Understanding and Improving Survivorship Care for Adolescents and Young Adults with Cancer

Baird, Hannah; Patterson, Pandora; Medlow, Sharon; Allison, Kimberley R.

doi:10.1089/jayao.2019.0031

Cited by 32 publications

(48 citation statements)

References 42 publications

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“…Currently, there are limited opportunities for adolescent cancer survivors to access evidence-informed psychosocial interventions. Collaboration between the healthcare system and community support organisations on the provision of routine survivorship care is important, with community-based organisations able to offer complementary access to therapeutic interventions (Baird et al 2019). This study demonstrates the feasibility and acceptability of delivering a specifically-tailored ACT intervention for adolescent cancer survivors in a community setting, indicating the potential for such programs to address psychosocial and peer support needs that persist beyond treatment completion.…”

Section: Psychosocial Implications and Next Stepsmentioning

confidence: 81%

“…As adolescent cancer survivors face the daunting task of managing "normal" life alongside the impacts of their cancer experience (Woodgate 2005), access to appropriate professional services and support to address unmet needs is needed (Baird et al 2019;Barnett et al 2016;Tsangaris et al 2014;Wakefield et al 2013). However, relatively few evidencebased interventions are available addressing the psychosocial needs of this population: Walker et al's (2016) review identified just eleven high quality publications evaluating interventions for 10-30 year olds with cancer, of which few targeted only the adolescent age range and/or reported a specific therapeutic approach.…”

Section: Introductionmentioning

confidence: 99%

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The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors

Clarke

Patterson

McDonald

et al. 2020

Child Youth Care Forum

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Background Adolescents diagnosed with cancer experience unique psychosocial concerns that persist beyond treatment completion into longer-term survivorship. Camp-based, group Acceptance and Commitment Therapy (ACT) programs are a potential model for providing evidence-informed psychological and peer support to adolescent cancer survivors. Objective This paper describes the development and exploration of the feasibility and acceptability of such a program, Places You'll Go. This manualised program incorporates five 90-min group ACT sessions within a 3-day camp, teaching ACT strategies in the context of psychosocial impacts of cancer. Method Eight facilitators and twenty-eight Australian adolescent cancer survivors (68% female; age range 12-17 years, M = 15.4 years) participated in the program and evaluation. Feasibility was assessed using facilitator-reported session duration, attendance, quality and content fidelity; facilitators also completed interviews after program completion. Young people completed surveys on program acceptability at the end of each session and at program completion. Results All planned sessions were delivered, with 97% attendance and high fidelity in manualised program delivery. All young people were mostly or very satisfied and would recommend the program to another cancer survivor. Opportunities for peer connection and skill development contributed to perceived program acceptability. Conclusions The Places You'll Go program was acceptable and feasible to deliver. It is a promising community-based model for promoting peer support and well-being in adolescent cancer survivors, indicating the potential of ACT-based approaches for this population. Further work is underway to evaluate whether the program improves psychosocial wellbeing among participants, and if this is linked to the therapeutic mechanisms underpinning ACT.

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Section: Psychosocial Implications and Next Stepsmentioning

confidence: 81%

Section: Introductionmentioning

confidence: 99%

The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors

Clarke

Patterson

McDonald

et al. 2020

Child Youth Care Forum

Self Cite

View full text Add to dashboard Cite

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“…The transition from end-of-treatment to post-treatment survivorship brings about a new set of challenges for AYAs 105 ; however, limited attention has been placed on this sensitive reentry period. This is noteworthy because post-treatment survivorship represents an important phase in the life trajectory of AYAs that carries additional emotional, social, and practical considerations.…”

Section: Transitioning Into Post-treatment Survivorship: Addressing Pmentioning

confidence: 99%

“…6,106 The difference here, however, is that at this juncture AYAs are forced to resume a life that has been profoundly transformed by the cancer experience. 105 Indeed, AYAs report feeling confused, unprepared, and alone as they strive to achieve a sense of normalcy. 7,22,105,107 Typical normative developmental concerns, such as dating, getting married, and having a family, are now observed through a new lens-one filled by uncertainty and self-doubt.…”

