Uncovering Barriers and Strategies for African Americans and Organ Donation

Reinhart, Amber Marie; Lilly, Amanda E.

doi:10.1080/10646175.2019.1670294

Cited by 6 publications

(8 citation statements)

References 36 publications

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“…Another common myth is that medical treatment will be limited if there is the potential for donation. 17 Organ donation is not considered until all potential lifesaving measures have been exhausted. Finally, some may believe that a traditional funeral with viewing is not possible after donation.…”

Section: Understanding Donationmentioning

confidence: 99%

“…Importantly, donation is often noted as a personal decision that should be made while one is still alive and communicated in advance to family. 17,20 Individuals with questions should contact both their religious/spiritual advisors and the OPO/ TERA. The OPO/TERA can provide current information, address potential concerns, and collaborate to clarify specific aspects of the donation process, thus enabling the individual to make an educated decision.…”

Section: Understanding Donationmentioning

confidence: 99%

“…Organs from patients who are human immunodeficiency virus positive can now be transplanted into waiting recipients who also have human immunodeficiency virus. Another common myth is that medical treatment will be limited if there is the potential for donation 17 . Organ donation is not considered until all potential lifesaving measures have been exhausted.…”

Section: Understanding Donationmentioning

confidence: 99%

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Turning Loss Into Legacy

Westphal,

Williams,

Sommer

2024

J Hosp Palliat Nurs

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Organ, tissue, and eye donations provide opportunities to leave a legacy by saving and/or enhancing the quality of life of others. There has been little published related to tissue or eye donation in hospice/palliative care and few initiatives to facilitate donation among hospice patients/families. Donation myths, gaps in knowledge, and, most significantly, lack of donation referral processes result in missed opportunities for patient/families to consider donation. One donor has the potential to impact 75 lives or more through tissue donation and 2 lives through eye donation. Hospice/palliative care providers can play key roles related to education, advocacy, and collaboration. The support of hospice/palliative care organizations and the local Organ Procurement Organization/Tissue and Eye Recovery Agency are essential for facilitating donation opportunities. This article summarizes current literature, examines legislation and regulations related to donation, presents a case that illustrates an opportunity for hospice community based donation, and shares practices that support donation in hospice/palliative care organizations together with the local Organ Procurement Organization/Tissue and Eye Recovery Agency. This article will hopefully provide the impetus for further study and the development of practices to optimize donation in hospice/palliative care, thus providing more patients and families the opportunity to turn loss into legacy.

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Section: Understanding Donationmentioning

confidence: 99%

Section: Understanding Donationmentioning

confidence: 99%

Section: Understanding Donationmentioning

confidence: 99%

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Turning Loss Into Legacy

Westphal,

Williams,

Sommer

2024

J Hosp Palliat Nurs

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“…Tailored, culturally specific messaging can make a positive difference in health outcomes in a variety of health communication contexts, [11][12][13] It may also be useful with the Black community who have greater rates of mistrust in the healthcare system, [14][15][16] lower rates of registration as donors, 17 and less positive attitudes toward organ and tissue donation. 18 Many healthcare organizations have adopted text messaging to communicate with patients about aspects of care. [19][20][21] American patients have expressed a preference for receiving communication with their care providers via text message, including those less likely to use the internet or email.…”

Section: Introductionmentioning

confidence: 99%

“…Tailored, culturally specific messaging can make a positive difference in health outcomes in a variety of health communication contexts, 11–13 It may also be useful with the Black community who have greater rates of mistrust in the healthcare system, 14–16 lower rates of registration as donors, 17 and less positive attitudes toward organ and tissue donation. 18…”

Section: Introductionmentioning

confidence: 99%

Messaging White and Black Next of Kin in Advance to Promote Authorization for Tissue Donation

Siminoff,

Wilson-Genderson,

West

et al. 2023

Prog Transpl

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Introduction: Organ Procurement Organizations seek authorization for tissue donation from next-of-kin of deceased patients. Best practices for achieving contact and authorization are unknown, notably, authorization rates are lower for Black compared to White patients. Research Questions: Can next-of-kin (NOK) contact and authorization rates be improved if they are texted prior to telephone contact? Is a text message containing an infographic more effective, and does an infographic culturally tailored to Black families improve contact and authorization rates in the Black population? Design: This three-armed randomized trial compared (1) telephonic contact initiation (control condition); (2) generic text messaging prior to telephonic contact; and (3) text messaging one of two versions of an infographic prior to telephonic contact: (a) a generic infographic or (b) a culturally tailored infographic (sent to Black NOK only) at one Northeastern Organ Procurement Organization. Results: Tissue Donation Professionals (N = 47) and 2399 White and 745 Black NOK were included, of which 35.6% were registered donors. Authorization rates were much higher for White than Black (40.1% v 16.3%, P < 0.0001). The generic infographic resulted in significantly lower rates of contact for White NOK compared to the control condition 83.5% v 89.5%, P = 0.002), but study arm assignments were not otherwise associated with differences in contact or authorization rates. Conclusion: Although the analysis did not find a benefit for text messaging, it is possible that training for staff making requests and refining the content of the messaging could be more effective.

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