduce the adverse effect of distrust on self-rated health.

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Trust in the Health Care System and the Use of Preventive Health Services by Older Black and White Adults

Cited by 368 publications

References 39 publications

Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiatives

Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiatives

Correlates of Consumer Trust in Online Health Information: Findings From the Health Information National Trends Survey

Individual Health Care System Distrust and Neighborhood Social Environment: How Are They Jointly Associated with Self-rated Health?

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