Understanding and Measuring Symptom Burden in Heart Failure: A Concept Analysis

Stockdill, Macy; Patrician, Patricia A.; Bakitas, Marie

doi:10.1177/0193945919833710

Cited by 10 publications

(6 citation statements)

References 43 publications

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“…The literature indicates that the average number of symptoms in HF patients may vary from seven to 19. This large variation may be due to the lack of consistency in the concept of symptom overload and the multiplicity of methods available for its assessment (14,20) .…”

Section: Discussionmentioning

confidence: 99%

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Relationship between functional capacity, performance and symptoms in hospitalized patients with heart failure

Kurogi

Butcher²,

Salvetti

2020

Rev. Bras. Enferm.

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Objectives: to evaluate the prevalence of symptoms in heart failure patients and to investigate the relationship between symptoms, functional capacity and performance. Methods: cross-sectional study, developed at a hospital specializing in cardiology. The sample (n=170) consisted of patients with heart failure, assessed by means of a sociodemographic form, New York Heart Association Functional Class, Edmonton Symptom Rating Scale and Karnofsky Physical Performance Scale. Analyzes were performed using Spearman’s Correlation and Pearson’s Chi-Square test. Results: dyspnea, fatigue and edema were the main symptoms that led to the search for health services. During hospitalization, the main symptoms were anxiety, sleep disturbance and sadness. Weak negative correlations were observed between functionality, functional class, and symptom overload. Conclusions: the prevalence of symptoms was high and changed throughout the hospitalization period. Patients with poorer functional capacity and poorer performance had greater symptom overload.

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Section: Discussionmentioning

confidence: 99%

“…Comprehensive symptom assessment is therefore an essential component of improving health and reducing exacerbations and hospitalizations (19) . The absence of gold standard measures (20) for symptom overload assessment in HF patients compromises the generalization of data available in the literature.…”

Section: Introductionmentioning

confidence: 99%

Relationship between functional capacity, performance and symptoms in hospitalized patients with heart failure

Kurogi

Butcher²,

Salvetti

2020

Rev. Bras. Enferm.

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“…Despite the rapid growth in the symptom cluster field, previous studies have mainly targeted patients with various tumour types, 16 , 17 chronic obstructive pulmonary disease (COPD), 18 and heart failure. 19 Although some advances have been made regarding PN symptom clusters in stroke patients, 20 it is still unknown to us which kinds of stroke patients are prone to report a special PN symptom cluster. Furthermore, PN symptom studies in recent years on stroke patients have limited generalizability due to small sample sizes.…”

Section: Introductionmentioning

confidence: 99%

Exploring Psychoneurological Symptom Clusters in Acute Stroke Patients: A Latent Class Analysis

Dong

Yang

Guo

et al. 2022

JPR

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Purpose To identify latent classes of acute stroke patients with distinct experiences with the symptom clusters of depression, anxiety, fatigue, sleep disturbance, and pain symptoms and assess, if the selected variables determine a symptom-cluster experience in acute stroke patients. Participants and Methods A sample of 690 participants were collected from July 2020 to December 2020 in a cross-sectional descriptive study. Latent class analysis was conducted to distinguish different clusters of acute stroke participants who experienced five patient-reported symptoms. Furthermore, multinomial logistic regression was selected to verify the influencing indicators of each subgroup, with selected socio-demographic variables, clinical characteristics, self-efficacy, and perceived social support as independent variables and the different latent classes as the dependent variable. Results Three latent classes, named “all high symptom,” “high psychological disorder,” and “all low symptom,” were identified, accounting for 9.6%, 26.3%, and 64.1% of symptom clusters, respectively. Patients in the “all high symptom” and “high psychological disorder” classes reported significantly lower quality of life (F=40.21, p <0.05). Female gender, younger age, higher National Institutes of Health Stroke Scale scores, and lower self-efficacy and perceived social support were risk factors associated with the “high psychological disorder” class. Younger patients with lower self-efficacy and perceived social support were more likely to be in the “all high symptom” class. Conclusion This study identified latent classes of acute stroke patients that can be used in predicting symptom-cluster experiences following a stroke. Also, the ability to characterize subgroups of patients with distinct symptom experiences helps identify high-risk patients. Focusing on symptom clusters in clinical practice can inspire us to create effective targeted interventions for subgroups of stroke patients suffering from the same symptom cluster.

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“…Reported inpatient mortality rate for patients admitted to hospital with heart failure in England and Wales is 9.2% with an increased rate of 39% within 12 months for those who survived to discharge (NICOR 2022). This group of people are elderly (mean age of 77.8 years on first admission) and often have multiple morbidities with high symptom burden even at rest (Stockdill et al 2019).…”

Section: Introductionmentioning

confidence: 99%

Living well with heart failure: evaluation of an education and support programme for patients and caregivers

Butcher

Walthall

Wee

2022

British Journal of Cardiac Nursing

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Background/Aims Living with advanced heart failure places a considerable burden on patients and their caregivers. Improving the education and support given to patients and caregivers, with the input of palliative care services, could support them to live well with heart failure. This study evaluated an 8-week programme of education and support delivered in a day hospice for patients diagnosed with heart failure and their informal caregivers. Methods An 8-week programme was delivered five times between January 2018 and March 2019, with a total of 39 participants (24 patients and 15 caregivers). Two focus groups were conducted at the end of each programme (one with patients and one with caregivers). Groups were recorded and transcribed verbatim, and inductive thematic analysis was performed. Results Most patient participants were male (92%) and aged >70 years, while most caregiver participants were female (93%) and aged >50 years. The main themes from the patient participants' focus groups regarding the programme were the importance of knowledge; support and communication; having a gateway to resources; and the concept of living with heart failure. The main themes from the caregiver participant focus groups were becoming stronger; altered outcomes for the future; and connection through knowledge. All participants gave positive feedback about the programme, with increased knowledge about heart failure and access to peer support being highlighted as particularly valuable. Conclusions This hospice-based model of support and education, involving patients and their caregivers, has considerable potential as a means of helping these individuals to live well with heart failure. Greater integration between cardiac services and palliative care is needed to support this growing patient group.

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Understanding and Measuring Symptom Burden in Heart Failure: A Concept Analysis

Cited by 10 publications

References 43 publications

Relationship between functional capacity, performance and symptoms in hospitalized patients with heart failure

Relationship between functional capacity, performance and symptoms in hospitalized patients with heart failure

Exploring Psychoneurological Symptom Clusters in Acute Stroke Patients: A Latent Class Analysis

Living well with heart failure: evaluation of an education and support programme for patients and caregivers

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