Types of strain among family members of individuals with autism spectrum disorder across the lifespan

Shivers, Carolyn M.; Krizova, Katarina; Lee, Gloria K.

doi:10.1016/j.ridd.2017.07.003

Cited by 21 publications

(19 citation statements)

References 37 publications

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“…Results indicated that although adaptive coping is not significantly related to lower caregiving strain and better mental health among these caregivers, the effect of maladaptive coping behaviors was significant in mediating the relationship between strain and caregiver mental health, highlighting the importance of avoiding maladaptive coping behaviors. This result is consistent with the majority of the existing literature, showing that engaging in maladaptive coping behaviors was associated with negative outcomes among caregivers (Dardas & Ahmad, 2015;Folkman & Moskowitz, 2004;Shivers et al, 2017;Smith et al, 2008;Stuart & McGrew, 2009). Although our nonsignificant results of the mediating effect of adaptive coping was somewhat surprising and inconsistent to the general literature (e.g.…”

Section: Discussionsupporting

confidence: 86%

“…Specific maladaptive coping behaviors, such as avoidance, increased the stress level and adversely affect the mental health and depression of caregivers of children with ASD when used as a long-term coping strategy (Folkman & Moskowitz, 2004) and were shown to correlate significantly with greater caregiver strain (Stuart & McGrew, 2009). A study by Shivers et al (2017) on caregiving and strain among caregivers of children with ASD across life span reported that maladaptive coping significantly correlated with caregivers' subjective internalized strain, subjective externalized strain, and objective strain, highlighting the detrimental effects of negative coping on these caregivers' perceived level of strain and caregiving demands. On the other hand, positive coping is shown to relate to positive caregiving outcomes.…”

Section: Copingmentioning

confidence: 99%

“…Because of the different aspects of strain, they are often related to different outcomes (e.g. Kirby, White, & Baranek, 2015;Shivers, Krizova, & Lee, 2017). Furthermore, limited studies focus on investigating the types of support or service needs that are likely to benefit caregivers.…”

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confidence: 99%

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Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis

Lee

Krizova

Shivers

2019

Autism

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This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping behaviors were significant in mediating the relationship between strain and mental health. Professional service and emotional caregiving needs moderated the relationship between maladaptive coping and mental health at times of high caregiving strain, but not involvement, health information, and instrumental support needs. Results highlighted the negative effect of maladaptive coping, as well as professional service and emotional support needs were salient in moderating coping and mental health in times of high caregiving strain.

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Section: Discussionsupporting

confidence: 86%

Section: Copingmentioning

confidence: 99%

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Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis

Lee

Krizova

Shivers

2019

Autism

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“…Meanwhile, the use of passive-avoidance coping had the strongest association to parents' burden. Therefore, to boost parents' self-esteem, optimism and self-efficacy while caring for ASD children, it needs support groups to promote mental well-being among parents [15][16][17].…”

Section: Parents Coping Strategies Before and After Self-help Group Interventionsmentioning

confidence: 99%

Effects of self-help groups intervention on coping strategies of parents of children with Autism Spectrum Disorder (ASD)

Hidayah

Lestari

2019

IJPHS

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Coping strategies were significant predictors of psychosocial adaptation in parents of children with autism spectrum disorder (ASD). Self-help groups could be effective resources for parents in dealing with problems wile caring for children with ASD. The purpose of this study was to analyze the effects of self-help groups on coping strategies in parents of children with ASD. This study used pre and post quasi-experimental tests without a control group using self-help group interventions. There were thirty-three participants taken from the Malang City Autism Service Center using purposive sampling. Coping strategies based on cognitive and psychomotor abilities were measured using a questionnaire. The results showed paired t-test in all groups, at 5% significance level, statistically significant difference between mean score before and after self-help group interventions. Coping strategies in groups that received two supervised sessions and four times independently reached higher score compared to other groups. It can be concluded that it is important to implement self-help groups for parents who care for children with special needs.

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“…A body of literature has explored parents' characteristics and experiences in terms of stress levels, quality of life, coping mechanisms and advocacy (2)(3)(4); however, the investigation of parents/caregivers' perspective on the effectiveness of treatments and services their children receive has been limited (5).…”

Section: Introductionmentioning

confidence: 99%

Treating Children with ASD: The Perspective of Caregivers

et al. 2018

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-Purpose: Treatment of Autism Spectrum Disorders (ASD) is challenging. Parents/caregivers' perspective on the effectiveness of therapies and services available to their children is important but neglected in the literature on ASD. This study investigated such perspective through questionnaire-guided interviews with a group of parents in the province of Manitoba (Canada). A secondary objective of the study was to explore how health care professionals and specifically pharmacists can assist in providing better care to children with ASD. Methods: Informed consent was obtained from all participants. Data on diagnoses and prescribed medications were collected from medical charts. Parents/caregivers completed questionnaires during interviews scheduled at their convenience. Specific questions were asked to gather caregivers/parents' perspectives on the effectiveness of medications and non-pharmacological interventions in controlling symptoms experienced by their children. Information on access to education and health services was also assessed. Common themes were identified using thematic analysis. Results: All children attended school, 88% were males, 50% experienced eating/sleeping difficulties; 69% reported Attention Deficit Hyperactivity Disorder comorbidity. Risperidone was reported to be effective in controlling aggressive behaviours. Methylphenidate and aripiprazole were often discontinued. Melatonin and occupational therapy services were said to be very useful. Access to behavioural therapy was often limited. Parents were concerned about lack of trained professionals in schools, limited understanding of their children's needs, and uncertainty for the future. Conclusions: Better education and awareness are necessary to help ASD children and their families. Pharmacists should explore opportunities to provide better services.

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Types of strain among family members of individuals with autism spectrum disorder across the lifespan

Cited by 21 publications

References 37 publications

Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis

Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis

Effects of self-help groups intervention on coping strategies of parents of children with Autism Spectrum Disorder (ASD)

Treating Children with ASD: The Perspective of Caregivers

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