Understanding support systems for Parkinson's disease management in community settings: A cross‐national qualitative study

Soilemezi, Dia; Santos, Ana María Palmar; Navarta‐Sánchez, María Victoria; Roberts, Helen; Pedraz‐Marcos, Azucena; Haahr, Anita; Sörensen, Daniel; Bragstad, Line Kildal; Hjelle, Ellen Gabrielsen; Haavaag, Silje Bjørnsen; Portillo, Mari Carmen

doi:10.1111/hex.13691

Cited by 11 publications

(3 citation statements)

References 35 publications

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“…Furthermore, 71.1% (n=303) of the participants saw that individuals with PD should be supported and helped by the community. The same findings were stated by Soilemezi et al [17]. Most of the participants agreed that individuals with PD can lead fulfilling lives with proper treatment and support (n=306, 71.9%).…”

Section: Discussionsupporting

confidence: 84%

Evaluation of Knowledge and Attitudes of the Population of Tabuk City Regarding Parkinson’s Disease: A Cross-Sectional Study

Qasim,

Daghriri,

Alanazi

et al. 2023

Cureus

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Background: The lack of awareness and information about PD may be a barrier to early diagnosis and the delivery of the best care to patients with the condition, given its rising prevalence. In order to determine the variables that are connected to these parameters, this study sought to ascertain the general public's knowledge and awareness of PD in Tabuk City.Methods: In Tabuk City, a cross-sectional demographic survey was carried out. A validated structured questionnaire was used to interview adult respondents by random sampling regarding specific knowledge, attitudes, and awareness related to Parkinson's disease. According to the density of the city, a total of 426 members of the general population were chosen at random and interviewed by skilled interviewers.Results: Age and educational attainment were independently linked to PD awareness. Bachelor's degree subjects and those between the ages of 18 and 45 displayed a greater awareness of PD. Those above 60 and those between the ages of 46 and 60 lacked sufficient knowledge. The majority of participants demonstrated adequate understanding and awareness of PD in their respective occupations.Conclusions: Age, gender, occupation, and level of education were all adequately covered by knowledge and understanding of PD. To increase public knowledge, attitudes, and awareness of PD, however, suitable educational tactics and approaches targeting particular subgroups are required.

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Section: Discussionsupporting

confidence: 84%

Evaluation of Knowledge and Attitudes of the Population of Tabuk City Regarding Parkinson’s Disease: A Cross-Sectional Study

Qasim,

Daghriri,

Alanazi

et al. 2023

Cureus

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“…Estimates suggest that, in 2019, PD resulted in 5.8 million disability-adjusted life years, an increase of 81% since 2000, and caused 329,000 deaths, an increase of over 100% since 2000. This estimation is expected to increase to 12 million people in 2050 [ 21 , 22 ].…”

Section: Alzheimer’s and Parkinson’s Diseases: The Epidemiologic Fore...mentioning

confidence: 99%

Drug Development for Alzheimer’s and Parkinson’s Disease: Where Do We Go Now?

Sequeira,

Benfeito,

Fernandes

et al. 2024

Pharmaceutics

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Neurodegenerative diseases (NDs) are a set of progressive, chronic, and incurable diseases characterized by the gradual loss of neurons, culminating in the decline of cognitive and/or motor functions. Alzheimer’s disease (AD) and Parkinson’s disease (PD) are the most common NDs and represent an enormous burden both in terms of human suffering and economic cost. The available therapies for AD and PD only provide symptomatic and palliative relief for a limited period and are unable to modify the diseases’ progression. Over the last decades, research efforts have been focused on developing new pharmacological treatments for these NDs. However, to date, no breakthrough treatment has been discovered. Hence, the development of disease-modifying drugs able to halt or reverse the progression of NDs remains an unmet clinical need. This review summarizes the major hallmarks of AD and PD and the drugs available for pharmacological treatment. It also sheds light on potential directions that can be pursued to develop new, disease-modifying drugs to treat AD and PD, describing as representative examples some advances in the development of drug candidates targeting oxidative stress and adenosine A2A receptors.

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“…34 Qualitative interviews were conducted with people with PD, family carers, healthcare professionals, stakeholders and representatives from volunteer organisations across all four countries as part of the development of the intervention. 35,36 This sub-study encompasses qualitative interviews with partners serving as family carers of people with PD in Denmark and Norway.…”

Section: Setting and Samplementioning

confidence: 99%

Filling the gap in service provision. Partners as family carers to people with Parkinson's disease: A Scandinavian perspective

et al. 2023

Self Cite

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Objectives The purpose of this study was to explore the expectations of and experiences with the public healthcare system of domestic partners of people with Parkinson`s disease (PD) in Denmark and Norway. Methods A qualitative exploratory design was applied. The sample consisted of 14 people from Denmark ( n = 9) and Norway ( n = 5) living with a partner with PD. Semi-structured individual interviews were conducted between June and September 2020, digitally recorded, transcribed verbatim and analysed using a reflexive thematic analysis approach combining inductive and deductive approaches. Results The main themes were ‘negotiating systems of support’ and ‘balancing being both a partner and a family carer’. Partners take responsibility for the people with whom they live and attempt to fill gaps in the public healthcare system. The most frequently described needs were more information, service coordination as the illness progressed and acknowledgement of the complex role. Discussion A recommendation for practice is recognition of the complex roles of partners to people with PD and reaching out to both regularly to determine needs. This may enhance the collaboration between partner carers, people with PD and healthcare providers, ensure sustainability of the system and optimise living with PD in the family.

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Understanding support systems for Parkinson's disease management in community settings: A cross‐national qualitative study

Abstract: Background: Health and social care systems face difficulties in managing multimorbidity, disease burden and complex needs in long-term conditions such as Parkinson's disease.

Cited by 11 publications

References 35 publications

Evaluation of Knowledge and Attitudes of the Population of Tabuk City Regarding Parkinson’s Disease: A Cross-Sectional Study

Evaluation of Knowledge and Attitudes of the Population of Tabuk City Regarding Parkinson’s Disease: A Cross-Sectional Study

Drug Development for Alzheimer’s and Parkinson’s Disease: Where Do We Go Now?

Filling the gap in service provision. Partners as family carers to people with Parkinson's disease: A Scandinavian perspective

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