Understanding the contemporary role of the intellectual disability nurse: A review of the literature

Jaques, Hayden; Lewis, Peter; O’Reilly, Kate; Wiese, Michele; Wilson, Nathan J.

doi:10.1111/jocn.14555

Cited by 33 publications

(35 citation statements)

References 40 publications

(84 reference statements)

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“…The results of this study provide support for the idea that nurse intellectual disability specialization may promote more beneficial health outcomes for adults with intellectual disabilities as mediated by nurse behaviour. Jaques et al () found that the skill set of intellectual disability nurses is similar to non‐intellectual disability nurses in terms of physical skills, but differs in relational terms, with intellectual disability nurses demonstrating increased patience and resilience. The results of this study support the assertion that intellectual disability nurses may have a unique attitudinal skill set to care for individuals with disabilities.…”

Section: Discussionmentioning

confidence: 99%

Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross‐sectional, correlational‐predictive research study

Desroches

Sethares

Curtin

et al. 2019

Research Intellect Disabil

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Background Negative healthcare provider attitudes may contribute to healthcare disparities in adults with intellectual disabilities. This study identified predictors of nurses' attitudes and emotions toward caring for adults with intellectual disabilities in the United States. Method A convenience sample of 248 nurses was used to collect nurses' attitudes and emotions toward caring for adults with intellectual disabilities (Adapted Caring for Adults with Disabilities Questionnaire) and quality of life beliefs (Prognostic Beliefs Scale). Results Overall, nurses held less positive attitudes toward caring for an adult with intellectual disability versus a physical disability. Intellectual disability nurses held more positive attitudes and emotions and less negative emotions than non‐intellectual disability nurses. Quality of life beliefs predicted nurse attitude, positive emotions and negative emotions. The number of adults with intellectual disabilities cared for during the nurse's career predicted negative emotions. Conclusions Future interventions should focus on improving nurses' understanding of the quality of life of adults with intellectual disabilities.

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Section: Discussionmentioning

confidence: 99%

Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross‐sectional, correlational‐predictive research study

Desroches

Sethares

Curtin

et al. 2019

Research Intellect Disabil

View full text Add to dashboard Cite

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“…The dyad and the systems are under pressure from the emergence of the NDIS.A recent literature review focussing on what it is that constitutes the practice of IDD nursing, identified that the IDD nurse role is uniquely relational(Jaques, Lewis, Wiese, O'Reilly, & Wilson, 2018). Here, the nurse/patient dyad is represented in as a "bridge" set between the different pillars of the health and disability systems.…”

mentioning

confidence: 99%

“…A recent literature review focussing on what it is that constitutes the practice of IDD nursing, identified that the IDD nurse role is uniquely relational(Jaques, Lewis, Wiese, O'Reilly, & Wilson, 2018).The IDD nurse is not only unique because of the nursing skills they , but also for the way they relate to their clients. This relational role takes time to develop, requires personal investment and its absence can lead to negative outcomes.…”

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confidence: 99%

Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

Wilson

Wiese

Lewis

et al. 2019

Journal of Advanced Nursing

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Aims To explore the perceptions of Australian nurses working in disability‐specific settings and/or roles, about: (a) nursing people with intellectual and developmental disability living in Sydney; and (b) the utility and applicability of professional practice standards designed specifically for intellectual and developmental disability nursing. Design A qualitative research design was used to guide the study and our analysis utilized the constant comparative approach to thematic data analyses. Methods Individual in‐person interviews were conducted with 18 nurses working in intellectual and developmental disability‐specific settings and/or roles across the state of New South Wales between July – December, 2017. Participants described what it is that sets intellectual and developmental disability nursing apart from other nursing specialties, and the rewards and challenges of their role. Questions were also asked about professional practice standards in general and more specifically intellectual and developmental disability professional practice standards. Data were analysed thematically. Findings Three themes reflected intellectual and developmental disability nurses’ perceptions: (a) a unique investment in the nurse/patient dyad; (b) a bridge between disparate systems; and (c) an ambiguous future. Nurses reported variable understanding of professional practice standards designed for intellectual and developmental disability nursing, but also a belief in their importance. Conclusion The intellectual and developmental disability nurses’ experience of care accounts for the specific needs of patients with intellectual and developmental disability and suggests the importance of professional practice standards which acknowledge the changing landscape of care in Australia prompted by the implementation of the National Disability Insurance Scheme.

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“…In the UK context, Mitchell () previously argued that nurse education over the decades has actually been very responsive to the changing political and policy contexts where the focus of education has shifted from the pre‐1970s sickness model towards the more holistic, community‐based and social model reflecting the current climate. A review of the contemporary literature to explore the specialist role/s and the specialist skills of the ID nurse highlighted that ID nursing in the modern era requires a unique combination of both relational and practical skills (Jaques et al., ). In an Irish study about deinstitutionalisation, families reported feeling that the new breed of nurses were better trained with a focus on the pursuit of excellence and holistic care (Doody, ).…”

Section: Discussionmentioning

confidence: 99%

“…While beyond the scope of this paper, the complexity of the nursing role has been identified by Jaques, Lewis, Wiese, O'Reilly, and Wilson (2018) as not so much a uniquely technical nursing role, but a uniquely relational role due to the limitations in intellectual function and adaptive behaviour. The number of specialist ID nurses currently working in Australia is difficult to identify; however, a total of 107 solely qualified disability nurses from the pregeneric registration era are still registered in 2017 (Nursing & Midwifery Board of Australia, 2017).…”

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confidence: 99%

An exploration of the practice, policy and legislative issues of the specialist area of nursing people with intellectual disability: A scoping review

et al. 2018

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The specialist field of intellectual disability nursing has been subjected to a number of changes since the move towards deinstitutionalisation from the 1970s. Government policies sought to change the nature of the disability workforce from what was labelled as a medicalised approach, towards a more socially oriented model of support. Decades on however, many nurses who specialise in the care of people with intellectual disability are still employed. In Australia, the advent of the National Disability Insurance Scheme offers an apt moment to reflect upon these decades of specialised nursing care as the context of this nursing care will continue to evolve. A review of the published literature was conducted to explore what has shaped the field in the past and how this might inform the future of this speciality area under new policy and service contexts. People with intellectual disability have specific health and support needs that require a specialised workforce. Specialist nurses continue to be needed for people with intellectual disability.

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Understanding the contemporary role of the intellectual disability nurse: A review of the literature

Abstract: Understanding the skills required of nurses caring for people with intellectual disability provides the opportunity for more nurses to develop these specialised relational skills and for this branch of nursing to attract professional recognition that is currently limited.

Cited by 33 publications

References 40 publications

Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross‐sectional, correlational‐predictive research study

Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross‐sectional, correlational‐predictive research study

Nurses working in intellectual disability‐specific settings talk about the uniqueness of their role: A qualitative study

An exploration of the practice, policy and legislative issues of the specialist area of nursing people with intellectual disability: A scoping review

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