Understanding Family Caregiver Communication to Provide Family-Centered Cancer Care

Wittenberg, Elaine; Buller, Haley; Ferrell, Betty; Koczywas, Marianna; Borneman, Tami

doi:10.1016/j.soncn.2017.09.001

Cited by 31 publications

(30 citation statements)

References 35 publications

(34 reference statements)

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“…e study methods included semistructured interview, focus group study, and questionnaire survey. Study participants had been diagnosed with mixed cancer [29][30][31][32][33][34][35][36][37][38][39][40][41][42][43][44], breast cancer [45][46][47][48][49], ovarian cancer [50], cervical cancer [51], melanoma [52], and head and neck cancer [53,54]. e details (study aims, study design, samples, cancer stage, instrument used, and key findings) can be seen in Table S2.…”

Section: Study Quality and Characteristics A Total Of 26 Articlesmentioning

confidence: 99%

“…Eighteen studies covered the communication target needs of patients/caregivers. Out of this total, four studies reported the needs of caregivers [29,31,32,41], while 12 reported the needs of patients [30, 34-37, 40, 44, 48-52] and two reported the needs of both patients and caregivers [42,46]. Communication targets included healthcare professionals (n � 18, 69.2%), peers (n � 4, 15.4%), patients (n � 1, 3.8%), caregivers (n � 1, 3.8%), and others (n � 1, 3.8%).…”

Section: Findings On Communication Needsmentioning

confidence: 99%

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Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review

Luo

Cao

et al. 2020

Journal of Oncology

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Objective. Effective communication for cancer patients and/or caregivers can meet information needs, reduce caregiver burden, improve physical and mental health, and promote intimacy. The aim of this review was to identify the communication needs of cancer patients and/or caregivers and to explore their specific communication needs to guide the development of future communication interventions. Methods. Chinese and English databases were systematically searched from January 2010 to October 2019, including MEDLINE, CINAHL, PubMed, and the China Academic Journal Full-text Database. The key search terms used were “cancer” or “carcinoma” or “oncology” AND “patient” or “caregiver” or “carer” AND “communication” or “discussion” or “talk” AND “need” or “needs” or “desire.”. Results. A total of 26 articles was identified and included in this review. The findings revealed the needs of cancer patients and/or caregivers in terms of communication target, content, style, timing, and preferences. Communication targets included health professionals, peers, caregivers, and patients. Communication content included illness-related, emotional support, daily life, sexuality, death, and a way to communicate with health professionals. Communication style needed to be expressed through such things as language and communication atmosphere. Communication timing mainly referred to before treatment and approaching death. Communication preferences were related to factors such as demographics and ethnic origin. Conclusions. Cancer patients and/or caregivers have different communication needs in terms of target, content, style, and communication timing. A better understanding of the unique communication needs of patients and/or caregivers will offer health professionals detailed information on designing appropriate interventions to support cancer patients and caregivers.

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Section: Study Quality and Characteristics A Total Of 26 Articlesmentioning

confidence: 99%

Section: Findings On Communication Needsmentioning

confidence: 99%

Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review

Luo

Cao

et al. 2020

Journal of Oncology

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“…Whilst care home staff do have a great deal of communication with residents' families, there has not been a need to research the notion of ' extending care' to settings beyond the care home, hence the lack of studies on this topic. However, transferable learning is offered by research in contexts such as hospices, intensive care units and palliative care (Bélanger et al, 2017;Kynoch et al, 2016;Petros and John, 2019;Schulman-Green and Feder, 2018;Gilissen et al, 2018;Wittenberg et al, 2017;Adams et al, 2017) who employ trained staff to offer counselling, bereavement counselling and spiritual care. This is not currently part of the portfolio of care-home services, although care home staff often do develop close relationships with residents and families and offer consolation and emotional support.…”

Section: Er3: Supporting Families At a Distancementioning

confidence: 99%

Producing ‘Top Tips’ for Care Home Staff During the COVID-19 Pandemic in England: Rapid Reviews Inform Evidence-Based Practice but Reveal Major Gaps