Section: Transitioning Into Post-treatment Survivorship: Addressing Pmentioning

confidence: 99%

“…105 Indeed, AYAs report feeling confused, unprepared, and alone as they strive to achieve a sense of normalcy. 7,22,105,107 Typical normative developmental concerns, such as dating, getting married, and having a family, are now observed through a new lens-one filled by uncertainty and self-doubt. Their sense of self and the world, now divided into a "before-cancer" and "after-cancer" self, 108 may become enshrouded by a desire for control, integration, and meaning.…”

Section: Transitioning Into Post-treatment Survivorship: Addressing Pmentioning

confidence: 99%

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Taboo Topics in Adolescent and Young Adult Oncology: Strategies for Managing Challenging but Important Conversations Central to Adolescent and Young Adult Cancer Survivorship

Perez

Salsman

Fladeboe

et al. 2020

American Society of Clinical Oncology Educational Book

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Research on adolescents and young adults (AYAs) with cancer has flourished over the past decade, underscoring the unique medical and psychosocial needs of this vulnerable group. A cancer diagnosis during adolescence and young adulthood intersects with the developmental trajectory of AYAs, derailing critical physical, social, and emotional development. AYAs face these abrupt life changes needing age-appropriate information and resources to offset these challenges. Greater attention is needed to address AYA-specific concerns on reproductive and sexual health, financial security and independence, emotional well-being, social support, and end-of-life care. If these unique needs are unaddressed, this can adversely affect AYAs’ health care engagement and overall quality of life, increasing their risk for cancer-related morbidity and early mortality. In particular, health care decisions made during treatment have important implications for AYA patients’ future health. Oncology clinicians are well positioned to address AYA patients’ concerns by anticipating and addressing the challenges this age group is likely to face. In this paper, we explore several core topics that affect AYAs’ quality of life and that can be challenging to address. Starting from the moment of diagnosis, through cancer treatment and post-treatment survivorship, and into end of life, each section highlights critical developmental-centric life domains that are affected by the cancer experience. Specifically, we discuss resources, tools, and strategies to navigate these challenging conversations. Taking a risk-reduction approach that invites two-way communication and facilitates referral to age-appropriate resources would help destigmatize these experiences and, in turn, would support the provision of compassionate and effective age-concordant care to this vulnerable group.

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Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

Schulte

Chalifour²,

Eaton³

et al. 2020

Cancer

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BACKGROUND:The quality of life (QoL) among survivors of adolescent and young adult (AYA) cancer may be compromised compared with that in the general population. In this study, the authors: 1) assessed for differences in QoL among a national study of AYA cancer survivors compared with the Canadian population and 2) explored the factors associated with poorer QoL in AYA cancer survivors. METHODS: For the current research, data from the Young Adults With Cancer in Their Prime study were used. QoL was measured using physical and mental component scores from a 12-item short-form health status measure. A comparison group was derived from the Canadian Community Health Survey. RESULTS: AYAs (n = 195; 17.8% male; mean ± SD: 35.62 ± 6.89 years on study, 6.48 ± 5.73 years from treatment) were compared with a comparison sample (n = 665; 21.2% male). Among survivors, 31.8% reported poor physical health, and 49.7% reported poor mental health. Compared with the general population, AYAs had significantly lower physical health (F[1,818]

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Understanding and Improving Survivorship Care for Adolescents and Young Adults with Cancer

Cited by 32 publications

References 42 publications

The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors

The Development and Process Evaluation of a 3-Day Acceptance and Commitment Therapy Group Program for Adolescent Cancer Survivors

Taboo Topics in Adolescent and Young Adult Oncology: Strategies for Managing Challenging but Important Conversations Central to Adolescent and Young Adult Cancer Survivorship

Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

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