Uncharted Territory: Systematic Review of Providers' Roles, Understanding, and Views Pertaining to Health Care Transition

Adult care providers’ perspectives on the transition to adult care for emerging adults with Type 1 diabetes: a cross‐sectional survey

“…Most respondents had not received transition care training and were not familiar with professional societies’ transition care guidelines or resources, arguably contributing to the relatively minimal implementation of transition care processes reported within the adult care setting. The deficiencies in transition care services that we identified mirror those in other chronic conditions , highlighting the pervasiveness of this problem. Notably, the absence of a healthcare policy was endorsed by more than half of respondents as being a barrier to effective transition care.…”

Adolescent to Adult HIV Health Care Transition From the Perspective of Adult Providers in the United States

“…Our results suggest that adult and adolescent clinic involvement is essential to provide coordinated care during HIV-related healthcare transition. Overall, adult clinics perceived a passive healthcare transition role (with primary responsibility placed on the youth and adolescent clinics); however, adult clinics’ active engagement in supporting healthcare transition is crucial for successful transition outcomes 15,23 . Using evidence-based research and a quality improvement framework to inform comprehensive and streamlined transition protocols can help enhance the capacity of adult clinics to collaborate with adolescent clinics to provide coordinated and uninterrupted HIV-related care and improve continuum of care outcomes.…”

“…This study examined the role of adult clinics in the transition process for HIV-infected youth, an area under-explored in the healthcare transition literature (for exceptions, see 23 ). The transition processes we observed both aligned and conflicted with the American Academy of Pediatrics’ 13 guidelines with providers reporting a more passive role of adult clinics during healthcare transition.…”

Transitioning HIV-Positive Adolescents to Adult Care: Lessons Learned From Twelve Adolescent Medicine Clinics

“…Further, research is needed to examine adult clinic transition protocols (if they exist) and how adult and adolescent protocols might be integrated. The role of the adult clinic in transition processes has been largely ignored but is crucial for developing a streamlined process (Nehring et al, 2015; Tanner et al, 2013). Exploring adult providers’ attitudes and comfort in treating adolescents, who are often dealing with other challenges (e.g., developmental stage), will be essential to ascertain training gaps and needs.…”

“…The little research that exists on HIV transition reports the perspectives of adolescents (primarily perinatally infected youth) and clinic providers to examine challenges associated with navigating between adolescent and adult HIV care systems (Nehring, Betz, & Lobo, 2015). These studies identify a range of issues including: youths’ developmental readiness, Medicaid eligibility due to age, and providers’ reticence to relinquish care (Gilliam et al, 2011; Valenzuela et al, 2011; Vijayan, Benin, Wagner, Romano, & Andiman, 2009).…”