Understanding how the Support Needs Approach for Patients (SNAP) enables identification, expression and discussion of patient support needs: A qualitative study

Gardener, A Carole; Ewing, Gail; Deaton, Christi; Farquhar, Morag

doi:10.1177/17423953211047840

Cited by 3 publications

(9 citation statements)

References 19 publications

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“…In doing this palliative care services could take a person-centred, support needs approach (developed in adult palliative care) where individuals are facilitated to identify, express and prioritise their unmet support needs. 28 A comprehensive psycho-social assessment, using recognised ageappropriate tools (alongside professional judgement) may help identify those at risk of mental health problems and facilitate timely support. This is the first study to investigate the support needs of adult siblings with a sister/brother with a childhood life-limiting condition.…”

Section: What This Study Adds?mentioning

confidence: 99%

‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs

Kirk,

Pryjmachuk

2024

Palliat Med

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Background: There is a lack of research about the experiences and impact of having a sibling with a life-limiting condition. Studies focus on the sibling experience during childhood but the experience and impact during adulthood is unknown despite the increased life-expectancy of children with life-limiting conditions. Aim: To explore adult siblings’ perspectives on the experience of having a sister/brother with a childhood life-limiting condition and to identify their perceived needs and preferences for support. Design: A qualitative exploratory study design with data generated by semi-structured interviews and analysed using reflexive thematic analysis, underpinned by interpretivism. Setting/participants: Twenty-two siblings (17–42 years old) were recruited via a children’s hospice in England. Results: The experience of having a sibling with a life-limiting condition changes over time in response to how understandings of the meaning of a life-limiting condition develop and changing roles/relationships with parents and siblings. These experiences have an enduring impact on adult sibling’s mental health which is compounded by their unmet (and sometimes unrecognised) support needs in adolescence and adulthood. Siblings described the importance of support continuing into adulthood with a focus on the provision of psychotherapy and peer support. Conclusions: Having a sister/brother with a childhood life-limiting condition appeared to have a significant and ongoing impact on adult siblings but their support needs, particularly for psychotherapy and peer support, are overlooked. The findings highlight the importance of ensuring siblings are included in family assessments and that family-based interventions are developed to promote sibling-parent relationships.

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Section: What This Study Adds?mentioning

confidence: 99%

‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs

Kirk,

Pryjmachuk

2024

Palliat Med

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“…Needs assessment is a key component of holistic treatment that aims to alleviate health-related suffering from serious illness [124]. The term NAT has been used to describe tools that can broadly be categorized into two groups: (i) those developed to assist in the early identification of individuals who would benefit from palliative care or other symptom-directed treatment, and (ii) those developed to identify and monitor unmet palliative and supportive care needs [125,126]. Only the latter will be considered in this review.…”

Section: Summary Of Evidencementioning

confidence: 99%

“…Eleven papers were included in our narrative review [125][126][127][128][129][130][131][132][133][134][135], as well as three systematic reviews [124,136,137]. Within these papers, 23 tools are discussed, of which 9 tools aimed to identify unmet needs of patients (7 tools) [125,[127][128][129][130][131][132][133][134][135] or carers (2 tools) [132,136] (online supplement).…”

Section: Summary Of Evidencementioning

confidence: 99%

“…Of the 9 included NATs, only two were specifically developed for people with serious respiratory illness; the Needs Assessment Tool -Progressive Disease: Interstitial Lung Disease (NAT:PD-ILD) for people with ILD [127][128][129], and the Needs Near the End of Life Scale modified version (NEST-13) for people awaiting lung transplant [130]. Three were not specific to, but had been investigated in, a cohort of people with serious respiratory illness; the Supportive Needs Approach for Patients (SNAP) in people with COPD [125], the Supportive Care Needs Survey Short Form 34 (SCNS-SF34) in people with cystic fibrosis [131], and the Measure Yourself Medical Outcome Profile (MYMOP) in people with acute exacerbations of bronchitis [135]. Two NATS had been tested in mixed cohorts including a minority of people with serious respiratory illness; the Patient Needs Assessment in Palliative Care (PNAP) [133] and the Integrated Palliative Care Outcome Scale (IPOS) [134].…”

Section: Summary Of Evidencementioning

confidence: 99%

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European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness

Holland,

Spathis,

Marsaa

et al. 2024

Eur Respir J

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Respiratory symptoms are ubiquitous and impair health-related quality of life in people with respiratory disease. This European Respiratory Society (ERS) task force aimed to provide recommendations for symptomatic treatment in people with serious respiratory illness.The ERS task force comprised 16 members, including representatives of people with serious respiratory illness and informal caregivers. Seven questions were formulated, six in the “Population, Intervention, Comparison, Outcome” (PICO) format, which were addressed with full systematic reviews and evidence assessed using Grading of Recommendations Assessment, Development and Evaluation (GRADE). One question was addressed narratively. An “evidence-to-decision” framework was used to formulate recommendations.To treat symptoms in people with serious respiratory illness, the task force suggests the use of graded exercise therapy (conditional recommendation, low certainty of evidence); and suggests the use of a multicomponent services, handheld fan and breathing techniques (conditional recommendations, very low certainty of evidence). The task force suggests not to use opioids (conditional recommendation, very low certainty of evidence); and suggests either administering or not administering supplemental oxygen therapy (conditional recommendation, low certainty of evidence). The task force suggests that needs assessment tools may be used as part of a comprehensive needs assessment, but do not replace patient centred care and shared decision making (conditional recommendation, low certainty of evidence). The low certainty of evidence, modest impact of interventions on patient-centred outcomes, and absence of effective strategies to ameliorate cough highlight the need for new approaches to reduce symptoms and enhance wellbeing for individuals who live with serious respiratory illness.

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“…Through a systematic review, a qualitative data set and patient focus groups,89 15 support needs for people with COPD were identified and used to develop the SNAP tool 90. This tool provides the basis for identifying and addressing patient’s support needs in a clinical review, supports self-management and ensures care is person-centred 91…”

Section: Year Of the Nurse: A Spotlight On Nurse Research Leadershipmentioning

confidence: 99%

Review of the British Thoracic Society Winter Meeting 2021, 24–26 November 2021

Jha

Ward

Walker

et al. 2022

Thorax

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Understanding how the Support Needs Approach for Patients (SNAP) enables identification, expression and discussion of patient support needs: A qualitative study

Cited by 3 publications

References 19 publications

‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs

‘People don’t realise how much their past experiences affect them in adulthood’: A qualitative study of adult siblings’ experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs

European Respiratory Society clinical practice guideline on symptom management for adults with serious respiratory illness

Review of the British Thoracic Society Winter Meeting 2021, 24–26 November 2021

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