Understanding parents’ concerns about their children with autism taking public school transportation in Los Angeles County

Angell, Amber M.; Solomon, Olga

doi:10.1177/1362361316680182

Cited by 9 publications

(6 citation statements)

References 36 publications

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“…Several of these parents proudly identified as ‘autism parents,’ while others fought reluctantly. Because of the longitudinal nature of the study, we had the opportunity to observe the transformation of two families (the parents of Jayden and of Mateo Jr. and Isabella) who initially preferred to be cooperative but began fighting their school district after an event that caused them to question how well their child was being cared for (Angell and Solomon 2017). …”

Section: Methodsmentioning

confidence: 99%

“…Fabiana felt similarly after her son Mateo Jr. was ‘lost’ on a school bus, unaccounted for by the transportation department for an hour (Angell and Solomon 2017). When her request for a bus aide to ensure his safety was met with resistance, Fabiana said to the first author, ‘They may say, “I understand as a parent,” but I don’t think they do.…”

Section: Methodsmentioning

confidence: 99%

“…The families of Jayden and of Mateo Jr. and Isabella did not want to be ‘difficult’ or ‘take it that far.’ However, during data collection, they reluctantly began fighting after they felt their child was not receiving adequate attention and care (Angell and Solomon 2017). Our longitudinal study provided the opportunity to observe the process unfolding.…”

Section: Methodsmentioning

confidence: 99%

“…The parents’ identities and approach with the district altered slowly, through back-and-forth interactions with professionals in which parents found that expressing anything other than enthusiasm for professionals’ recommendations caused the professionals to react defensively, treating the parents as adversaries. Kyle observed, ‘They don’t like when you challenge them, I guess.’ This was reiterated when Sabine and Kyle consulted with an education lawyer after Jayden was ‘lost’ on a school bus for an hour (Angell and Solomon 2017). Sabine described what the lawyer told her:

They’re going to feel as if you’re trying to attack them…Just keep reminding them that you are the parent of…a boy with autism, that your son is nonverbal.

…”

Section: Methodsmentioning

confidence: 99%

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‘If I was a different ethnicity, would she treat me the same?’: Latino parents’ experiences obtaining autism services

Angell

Solomon

2017

Disability & Society

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This article reports on an ethnographic study with 12 Latino families of children on the autism spectrum related to obtaining autism services in Los Angeles County. Using critical discourse analysis of interviews, observations, and records, we consider the experiences of the Latino families in relation to: 1) A discursively constructed ‘autism parent’ subject position that mandates ‘fighting’ service systems to ‘win’ autism services for children, originating from White middle-class parents’ socio-economic resources and social capital; 2) A neoliberal social services climate that assumes scarcity of available resources and prioritizes austerity in their authorization; and 3) A media and institutional ‘cultural deficit’ discourse that attributes disparities in autism services for Latino children to their parents’ presumed culturally-based ‘passivity.’ We argue that parental discourse about fighting, or not fighting, for autism services is engendered by a tension between a parental logic of care, and the logic of competition of the economic market.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

They’re going to feel as if you’re trying to attack them…Just keep reminding them that you are the parent of…a boy with autism, that your son is nonverbal.

…”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

‘If I was a different ethnicity, would she treat me the same?’: Latino parents’ experiences obtaining autism services

Angell

Solomon

2017

Disability & Society

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“…The overarching purpose of our study was to understand Latino families’ experiences obtaining an autism diagnosis and services for their children, focusing broadly on all service systems. We have previously reported findings about the families’ experiences with home- (Angell et al, 2016) and school-based services (Angell & Solomon, 2017, 2018). In this article, we present findings related to the families’ healthcare experiences, both conventional and CHA, for their autistic children.…”

Section: Shared Decision-making In Healthcare For Autistic Childrenmentioning

confidence: 99%

Pediatricians’ role in healthcare for Latino autistic children: Shared decision-making versus “You’ve got to do everything on your own”

