Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System

Carlozzi, Noelle E.; Lange, Rael T.; French, Louis M.; Sander, Angelle M.; Ianni, Phillip A.; Tulsky, David S.; Miner, Jennifer A.; Kallen, Michael A.; Brickell, Tracey A.

doi:10.1016/j.apmr.2018.05.034

Cited by 12 publications

(12 citation statements)

References 54 publications

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“…These findings, in conjunction with previously published findings for other measures within the TBI-CareQOL measurement system (Carlozzi, Hanks, et al, 2019; Carlozzi, Ianni, Lange, et al, 2019; Carlozzi, Ianni, Tulsky, et al, 2019; Carlozzi, Kallen, Brickell, et al, 2019; Carlozzi, Kallen, Hanks, Hanks, et al, 2019; Carlozzi, Kallen, Hanks, Kratz, et al, 2019; Carlozzi, Lange, Boileau, et al, 2019; Carlozzi, Lange, French, et al, 2019; Carlozzi, Lange, Kallen, et al, 2019a, 2019b) provide strong support for the clinical utility of this system’s measures. As such, clinicians and researchers should feel comfortable selecting appropriate TBI-CareQOL measures for use as meaningful endpoints in trials focused on improving outcomes in persons with TBI and their informal family caregivers.…”

Section: Discussionsupporting

confidence: 80%

“…Previous publications from the first phase of data collection have highlighted preliminary reliability and validity data for both the SF and simulated CATs (i.e., CATs that were simulated using full item bank administration data) for these new measures using the data collected in the initial calibration sample of caregivers of civilians and SMVs with TBI (Carlozzi, Kallen, Hanks, Hanks, et al, 2019; Carlozzi, Kallen, Hanks, Kratz, et al, 2019; Carlozzi, Kallen, Ianni, Hahn, et al, 2019; Carlozzi, Kallen, Ianni, Hahn, Sander, et al, 2019; Carlozzi, Kallen, Sander, et al, 2019; Carlozzi, Lange, French, et al, 2019). Those previous publications also highlighted the reliability and validity data for several generic measures of HRQOL within the TBI-CareQOL Measurement System; this included measures of mental HRQOL (Patient-Reported Outcomes Measurement Information System [PROMIS] Anger, Anxiety, and Depression; Carlozzi, Hanks, et al, 2019), physical HRQOL (PROMIS Sleep Disturbance and Fatigue; Carlozzi, Ianni, Tulsky, et al, 2019), and social HRQOL (PROMIS Ability to Participate in Social Roles and Activities, Satisfaction with Social Roles and Activities, Social Support, Emotional Support, and Social Isolation; Carlozzi, Ianni, Lange, et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

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Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).

Carlozzi¹,

Boileau²,

Kallen³

et al. 2020

Rehabilitation Psychology

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Objective: The Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL) is a patient-reported outcome measurement system that is specific to caregivers of civilians and service members/veterans (SMVs) with traumatic brain injury (TBI). This measurement system includes 26 item banks that represent both generic (i.e., borrowed from existing measurement systems) and caregiver-specific components of health-related quality of life (HRQOL). This report provides reliability and validity data for measures within the TBI-CareQOL that have not previously been reported (i.e., 4 caregiver-specific and 7 generic measures of HRQOL). Design: Three hundred eighty-five caregivers of persons with TBI completed caregiver-specific computer adaptive tests (CATs) for Feelings of Loss-Self, Caregiver Strain, Caregiver-Specific Anxiety, and Feeling Trapped, as well as generic measures of HRQOL from complementary measurement systems (i.e., Neuro-QoL Positive Affect and Well-Being; PROMIS Sleep-Related Impairment; NIH Toolbox Perceived Stress, General Life Satisfaction, and Self Efficacy; TBI-QOL Resilience and Grief/Loss). Caregivers also completed several additional measures to establish convergent and discriminant validity, as well as the Mayo Portland Adaptability Index, 4th ed. Results: Findings support the internal consistency reliability (all alphas >.85) and test-retest stability (all alphas >.73) of the TBI-CareQOL measures. Convergent validity was supported by moderate to high correlations between the TBI-CareQOL measures and related measures, whereas discriminant validity was supported by low correlations between the TBI-CareQOL measures and unrelated constructs. Known-groups validity was also supported. Conclusions: Findings support the reliability and validity of the item banks that comprise the TBI-CareQOL Measurement System. These measures should be considered for any standardized assessment of HRQOL in caregivers of civilians and SMVs with TBI.

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Section: Discussionsupporting

confidence: 80%

Section: Introductionmentioning

confidence: 99%

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).

Carlozzi¹,

Boileau²,

Kallen³

et al. 2020

Rehabilitation Psychology

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“…This report is complemented by several companion articles that provide a more in-depth examination of each of the domains highlighted in this paper. [39][40][41][42][43][44][45][46]…”

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confidence: 99%

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Carlozzi

Kallen

Hanks

et al. 2019

Archives of Physical Medicine and Rehabilitation

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“…In both studies, good internal consistency was found for Caregiving Burden and Caregiving Relationship Satisfaction but not for Caregiving Ideology and Caregiving Mastery. Ideology and mastery could be improved with further development, best achieved with a structured measurement development methodology per the TBI-CareQOL Measurement System (Carlozzi, Kallen, et al, 2018; Carlozzi, Lange, et al, 2018). Although ideology was dropped by Lawton and colleagues (1989), the same five items commonly represented this construct across all three studies, 4 suggesting its potential usefulness for caregiver research with further development.…”

Section: Discussionmentioning

confidence: 99%

Factor analysis of the Caregiver Appraisal Scale in military TBI.

Brickell¹,

Reid²,

French³

et al. 2019

Rehabilitation Psychology

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Purpose/Objective: To (a) examine the factor structure of the original 47-item Caregiver Appraisal Scale (CAS) in caregivers of service members/veterans (SMVs) following traumatic brain injury (TBI) and (b) assess whether the CAS yields a similar factor structure in this population compared to caregivers of civilian adults following TBI. Research Method/Design: Participants were 287 caregivers (female ϭ 96.2%; spouse ϭ 87.8%; mean age ϭ 38.6 years) of SMVs who sustained a mild, moderate, severe, or penetrating TBI, recruited from Walter Reed National Military Medical Center and via caregiver community outreach. Caregivers completed the CAS, Caregiver Questionnaire, and Mayo-Portland Adaptability Inventory-4 upon enrollment in the study. Results: Principal component analysis (PCA) revealed four factors that explained 43.2% of the variance in CAS scores: Perceived Burden, Caregiving Relationship Satisfaction, Caregiving Ideology, and Caregiving Mastery. Thirty-seven of the 47 CAS items loaded significantly onto only one of the four factors (Ն.40). A secondary PCA was performed on these 37 items, resulting in a four-factor solution very similar to that of the 47-item solution, which explained 46.8% of the variance in the 37-item measure. All but one item loaded significantly on a factor corresponding to a conceptually similar construct. Conclusions/Implications: Military and civilian caregivers have overlapping and differing concerns. The findings support a 37-item four-factor model of This article was published Online First March 21, 2019.

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Understanding Health-Related Quality of Life in Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Reliability and Validity Data for the TBI-CareQOL Measurement System

Cited by 12 publications

References 54 publications

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).

Reliability and validity data to support the clinical utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL).

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Factor analysis of the Caregiver Appraisal Scale in military TBI.

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