Towers¹,

Handley²,

Almack³

et al. 2020

JLTC

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Background In many countries, care homes are being disproportionately affected by the COVID-19 global pandemic, with high rates of mortality (Oliver, 2020a; Comas-Herrera & Zalakin, 2020; British Geriatrics Society, 2020a). In the UK, central government guidance on how care homes should respond to COVID-19 has been inconsistent and criticised for being overly health-focused, disregarding the health and safety of the social care workforce and the conditions within which they are working (The National Care Forum, 2020). There are approximately 1.49 million people working in adult social (long-term) care in England, most of whom are employed by the independent sector (Skills for Care, 2019). Whilst demand for care has led to significant increases in the number of jobs in the social care sector, most of these (76%) are direct care roles, fulfilled by a workforce historically referred to as 'unskilled' (Skills for Care, 2019). Regulated professionals (e.g. social workers, occupational therapists and nurses) account for only 5% of the workforce, compared with 54% of the workforce in health (NHS Digital, 2018). Within adult social care in England, care homes account for approximately 42% of jobs (Skills for Care, 2019), caring for approximately 400,000 people (LaingBuisson, 2018), many of whom have multiple and complex needs, including need for nursing care (Gordon et al., 2014). Despite increases in the number of care jobs in nursing homes between 2009 and 2018, the number of registered nursing jobs has seen a significant decrease (down 20% since 2012). Due to population ageing and funding restrictions, older people living in care homes typically depend on staff to meet basic needs in the last year(s) of life (

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“…Few reports have investigated differences in caregiver communication behaviors about cancer, yet variance in interaction patterns among family members exist and greatly impact caregiver psychosocial morbidity, quality of life, and perceived social support . Specifically, communication research about cancer caregivers has found that there are four family caregiver communication types: manager, partner, carrier, and lone caregivers . The typology is based on interaction patterns for family communication that are dependent upon the relationship between the caregiver and patient and develop from implicit and explicit rules for communicating within the family system.…”

Section: Introductionmentioning

confidence: 99%

“…Interaction patterns are either high (strong) or low (weak) within the family and between the caregiver and patient. Each type is summarized briefly in Table . Caregiver communication types influence the scope of caregiving burden and inform the communication behaviors exhibited with health care providers …”

Section: Introductionmentioning

confidence: 99%

Variation in health literacy among family caregiver communication types

2019

Self Cite

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Objective Previously, four caregiver types have been identified as a result of communication patterns between patient and caregiver, revealing unique caregiver information needs and preferences. The purpose of this study was to explore variation in health literacy among the four family caregiver communication types: manager, partner, carrier, and lone caregivers. Methods The sample consisted of 115 cancer caregivers. Participants completed the Family Caregiver Communication Tool and the Health Literacy of Caregivers Scale‐Cancer. Results A significant difference in health literacy domains was found between caregiver types for cancer‐related communication with the care recipient (P = .038) and understanding of the health care system (P = .003). Of the health literacy domains, mean scores were highest on understanding the health care system for both lone and carrier caregivers. Manager and partner caregivers were highest on the social support domain. The self‐care domain was lowest for the carrier, lone, and manager caregivers. Conclusions There was a variation across health literacy domains among caregiver communication types, further validating the Family Caregiver Communication Typology. Findings showed a need for educational programs for cancer caregivers to strengthen their health literacy skills. As cancer caregivers have a prominent role in the delivery and quality of cancer care, it is pivotal for health care centers to provide caregiver communication training and support.

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Understanding Family Caregiver Communication to Provide Family-Centered Cancer Care

Cited by 31 publications

References 35 publications

Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review

Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review

Producing ‘Top Tips’ for Care Home Staff During the COVID-19 Pandemic in England: Rapid Reviews Inform Evidence-Based Practice but Reveal Major Gaps

Variation in health literacy among family caregiver communication types

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