Understanding Complexity in Care: Opportunities for Ethnographic Research in Palliative Care

Abstract

Background: Ethnography has been used to address a broad range of research questions in health care. With ethnographic research methods it is possible to gain access to the complex realities of health care practice as it occurs, through interpreting the nuances of individual and team behaviours, the roles and dynamics of care provision, and the social impacts and influences of illness. The provision of clinical palliative care is complex, involving multidisciplinary collaboration across different health systems, and is subject to a multitude of personal, cultural and environmental influences. This complexity demands creative methodological approaches to research in palliative care, of which ethnography plays an important, if infrequently utilised, role. Aim: This article aims to explore potential opportunities of ethnographic methods for palliative care research. Findings: Ethnographic methods focuses on behaviour in the ‘natural’ setting of participants, to create theoretical descriptions of events, cultures, interactions and experiences. In palliative care these methods may provide nuanced understandings of illness, relationships and teams, communication, medical education, complex care provision, and novel or changing health practices. Of particular importance is the potential of these methods to understand complex practices and processes, and engage with under-represented population groups who may be excluded from interview research. Conclusion: Ethnography offers important opportunities for future research in palliative care and should be considered as part of the ‘research toolbox’ to improve understanding of the complex nature of care provision and the experiences of illness and loss.

How does community engagement evolve in different compassionate community contexts? A longitudinal comparative ethnographic research protocol

“…This research design is also well aligned with the recent call for action to use ethnographic research in the field of palliative care to gain a better understanding of the complexities of social practices of palliative care, and to include people most under-represented in palliative care research. 30 For those researchers, ‘ethnographic methods can enable insights not accessible from other data collection methods, including structures, processes, and behaviors the interviewed participants may be unaware of themselves’. 30 …”

“… 30 For those researchers, ‘ethnographic methods can enable insights not accessible from other data collection methods, including structures, processes, and behaviors the interviewed participants may be unaware of themselves’. 30 …”