Angell

Lindly

Floríndez

et al. 2023

Autism

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Despite documented healthcare disparities among Latino autistic children, little is known about how their families experience the autism “diagnostic odyssey.” Pediatricians have a critical role in the “diagnostic odyssey,” but when it becomes arduous, parents may also use complementary health approaches, particularly when conventional care does not adequately address their concerns. Shared decision-making is important in healthcare for autistic children, especially when parents also choose complementary health approaches; but little is known about shared decision-making among Latino parents of autistic children. We conducted a 12-month ethnography with 12 bicultural/bilingual Latino families of autistic children to understand their healthcare experiences (conventional and complementary health approaches) for their children, focusing on shared decision-making. Thematic analysis revealed: (1) most pediatricians were involved early in the “diagnostic odyssey” but were largely uninvolved thereafter; (2) conventional healthcare was satisfactory to the parents for physical health, but not developmental issues; and (3) parents who used complementary health approaches were more frustrated about a lack of autism information from pediatricians than those who did not. Finally, (4) we describe two exemplars of successful shared decision-making between Latino parents and pediatricians. Increasing pediatricians’ autism knowledge and ability to discuss complementary health approaches may facilitate shared decision-making and reduce healthcare disparities for Latino autistic children. Lay Abstract Latino parents may choose to use complementary health approaches, such as vitamins, supplements, and special diets, for their autistic children. However, they might not tell their pediatrician about their complementary health approach use if they worry that the pediatrician will disapprove or judge them. This fear, along with pediatricians’ lack of autism knowledge, creates barriers to “shared decision-making” between parents and pediatricians. Shared decision-making is a process where families and healthcare providers collaborate and exchange information in order to come to an agreement about treatment options. In our qualitative study with 12 bilingual Latino families of autistic children, we interviewed and observed families to learn about their experiences with both conventional healthcare (their pediatrician) and complementary health approaches. Our study results describe the parents’ different pathways to an autism assessment, a process that is sometimes called the “diagnostic odyssey.” The parents reported that conventional healthcare met their needs for their child’s physical health but not for their child’s developmental challenges. The parents who used complementary health approaches for their autistic children were more frustrated about a lack of autism information from pediatricians than those who did not use complementary health approaches. Finally, we describe two examples of successful shared decision-making between parents and pediatricians. We conclude that pediatricians who are able to talk about complementary health approaches with Latino families may help to facilitate shared decision-making and reduce healthcare disparities for Latino autistic children.

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Behind the Wheel: Systematic Review of Factors Associated with Safe School Bus Transportation for Children with Neurodevelopmental Disorders

Chan

Senserrick

Saggers

2022

Rev J Autism Dev Disord

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School buses facilitate access to education for many children. This research aimed to systematically review factors associated with safe school bus transportation for children with neurodevelopmental disorders (NDDs). Searches of 5 databases, combining terms denoting NDDs and school buses, for English publications since 2000, yielded only 12 relevant articles among 1524 records. Literature was limited to parent-based studies, guidelines, reviews or commentaries. There was scant attention to the immediate roles of bus drivers and aides. Literature recommendations included increased attention to the needs of children with NDDs and improved communication, collaboration, support and training across all key stakeholders, particularly to improve implementation of individual child safety plans. Further research is needed on this critical support service for many families.

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Understanding parents’ concerns about their children with autism taking public school transportation in Los Angeles County

Cited by 9 publications

References 36 publications

‘If I was a different ethnicity, would she treat me the same?’: Latino parents’ experiences obtaining autism services

‘If I was a different ethnicity, would she treat me the same?’: Latino parents’ experiences obtaining autism services

Pediatricians’ role in healthcare for Latino autistic children: Shared decision-making versus “You’ve got to do everything on your own”

Behind the Wheel: Systematic Review of Factors Associated with Safe School Bus Transportation for Children with Neurodevelopmental Disorders

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