2020
DOI: 10.1080/08870446.2020.1766042
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Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time?

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Cited by 5 publications
(9 citation statements)
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“…Data were collected at study entry and at follow‐up about two years later. An examination of differences between the baseline and follow‐up samples was reported in an earlier publication and revealed few differences between samples: caregivers who provided both baseline and follow‐up data were more likely to be providing caregiving support to one or more children with haemophilia and were less likely to be Hispanic ;and caregivers were slightly worse off in terms of the baseline HCI emotional impact and PedsQL Health‐Related QOL, family functioning and total scores.…”
Section: Methodsmentioning
confidence: 80%
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“…Data were collected at study entry and at follow‐up about two years later. An examination of differences between the baseline and follow‐up samples was reported in an earlier publication and revealed few differences between samples: caregivers who provided both baseline and follow‐up data were more likely to be providing caregiving support to one or more children with haemophilia and were less likely to be Hispanic ;and caregivers were slightly worse off in terms of the baseline HCI emotional impact and PedsQL Health‐Related QOL, family functioning and total scores.…”
Section: Methodsmentioning
confidence: 80%
“…These ways of thinking about quality of life (QOL) have been implicated in response‐shift studies in people with HIV/AIDS, multiple sclerosis, spine surgery, bladder cancer and heterogeneous rare conditions . In our longitudinal study of haemophilia caregivers, positive‐emotions change was associated with prioritizing staying positive and a reduced emphasis on interpersonal problem‐solving …”
Section: Introductionmentioning
confidence: 85%
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